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What is a stroke, who is at risk and recognising symptoms
Hi, I had symptoms (loss of speech, left weakness, facial droop) that looked like stroke in june 2012 and had a clear CT and was discharged from hospital after a couple of days as symptoms resolved mostly. I was then diagnosed with right brain ischaemic stroke after an out patient MRI In July 2012. I took reasonable care of myself from that date... But
2 weeks ago I had similar symptoms as before and was taken to ED by ambulance admitted to stroke unit.. I should add that i am post anterolateral MI x2 in 2004 and am on the usual meds. My stroke symptoms included left side weakness, loss of speech, drooping face left side all of which resolved fairly quickly. 2 weeks ago i had four separate episodes each lasting longer than the last. I was discharged same day, symptoms unexplained after clear CT scan, but had an echo on Tuesday that showed a blood clot in left ventricle. Following an MRI I was diagnosed with another ischaemic stroke right side brain in a different place and placed on warfarin and have to inject deltaparin daily for a few more days.
I am not due to see my consultant until june, so i thought i would ask you... Am i missing some info? As you can imagine i feel like i have changed. Im constantly tired, and decisions, understanding and speech sometimes take some effort. Today is a good day.. I am being referred to the anticoagulation clinic re inr but need advice on what effects some foods, and alcohol have on warfarin and deltaparin. Additionally what do i tell my friends, apparently i am all out of context lately, i assume that is normal?
Apart from my GP and the interweb, who do i go to to get these answers, should i go back to the hospital for an info pack? Does one even exist?
Anyway i am glad to have prevailed, twice, i just hope now we know about the clot i wont be back to hospital for a while yet.
Best wishes to you all
I do not have all the answers to your questions. But what I would recommend is you first make a list of the questions/issues you would like information on a piece of paper.
Then I would recommend you speak to your pharmacist and/or GP on the issues that concern you. If you have the piece of paper to hand it will help you to cover everything that concerns you.
Hope this helps.
Good afternoon to you all,
I am in need of some help. Nearly 4 weeks ago my boyfriend suffered a stroke affecting only his speech. He was allowed home a week later - during his time at home he began doing bits and pieces in the garden and felt really good until 3 weeks after his stroke when he had an unsteady moment at home. Since this time he has had major balance issues whereby even sitting down on the sofa - he feels like he is going to fall over. Is this common? Has anyone suffered this sudden onset of unbalance/unsteadiness? He is so frightened about being on his own at the moment and is terrified of going outside even with someone. I hope someone can help me as I am at a bit of loss about what to tell him. Oh - I do have an appointment for him to see his GP but would rather speak to someone who has been through this before!!
Hi - following my stroke I did not have any immediate problems. But a few weeks late I had balancing and coordination problems and it was really awful by the time I had the follow up appointment at the stroke clinic. I couldn't walk from the living room to the kitchen without hanging on to the wall or a chair. And supermarket shopping was a no-go - total disorientation so I would have to leave my husband with the trolley and sit in the car. Then at the out patient clinic they found that my diastolic blood pressure reading - the lower figure - was extremely high. I was also told that the anti inflammatory painkillers taken for arthritis should have been stopped. Urgent referral to GP took another two weeks so it was 2 and a half months after the stroke before pain killers were changed and blood pressure meds started. BP took some time to adjust but eventually I was prescribed Ramopril plus amlodipine. The combination did the trick and I felt sanity had returned. My concentration improved and I no longer had to do a balancing act. What a relief!! I thought at one point that I was going a bit mad. It really was an awful feeling so I can understand what it feels like. It may be worth your boyfriend having his BP checked again but there may of course be another reason. My mother-in-law suffers from vertigo and she has similar symptoms so he really does need to get checked out sooner rather than later. Good luck!
I just wanted to share. On Thursday 11th April, I had a ischaemic stroke, I'm only 43. Never smoked, haven't drank for two years through choice, and have been left with the right side of my face paralysed. The fabulous staff at the hospital looked after me wonderfully, and couldn't fault them.( food another story)
But what I did want to share is, even though Im lucky enough to have a wonderful partner, family and friends,
I just feel so down. Alone and want to seek some advice from others who have been where I am at the moment.
