"Nobody told me..."

In November 2006 we launched the "Nobody told me..." campaign, as many stroke patients feel abandoned when they move from hospital to home.

Information plays a crucial role in stroke treatment and care, as well as patients’ recovery and long-term wellbeing. But many stroke survivors leave hospital without adequate information. The Stroke Association’s “Nobody told me…” campaign calls for everyone to get the information that they need before being discharged. 

The consequences of not having relevant information can be disastrous for the stroke survivor and costly to the state:

• discharged patients can miss out on essential services such as physiotherapy and speech therapy
• that can mean slower recovery, increased disability, loss of independence and self esteem, reduced employment prospects, increased poverty and a heavier burden on carers
• if patients are not told how to reduce the risk of another stroke or why it is important to carry on taking their prescribed medicines, this can lead to further strokes.

Armed with timely information, survivors can manage their condition more effectively and become involved in treatment and health decisions.

Our campaign will take these messages to Primary Care Trusts and all hospitals in England that care for stroke patients, as well as all hospitals and Local Health Boards in Wales.

England
Full details of our proposals and action plan are contained in the Nobody told me Briefing paper (515 kb)  

Wales
Full details can be found in our Welsh Briefing Paper Nobody told me Welsh Briefing paper (523 kb)

Hard copies of the briefing paper for England can be ordered by calling 01604 623938, and hard copies of the Welsh paper can be ordered from our Welsh Office on 029 2052 1728.

Find out more about the campaign 

We have also produced some materials that will enable you to join the campaign. Find out more about getting involved

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