So I look forward to hearing from you soon,,
Hello - hope you are starting to feel a bit better now you are home. I had my stroke (small bleed) a few years ago aged 53. I know how you feel - it doesn't matter how much support you get from your great family and friends, they still don't really understand what it feels like unless they have been through the same experience themselves. I came home from hospital not knowing whether I could ever work again - was I still capable of doing my job? What about driving? Would I even remember roads signs etc or would I be a danger in the car? I found that it was a steep learning curve and little by little I realised what I could do or couldn't do. I was lucky in that after 5 months I returned to work and found that I could cope in my own way (but with some help from colleagues as well). But my confidence took a big bump and has never been quite the same since. I have learned to be quite a good actress in some ways as I quickly cover up any mistakes or even just laugh it off. Don't ask me to fix anything!! I was not very adept before but I now know that this bit of my brain has definitely been affected because I just look at things totally blankly because I probably don't know what to do. At first It used to upset me but now I just swallow my pride and ask somebody else to do it. But not everyone has the patience to help and in time you will learn to know who you can totally trust and rely on. Those are the people on your side and will still be with you throughout your ordeal. This s a very good way actually to learn more about the human race. You can distance yourself from those who you feel uncomfortable with because you may be better off without them. Sounds harsh but you really do need to be able to rely on caring people to support you on this long hard journey. The emotional and psychological affects are tremendous and may be far worse than your physical problems. My husband found it extremely hard to adjust as he wanted me to be the same person as before. It was difficult for him to realise that my personality has changed as I get far more mood swings than before. And maybe I am not always so tactful either!! I sometimes say things without thinking and apparently this is a very common trait after a stroke. But it does get easier with time. Plenty of rest alongside your rehabilitation is essential as tiredness is one of the worst things for me even after all this time. I have some good days but lots of bad days too. I don't always have good concentration on the bad days so it is a good opportunity to be a bit lazy!! Take each day as it comes and build yourself up gradually. I am sure that you will find your own strengths and weaknesses and work around it as best you can. Life does go on. I didn't' think in such a positive manner 5 years ago but I am still working and aim to get my pensions. Good luck in your recovery and take care. El
After a bout of seizures i had weakness which sometimes is nothing new. however i felt awful, and knew something wasnt right. then i noticed that i couldnt grip anything with right arm or hand and leg was weak.
i finally went to gp several days later who suggested mini stroke but my weakness in my hand has not gone away, i still cant make a fist or move fingers etc.
Also ive started getting worse again with headache and chest tightness. where all i can do is stay in bed.
the gp faxed a letter to stroke consultant who at first said he wanted to see me straight away but now has passed the management back to my gp.
but trying to find out whats happening and for my gp to ring me is not happening.
what am i meant to do when my symptoms arent getting any better?
I'm certain I suffered minor strokes in my teens - I was on the pill and a heavy smoker, I had daily headaches, and I had what I referred to as 'attacks' which I believe were strokes. There's also a history of cardiovascular disease in the family, both heart failure and stroke.
My symptoms included;
- VERY painful headache (behind left eye).
- Stiff painful neck.
- Numbness throughout body.*
- Going in and out of consciousness.
- Non-stop vomiting.
- Loss of ability to understand letters or numbers.**
- Light sensitivity and blurred vision.
- Altered sense of smell and taste.
- Drooping eyelids.
- Loss of balance.
* Numbness would start in my nose first and then my mouth would go numb so I'd start to badly slur my words and drool, this would would quickly progress to a point where I'd not be able to hold my arms up, put my foot flat on the ground to walk, or even be able to hold my own head-up. It was like my muscles had given-up, I felt like a marionette puppet being swung with no real control.
** It's hard to explain the loss of understanding of words and numbers, I recognised the symbols but somewhere in my head they'd get mixed-up. Once when away from home I had an attack, before it got too bad I tried to find a bus home but upon checking the time table I found I just didn't understand the numbers or how they related to the numbers on my watch.
*** I had no idea what I was saying or doing, no idea of what was happening around me so at my worst I'd get upset. I also experienced a symptom where I struggled to direct myself; I'd attempt to walk to the side but walk forward instead and walk into something, I'd try to adjust myself but end-up doing the exact same thing again, I just couldn't adjust myself. I've walked into doors, furniture, and even fell down stairs as a result of this.
Photos from my late teens show a facial slump on one side (no longer present), and since these 'attacks' I swear I've lost some mental ability and my memory, also I notice a slight delay in my brain telling my legs to walk or hands to pick things up...not a serious problem, just noticeable.
At the time I didn't go to the hospital and it was assumed by my doctor that I was experiencing severe migraines, no migraine medication or painkillers worked. No one ever suggested stroke or that the pill may be the cause of the problem - I suspect my doctors forgot my symptoms, reminding themselves why I was there by looking at their screen and seeing the last thing they tried was migraine medication so kept following that line of thinking, so they missed the obvious.
When I came off the pill and I stopped smoking these 'attacks' stopped completely. Although I don't suffer these 'attacks' any more it would be nice to know what they were as they caused such serious problems with my education and my life in general, I also worry that it may have caused long-term damage and put me at higher risk of stroke later in life.
Can doctors determine if I've suffered strokes?
Would minor strokes show-up on CT scans or MRI's, or would they be able to diagnose from symptoms? How difficult would it be to convince my doctor to consider diagnosing something that happened in the past?
Not sure if this helps, my dad suffered from a mini stroke (TIA) 14 months ago and a CT scan didn't show this, he has since suffered from a stroke (on Sunday) which did show on a CT, it is unusual that young people have strokes, although it seems to be getting more common and given that you were on the pill and smoking, the doctor could have worked on the percentages and figured you were presenting signs of a migraine rather than looking deeper into the problem to find something else with similar signs and symptom's of a migraine. Did they do any blood pressure, cholesterol checks or take blood samples? When I was chatting to a stroke nurse in the hospital over the weekend she said that mini strokesTIA's don't always show on CT scans. How long ago was your last attack??
Hi i just wondering if anyone has had a minor stroke.
In Nov 2011 i was told i had a very small stroke although the cat scan and MRI didn't show anything but i had presented with left arm weakness and a small droop to my mouth. I was put on medication and advised to stop smoking which i did. and thankfully the droop to my mouth corrected after a few days but my left arm still had a little weakness but life went on as normal i was just coming up to 47 then. I also had a family history of strokes my mother suffered a few mini strokes and then a massive one in April 2011 from which she died and father had suffered quite a few mini strokes which left him with Alzheimer's and he died 8 yrs prior to mum.
In Mar 2012 i collapsed at work and was taken to the hospital where again i had a cat scan that showed nothing on my brain but the above symptoms were present again. but apart from the slight weakness in my left arm i fully recovered. On Feb 9 of this year i was at work and begun to feel unwell i felt nauseous my left arm felt heavy and tingling i did not like light in my left eye i could not raise my eyebrows could not move my tongue the way the paramedics were asking me to had less feeling in the left side of my face and arm and although i could answer questions put to me i was slow to respond to these questions. I was taken to hospital where a stroke nurse carried out these test again and by then my neck was also hurting and it was hurting to lift my head. They give me a CAT scan and spoke to a stroke consultant via a t.v screen about my condition and he was able to view the CAT scan image. He then spoke to me and said he wanted the stroke nurse to administer a drug called THROMBILISTIS as he did not like the density of what he was seeing. I agreed and this was duly given and i was put on the Acute Stroke Ward where i wes monitored very closely. When my husband arrived the stroke sister explained to him that i had a stroke to the back of my head and to what they had given me and that there would be a CAT scan or MRI on Sunday to be carried out to make sure that there was no bleeding to the brain. On the Monday i saw the consultant who said without checking my arm or eye or face that i had NOT had a stroke i could go home and that i did not need the medication that i was on. to say the least i felt very shocked but relived and he walked away. The consultant then turned back to me and said i will send you a letter for an appointment at my STROKE clinic but it will take about 4 weeks and walked off. So here i am at home as my GP signed me off work for a month with my arm weaker than it was before this a constant headache my face and arm less sensitive to the right and i can't sleep for longer than a couple of hours of a night. My consultant has left me feeling a fraud and if these symptoms accrued again i don't think i would feel comfortable calling for an ambulance again.Has anyone any advise? PLEASE.
Hi too all members, I symapathise with you all, After having a cerrebellium brain stem stroke , Sorry too me ecerything is 5 yrs ago I cant seem too get by 5yrs ago
But the family say it was few yr more I spent along long time in hospital ,At 1st not recognising anyone at all, It was a xmas day ,I had tingling in my hand I also had a very weighty numb feeling in my hand From then on,
I cANT REMEMBER anything , My little grandaughter seemingly was there,
i dont remeber i was in and out of bed, my son say,s
I still thought after the memory Of itall come a little 4mth or so on, The tingle the numbness, my son saying he was phoning the doctor,
i WAS IN THE WESTERN FOR AROUND 6MTH (HOSPITAL) My left side wouldn,t stay up I couldn,t understand what was wrong , But 1 day the Lady across from me elderly, i rember her , trying too clean , Saying something about her Husband will be home ,Before my stroke i was a carer in a nursing home , So as i watched , My reaction when she went Too fall was try Jump out of Bed and get too her, I Fell sliding all across the floor I Still Couldnt understand why this was happening why i could,nt sit up without being propped up by pillows , The nurses what i mind was more concerned for me I was angry trying too point too the woman As my speech was also affected, and obviously my balance,
Anyhow the story goes on too long , My young brother was over Daily and its along way too travel, my youngest Ibrought up Since the age of 8 as my mum died at 40 with cerrebellium hemoarge , That must have been awful for my brother and my Young sister who i mind always looking away, and breaking her heart, But as i was not awre still of really what was happening
and i was allways there for all of them worked, did decor, plastering haha, you name it in my home all myself ,Going back too my brother and 2 sisters God now i think mY BROTHER Who was on holyday when my mum Died in his arms And me being the eldest, Had too go for Him Then go and identify my muM gOD THAT WAS THE HARDEST PART IN MY LIFE , MY DADHAD DIED AT 40 TOO WITH CORNARY ARTERY HEART ATTACK, FEW YRS PREVIOUS , SO ANDREW MY LITTLE BROTHER MUST HAVE EEN HIT HARD BY ME HAVING THE CERREBELLIUM STROKE WITH , THE NEAR SAME THING MY MU DIED IN HIS ARMS WITH, AS IT WAS HIM THAT FOLLOWED THE AMBULANCE IN TOO ,AND THEY WERE ALL TOLD TOO EXPECT THE WORST ,THEY TOLD ME LATER , AFTER THAT HOSPITAL IT WAS 1 CLOSER TOO HOME ,THEN THE BRAIN INJURY UNIT TOO LEARN TOO COOK WALK ECT DRESS ECT
I DO SYMPATHISE WITH ALL YOUR COMENTS ABOUT THE TINGLING PAIN ,PAIN ESPECIALLY WHEN THE WEATHERS BAD , THE DIZZY SPELLS NAUSEUS, SLEEPY ECT ECTITS AWFULBUT ,BUT WHAT I DONT UNDERSTAND IS ,,DOES ANYONE GET ,ON THERE BAD SIDE SEVERE SORE JUST IN ,,SAY LIKE MINE 2 PLACES ??THE ITCH IS LIKE NOTHING IVE FELT BEFORE IT STARTS A RED PATCH ON MY BACK A LITTLE SPOT,BLEEDS FOR A LONG TIME I CANT WEAR ANYTHING EVEN DOWN TO SOCKS WITHOUT CHECKING THERE,S NO BITS OF FLUFF THE SLIGHTEST THING SEEMS TOO IRRITATE ME, YET I CAN JAB PINS IN ME I HAVE NUMEROUS BURNS OF THE OVEN ,I HAVE TOO FEEL THE TEP OF WATER WITH MY OTHER HAND FOR BATHING, ALTHOUGH I DONT WHEN WASHING FEW DISHES, AND MY HAND GETS ALL SORES WITH THE BURNING WATER , I JUST FORGET AND DO IT NOT THINKING WHEN ITS FEW DISHES,,
IM SORRY THIS IS ALONG STORY, IVE NO,ONE TOO TALK TOO ,I DONT GO OUT UNLESS THE SHOP ON THE CORNER, BUT THAT AL DEPENDS ON HOW I FEEL THROUGH THE DIZZYNESS ECT I KNOW MY LIMITS NOW ,,WHEN I CAN GO OR NOT , IVE ALSO BEEN IN PRIVATE LETS FOR 5YRS MAYBE ONE 6MTH HVING TOO STAY THE TIME SYS ON MISSIVE ,THEN AGAIN MAYBE A YR ALL HAVING TOO PAY MYSELF AS THE HOUSING SAY THEYVE NOTHING SUITABLE FOR MY NEEDS , IN THE AREA,S IVE ADDED,,,, IM NOT ENTITLED TOO SHELTERED HOUSING AS IM ONLY 53,, ,YOU HAVE TOO BE 6O , I GOT THE SCOTTISH PARLIMENT INVOLVED LAST YEAR ,THE HOUSING PROMISED ID BE HOUSED THE NEXT AVAILABLE 1 THAT CAME UP IN AREA, BUT I PUT IN FOR 3BUT ONE THAT IT LAY EMPTY FOR 7WEEKS, IT JUST SO HAPPENED SOMEONE WITH HIGHER POINTS ON THE LIST LESS TIME THAN ME,, GOT THEM
IVE MOVED FROM HOUSE TOO HOUSE GOT THEM DECORATED AND PUT NEW FLOORING DOWN ECT AS ,I CANT LIVE IN DIRT THEN FIND OUT THAT I HAVE TOO MOVE YET AGAIN, AS THE LANDLORDS DONT CARE , TOO TELL YOU PROBLEMS IN AND AROUND THERE HOUSES, AND ALOTS BEEN BAD MOVES (BUT ME NOT KNOWING ) UNTILL ACTUALLY IN IT,, IM SO DEPRESSED ,THE LAST BUNGALOJUST LAST YEAR I HAD TOO MOVE AGAIN ,SO BACK AT BOTTOM OF HOUSING LIST AGAIN,,AS THE PAINT WAS JUST ALLWAYS FLAKING OF,RUINING MY SUITE FLOORING MY HEALTH WITH MY SORES ESPECIALLY AND DAMPNESS BAD, THE PAINTER I HAD TOO GET IN TWICE WHO RUBBED IT RIGHT DOWN ECTSAID ITS A WASTE OF MY MONEY, AS ITS NEW DOORS FACINGS ECT ECT AND THE DAMP THE O,T THAT CAME OUT FROM HOUSING SAID THE HOUSE WAS SUITABLE BEING A BUNGALO TOO LET, AND IT WAS JUST MY MENTAL HEALTH PROBLEMS THAT WAS MAKING ME THINK THAT, MY DOCTOR WAS FURIOUS, IVE NOW MOVED TOO YET AGAIN ANOTHER PRIVATE LET ,ON THE 8TH DECEMBER AS HEALTH GOT TOO BAD AND ID WAITED ,SO LONG AFTER THERE PROMISES ,BUT THIS TIME ITS CLEAN,,,BUT STUPIDLY TOOK IT THINKING I, WILL MANAGE THE STAIRS AND IM NOT , SO IVE GOT KETTLE ECT ECT UPSTAIRS IN ROOM INCASE I CANT GET DOWN THEM ,()I THINK BECAUSE IM ON MY FEET WITH A WALKING STICK NOW , THAT IM FINE,, ALTHOUGH THE DOCTORS WROTE IN NURSES IVE NEVERE EVER IN MY LIFE BEEN A BAD TENANT BEFORE MY STROKE, ,,AND ALSO IM NOT ALLWED A 2BED,ROOM BECAUSE NO,ONE CLAIMS CARERS ALLOWANCE FOR ME ALTHOUGH I SUFFER NIGHT PROBLEMS AND DUE TOO A BAD EXPERIENCE ,IN THE PAST I WILL ONLY ALLOW MY SISTER ,TOO HELP DURING THE NIGHT AND STAY , IF NEEDED I NEVER ASK FOR HELP ,FROM DAUGHTER ,SON FAMILY ,THEY KNOW IM UNWELL SO I SHOULD NOT HAVE TOO ASK,,I ONLY IN THAT ASPECT FOR NIGHT PROBLEMS AFTER FALLING AND TRYING TOO MAKE BED AGAIN BATHE SO ,,SHE COULD BE NEEDED 1 NIGHT 3 OR 7 ,I NEVER KNOW FROM DAY TOO DAY HOW MY HEALTH IS GOING TOO BE THERE IS NO JUSTICE IN THE HOUSING SYTEM ITS SHOCKING
SO SORRY IVE WENT ON AND ON BUT ,AS I SAID I DONT SEE ANYONE FROM DAY TOO DAY UNLESS , ITS I NEED MY SISTER TOO STAY , AND SHE,L COOK MEALS SO I CAN MICROWAVE THEM ONCE A WEEK THATS IT FOR ALL THE YEARS IVE SPENT MY YOUNGER LIFE CARING FOR THEM, I ALSO THINK BECAUSE IM UP ON A STCK NOW,I TALK BETTER IM FINE BUT IM NOT ,
I had a minor stroke 7 yrs ago and I am very great full to be almost back to normal, the only things it left me with is altered sensations which is progressive started just in my left hand and now is affecting my arm shoulder and half way down my back, a very gentle touch can send me into tears it feels like millions of knives being jabbed in me the tiny fingers of a baby's touch is the worst pain ever but if a hand is put on me firmly I am fine, I also find hot and cold a problem every thing is very hot or very cold on all the same areas. I am telling you all of this as I work with a lot of stroke clients that still live at home and many times my symptoms have helped me explain to family members,a scream when touched (but we are so gentle) or shout its burning me (when water is normal temp) so if your loved one cant tell you and gentle hurts be a little firmer or if water feels right to you make it a bit cooler it really is a horrible sensation and it must be hell not being able to tell someone that they are hurting you when you can't speak (and many family members feel helpless ) thank you for reading x
Thank you for this info, my dad had a stroke on Sunday and he is doing really well, this illness is strange to get my head around and everyone's stroke story is very different, no everyone is left with the same things to deal with and I feel frustration is a big part of this for both those who have suffered the stroke and the people around them. Thank you for taking the time to write
My partner Trevor of 35 years in August had a bleed to his brain 3 years ago now and he had a slow recovery ,fed with a peg ,poor speech and his left side was not good . He was sick so much as the bleed had effected his balance and cordination . The Bleed was in the Celeral bellum brought on by high blood pressure . We 3 years on he now drives and has patches to comact the sickness and medication for other symptons that he has been left with . He has very bad reflux and often can choke ,very frightening to watch ! I look at him and think well done look how far you have come . He cannot see it as when he was in hospital and care for over 6 months he was looking out and had no idea really what he had been through . My story to his is completly different as i saw how bad it all was ...
I now reflcet on it all and have another struggle with his changes in personality, he can be aggresive and nasty too me .. its always my fault ,he constantly repeats himself and if you dare say "yes you told me" he hits the roof . If i pull a face he screams at me and get very angry . He tries to do things in doors, but as he has only really one hand he can use and thats not great he gets so frustrated .. i am at times at my wits end in trying to cope with the way he is now . I have read so many stories today and realise this is not just happening to us ... and its helpful to share with you and know you understand thank you ...
I had my stroke in May 2012. Paralyzed my left side for a few days, still, not right. It can be frustrating, but I HAVE TO keep trying, no one can help because, in my view, that defeats the purpose, of working at "getting back to normal". I feel that I need to set a new normal, because I have been so affected by the stroke. I often just want to scream, "Just leave me alone!"... be normal! Try to discuss it while everyone is calm. For example, I had some hearing issues, and I made sure that we had a clear phrase, 'repeat that', which meant just that, not that I did not understand. Layout some guidelines, together during a calm time.If Trevor says "frustrated" then you know what's up and he knows you want to help, but doing nothing is the real help that Trevor wants. Good Luck, brain damage is hard to work with.
It sounds like Trevor has done really well recovering from the haemorrhage in his cerebellum and you are being very strong assisting with his care.
It is common that an injury to this area of the brain causes problems with balance and feelings of seasickness. Has he had any physiotherapy?
Perhaps an exercise program will help to focus his energy and help him to be more positive about what he is able to do - rather than what he is not able to do. Ask your GP for a neurological physiotherapy referral.
Perhaps an occupational therapist who specialises in cognitive beahvioural therapy would provide advice about how to cope and manage his personality chances post-stroke.
Stay positive and best wishes.
Sorry to read about the problems both you and your partner have been experiencing. My mother suffered a major stroke, resulting from a bleed in the brain, and I have to say her behaviour subsequently changed.
If you concsider your partner is having problems with his memory it would be a good idea to get him to see his GP, which explain part of his change.
Hope this helps
Possibly you may be able to assist me in any kind of way.
My Father (59) had a 2nd stroke in April last year, at the time he lost his short term memory, actually he lost all memories from the previous 5 year, at the time this put a great stress on the family as we lost my Gran a month before. Anyway, as the months past my Dad slowly got better,
Now if you did not know him, you probably would not think anything was wrong with him as he looks great, takes pride in his appearance and he still wants to achieve things in his life.
However, for family members close to him we know something is not right, he is short tempered and extremely aggressive and unfortunately this has now got to the stage where my mother and him are fighting so much that the Police have been called several times has resulted in my Dad being
Arrested, spending 2 nights in Police Custody, and now has a restraining order where he is not allowed back to his house until sometime in May, although that may sound rather scary for him, we have my mother who has been living in fear and walking on eggshells round him for 6+months, as things
Currently stand my mother simply cannot cope with his behaviour, I think she see’s him as the same person, and cannot understand his difficulties. My concerns are my dad has currently left the family circle and is staying with friends who will take care of him, but I feel the path they are will lead to
No good. He can’t seem to understand my Mum has his best interests at Heart, but all his hate and anger is directed towards her.
I have tried to speak with my Dad about his feeling’s and to be honest, the feeling I get is he does not actually know himself why he is angry and getting frustrated, although he acknowledges he has had a stroke, I think it’s quite not there that he is suffering personal turmoil and my Mother cannot
Support him. All my Dad says if she is pushing all his wrong buttons. I find it sad and it’s starting to take a toil not just on my Mum and Dad, but also on myself, sister and Aunt’s.
I have read up on strokes and brain injuries and all the signs are there which are even noted in your website, but we feel alone and require some kind of help to allow me to hopefully sort this.
Any suggestions, or advice would be most welcome and appreciated.
Sorry to read about your parents and the difficulties you and your family are facing. I just wonder whether it would be good for your father to go to his GP to see if he has any underlying medical problems that might be the cause of his change of behaviour. For example, my mother suffered a major stroke after which it became apparent she had both depression and vascular dementia.
Hope this helps
what about going to a counciller .I know of others that have been in this situation with their Mum and Dad, and having seperate meeting first, then as group has helped confront the issues and have allowed all parties to open up ... Your dad says that your Mum pushes all the wrong buttons, and thats the issue your Mum is carrying on as she always has before this happend to him and needs to see clearly how he feels and like wise your dad needs to see what this is doing to your Mum ... having a neuteral person may help ...
good luck and best wishes ,
My mother has recently suffered a minor stroke, and in her case one of the functions it has affected strongly is her internal body-clock. Whereas prior to the stroke she could rely on that clock to know roughly what time of the day it was and what day of the week, now it is telling her that it is mid-morning when it is late evening, or Saturday when it is Sunday etc. This seems to be quite an unusual stroke effect - can I ask:
1. Has anyone else on this forum experienced such symptoms post-stroke?
2. If so, do they have any advice on strategies for rehabilitation?
Thanks in advance for your help.
I'm sorry to hear about your mother's stroke and its odd effects. I had a minor stroke in summer 2010, and it left me with a strangely similar problem. For the first few months after the stroke my sense of time was off, usually by a few hours. That has passed, but I am sometimes left with the sense that today is tomorrow. This off-by-a-day thing was also one of the first symptoms of my stroke. It now manifests itself most often in the late evening when I am tired or early morning upon awakening.
I did quite a bit of day/date/calendar type of exercises during rehab, but this curious problem seems to have stuck with me. Getting back to a daily schedule (I'm a college teacher) helped. Self awareness of fatigue is my main defense; that's when I have to actively second-guess my "internal calendar."
I had my stroke in May 2012. I also had issues with time, day of the week, etc. When I got up in the morning, I would check the dte on my watch, then repeat in my head, Friday, Friday, Friday, so I would be on track for the day. It has improved over time.
I have found my dad struggling with the day of the week, he went into hospital on a Sunday and came home on a Wednesday and he quite often thinks its Sunday every day but he Is in the early stages of recovering, not sure if its the stroke causing this or the fact his routine has been messed up now he isn't at work for a while. Hospital certainly isn't a restful place when you have nurses in and out every few hours around the clock to check (which is fab but not restful) did your mother have windows in her room/ward in hospital? Sounds strange to ask but being in a room with no windows for a while may have played havoc?!
Has your Mum recently come out of hospital?
I wonder if her sleeping pattern is altered due to the noisy environment in the hospital setting and now she is catching up on her sleep. I suggest you monitor it over a the next few weeks and see if it improves.
If it doesn't I would suggest, a large clock with the date and time where she can see it at all times, a wall calendar/diary where she can cross off the days and times - perhaps they are all merging into one a little at the moment! You could talk to the GP about sleeping medication but I would wait a while before starting that. Dark curtains in her bedroom at night, a regular bedtime and morning wake-up call and minimise daytime naps unless required.... most importantly get some structure into her day ie. she does exercises at the same time every day.
Hope that helps. Best wishes to you and your Mum.
My mum had a strok back in April 2012 due to a tear in her carotid artery. She has been making excellent progress considering it was such a whopper and the fact that it has only been nine months (I MUST keep telling myself that!) but my mum has become really difficult with addressing when something is wrong - I think, because she thinks if she doesn't admit somethings wrong, no one will find anything.
I have just got off the phone to her and she told me that last night they had the paramedics out because she had a funny turn where her right arm and hand (the side that got affected by the stroke, that fully regained its use) stopped 'working' and she couldn't move her fingers. The paramedic did all tests with her and everything else was fine, but he suspects it was a TIA. He didn't make her go to hospital and has just said to make sure if something like that happens again to call straight away.
I just feel incredibly freaked out by that and I don't know if I am being irrational or not? I can't find any information about TIAs AFTER having a stroke - so nothing is really putting my mind at rest. I feel like it is such a big coincidence that Mum came off the Wolferin on Thursday and suddenly is having a TIA. I do have real trust issues with doctors too, as when mum first had her stroke last year her TIAs were brushed off by the paramedics and then she was sent home by the doctor - leading to her then having a stroke 12 hours later - I know it's not all doctors, but I can't help how I feel.
If anybody can give any input I really would be grateful. I'm not going to lie, even though my mum is very easy-breezy about the whole thing, I am struggling to keep calm about it.
Trust your instincts, if your not happy get it checked out even if a doctor says everything is ok, put your mind at rest. Is she due to have an appointment for a check up at the stroke unit soon? Could you bring it forward? Failing that I would take her to her GP, if she is reluctant to go, ask to have a chat with her GP and go from there?
Sorry to read about your mum.
My late mother suffered a major stroke and consequently suffered TIAs subsequently, which is the medical term for (smaller) mini strokes.
It is sad to say that there is no 100% medical cure for strokes. But what the doctors try to do is encourage everyone to lead a healthy and calm lifestyle, and if any medication is required (e.g. to control blood pressure) then to prescribe and continually monitor the condition. One important thing I learnt in caring for my mother was to try and keep her as calm as possible.
However, I also understand the predicament you are facing with your mother's doctors because I had exactly the same situation myself in respect of my mother. I learnt the best way to deal with this is to try and build a constructive relationship with them, but this included being firm and fair in what I expected them to do. Whenever I had any planned meetings with them I would prepare in advance and write down any issues I wanted to discuss, because I found it was easy to forget any issues I wanted to cover.
Hope this helps.
hi i have only recently had a stroke its left me feeling a bit scared at first my left leg and arm had pins and needles and feel like their full of fluid except there is no swelling, last week it started in my left hand face neck and head today its affecting my shoulder and chest im worried it might soon start affecting my heart, or can someone inform me that it happens like this? any one else had this or is it common ? im only 46
My partner Trevor gets pins and needles in both his legs and down his arm .The GP has said this is all expected after a stroke as the nerve endings have been damaged . He wears a light weight glove as he also has a horrible feeling in his hands this helps as does the E45 barrier cream ..
Trevor is 64 and just last night had to get up as his legs were so bad and kept him a wake ... If you are really worried just discuss with GP to put your mind at rest ..
Hi, I still get the occasional odd tingle in my fingers and face two years after the stroke. However, I think you should first go to your GP with your concerns and have it checked out. Ask questions and don't give up till you have an answer you are happy with. It is very scary, and it will likely take a little time for you to stop thinking you are about to have another stroke when minor symptoms recur. It will almost certainly get better with time.
LISA PLEASE CONTACT (CLOT BUSTER)
My dad suffered a stroke in May, he went straight to hospital whilst still having the stroke and he actually walked in...it was just his left arm that was affected - the consultant gave him the clot busting drug - which sadly created a bleed on the opposite side to the stroke and put him in a coma for 4 weeks.. today he is bed bound and has chronic confusion and cognitive impairment (serious brain damage) and will never be able to return home. I just wanted to find out if this has happened to anyone else as even after 6 months, I am so angry at what has happened.
Hi i would love to get in contact with you about this subject.
I just lost my wonderful mum to this dangerous drug on 18th December (drug given 9th December. Same as your dad she had no problems moving limbs the only problem was the speech was coming and going.
I told them I did not want them to give it to her because of a previous stroke she had her voice came back.
I asked them before they gave it to her could the haemorrhage be dangerous? No she said we would just send her to addenbrokes and they would sort it.
They did a CT scan and the haemorrhage was too big and yes happened on THE OPPOSITE SIDE OF THE BRAIN
My mum came back from coma, but was still not very good and very confused She died 9 days later, which cuts me up when writing this.
I am so angry about this as well and I am just trying to think of ways I can make people hear about this.
Your story is like a mirror image of mine
my email address firstname.lastname@example.org
ALTEPLASE DRUG NAME
did he get a CT scan first?
My husband had his stroke in May during an operation to remove a cyst on the brain. He is making progress but has recently been complaining of strange pains or feelings but he can be precise as to where they are. He does have problems with speech and although you can understand the words, they don't always make sense so its difficult to quite understand his meaning. Has anyone else come across something like this please.
Sorry to read about your husband's situation. I have no experience of this but encourage you to raise this with your husband's consultant/GP.
Hope this helps
I'm also new to all this so I'm still learning.
I was diagnosed with Hemiplegic Migraines in September this year, no auras or headaches, just Stroke symptoms. I'm experiencing these symptoms everyday. This afternoon as I'm typing this I've got weakness in my left arm and leg, really uncomfortable. I had two left sided facial droops last night. Docs have told me when I get these symptoms I'm just to lie down and sleep. I'm also deemed too young. I'm 38.
Go staightr back and insist that you have a scan or second opinion my son was discharged from hospital as being drunk or drugged and told not a strroke when he could not move on the left side because he was 20 it took 6 months to get a scan by which he had recovered but it showed signs he had had a STROKE 8 month later he had 4 more at 21 so get back to them
Hope all is okay but please go back and check
Show your doctor(s) who think you're "too young" for stroke this website. This charity caters for -I believe - tens of thousands of stroke survivors who are below retirement age, some as young as from birth.
Think many doctors are painfully limited in their supposed knowledge. To all intents and purposes, you may still be having hemiplegic migraines (I am no medical authority), but insist on a second opinion or ring Different Strokes for advice on how to proceed.
My mother, who is now 84, suffered a severe stroke on March 1 2010, having had about 5 or 6 mini strokes in the half year preceeding that. After some delay, she was admitted to Worthing hospital, & a few days later placed on the Liverpool Care Pathway (LCP).
This LCP has been in the news lately. I have just found out that typically patients die within 30 hours once on LCP, but some people are taken off it & lived for weeks or months. Unfortunately, my mum has lived so far for over 2 & a half years.
This must be extremely rare, as even the consultant at the hospital did not think she would live beyond Christmas 2010. My question to you is how rare is this? She has been in a nursing home since March 29 2010, & suffered a mini stroke last Thurs - the first since her severe stroke.
As it has been very distressing, I feel my life is in limbo, I have not asked about this before.
I did email the organisation on this also, but thought other people might have their thoughts.
I received a severe concussion on 04/03/2010 whilst surfing in India. I took a 10+ ft., heavy, long board kicked straight out and very hard into to the left temple (in front of my ear) which left me with injuries that went undiagnosed for a couple of days, until I was completely overwhelmed with mental confusion, nausea, insomnia, dizziness and olfactory hallucinations (I could smell my father everywhere as I did when a boy). Pondicherry Hospital made the diagnoses after a CT scan but I received no treatment other than to stay with friends and sleep solidly for two weeks. The whole event was hellish stressful.
On 05/11/2012 I suffered a TIA left temporal lobe infarction, exactly in the place I sustained this earlier injury. I was discharged from hospital after 28 hours, for I have no major speech or movement issues, but I feel completely exhausted, shaken, v emotional, vulnerable and uncertain. The pain has not reduced in a week and, experientially, it reminds me exactly of the earlier event.
Prior to the first injury I had never suffered from hypertension. I was shocked to be diagnosed with it in Pondicherry after the accident, but that, perhaps, should be no surprise. However, it has never really left me since. I was very fit until then, surfing and high board diving, though over 50 but became a lot less active.
Has anyone else come across something like this or experienced something like this? I'm going to see my GP on Thursday (Stroke Association rep on Tuesday) but presently feel very alone and afraid.
I cannot find any definitive links between sporting head injuries and subsequent stroke / TIA, although I read that the risk is increased by x 10 within the first three months, that decreasing over time to x 2.5 after 5 years. I'd wondered about boxers and there seems to be some awareness of a link amongst ex-American football players.
I'd just like to know of any others who might have some similar experience or know of anything like it. It would be kind or reassuring.
Thanks for your help. I'm very, very, grateful.
Hi All,Please I need urgent help for a family friend who have had 2 strokes previously at the age of 26 years.He is now 33 years.He was discharged from Royal Free Hospital without no further schedules for rehabilitation process. He was happily married with a daughter now 9 Years of age and before the stroke ,he was fully fit and with full time employment.With the Stroke incidents his wife divorced him on the ground that she could note cope with him any further due to the fact that he had memory loss,slur speech, weakness in right hand and leg.The wife also would not allow him to see the daughter and now she had remarried.With the memory loss he forget to even renew his spouse Visa,no job,no support worker and no benefit of any kind . He had been sleeping rough till myself ,wife and our church members decided to help him with accommodation and day to day living expenses. It has been 3 years now since we put the onus on ourselves to help as a family friend and brother keeper but personally now it is affecting my own marriage.I do not know what to do again?,Please,please, please how do we get help.
Community Stroke Team asap!! Social workers also asap as previously suggested. Does he have a GP? It sounds as if he may have other health issues that have not been assessed - but only he can instigate and request this. My best wishes to you all.
hiya my veiw would be see if he has a social worker to try help u with him r evern get the community stroke team involved with him for at least advise to point u in right direction . good luck ;)
Hi i do hope someone out there could help me. something happened back in october last year while driving my car my face dropped and my mind stopped working i had to stop the car and pull over and rang my husband after a couple of minuters. my husband picked me up and we went to the hospital after tests all there ok but i still have this very bad mind that i not what it was and i am having a very bad time with this the moods go up and down husband is very unsupported thinks its woman hormoods again?
i really need some help please a person to talk to or visit that can understand that i need help i am really worried that i am going bonkers or something is this normal after a stoke or tis or whatever i had
please anyone help
Ask the Community Stroke Team or your GP for either counselling or psychotherapeutic support.
From personal experience I assure you moods do go up and down post stroke / TIA, but also when either intra-personal or inter-personal relationships are incongruous.
You write, "after tests all there ok but i still have this very bad mind that i not what it was... moods go up and down... husband is very unsupported thinks its woman hormoods again"?
I suggest you may both need external psychological support, stress can cause some dramatic physiological, as well as mental, reactions.
I wish you both the very best.