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What is a stroke, who is at risk and recognising symptoms
Hi, I keep googling for info and figured it might be easier to ask. My mother, an alcoholic in denial and heavy smoker is 69. She had a suspected stroke about 5 months ago and is in hospital now with a mild stroke she suffered on Monday. She's apparently recovered well and will be discharged Friday. Doesn't seem to be any lasting damage. She was in Inensive care 2 years ago with pneumonia and recovered from that but kept on the drink and cigarettes and is a shadow of her former self from that.
I'm not sure what info I'm looking for. I read that mild strokes can happen with out being diagnosed and if she's a heavy drinker, I suspect this may not be the first or 2nd one, could this have happened before and been out down to the drink?
She's 69, looks much frailer and I don't think she will change now, I think she's given up on life and did so years ago and finds solace in the drink.
I feel slightly helpless and think this is her future. I guess I'm thinking the prognosis isn't good is it? My family is their usual 'it's all okay', unemotional self - years of denial about her drinking has effected the family and my dad.
I guess I just need people to talk to :(
I am looking for help new too this not sure where to post.
I was wondering if anyone can help me. My mother- inlaw had a stroke nearlly two years ago.
She is paralysed down her right hand side. She was in hospital for about 8 months.
While she was in hospital her speech was effected too it was hard to understand her but we used to keep getting her to repeat what she was trying to say then we would get it then her speech got a little better.
Also she was having physio but as she has a low pain barrier she was saying stop after a while in to the session, then she started refusing the physio. The hospital said if she said no to the physio then they would not make her do it.
Also when in hospital she was made to use her left hand to use to feed herself and pick the cup up to have a drink, sometime the nurses would do it when she was not able to do it. Also father- inlaw would always feed her a drink and not let her do it as he said it takes too long her doing it.
She was sleeping alot all the time at the beginning and we was told that is normal. Then she was being awake alot more.
Then she was sent home she is bed bound. Her speech still you could understand her by making her re say the words. Again sleeping alot off and on. when we would go over we would wake her up and she would be awake while you was visiting and trying to talk to you.
Now she is sleeping all the time and is not talking to you.
When we go over and try wake her to say hello she opens her eyes and looks at you and closes her eyes again.
I was wondering if their is anything we can do to help or get to try stimulate her like a bubble lamp etc.
Many thanks for reading
my mum had a stroke two months ago today. she is 70 and had a very severe haemorragic stroke. she has lost the use of her left side, is incontinent, her vision is very affected, depressed, gets bit confused and is extremely tired. She is not the same mum and seems to be detached from things. I am very worried as my sister visited her today in hospital and she said that she was extremelly confused and sleepy today, much more than usual. i would expect my mum to gradually improve not go down! can you reassure me that it is normal
Sorry to hear about your mom. My father also at age 70 suffered a stroke June 2013. Like yourself I was concerned about the amount of aleeping he was doing. Neurology Dr assurred me this is normal as the brain needs time to heal. Basically, they said the brain has taken a big hit and needs time to recover. If your mom was active prior to all this, get her started on an antidepressant (low dose) we did that for my dad.
It is very hard to watch them go through this. I truly understand. BOTH of my parents have had strokes.
Some additional advice - place her in a neuro rehab as soon as you can. Not a generalized rehab but specifically neuro as they are trained to handle brain injury patients.
My siblings live out of state so my dad gets on skype (it's free) and that way he can see all the grandkids. Puts a great big smile on his face. He was very outdoors so we have become creative with chores for him to do. We were told to get him back to his normal routine as soon as possible. He has difficulty talking and does not like to be around people. We play games board games constantly and he helped me make a photo book of the family and we go through it daily that way he can say the names and help build his memory back up. We joined a support group as it's important for him to be around other people who are similar to him now.
Stay strong. Stroke recovery is a very long process
I was hoping that someone with something more relevant would reply to you, but they haven't and so I will try!
My hubby still gets very tired, 2+ years after his stroke and he definitely has good days/hours and bad ones. Sometimes we can identify why he suddenly can't find any words - like we've overdone things - but sometimes there seems to be no reason.
After reading posts on here for over a year I think this is definitely normal. Even people who seem to have made a complete physical recovery can still have extreme tiredness.
I also think that hospitals don't help with confusion and enthusiasm, although there is no other option so perhaps this can't be changed but remember that your Mum's days will follow the same pattern day in and day out, there's nothing to put down as a marker to help remember what day of the week it is (like if Bingo is Tuesday today must be Thursday) or even what time of day as the meals must all roll into one. She's probably not doing much so there's probably little to tell you or enthuse about.
I think it's nicer for everyone if visiting times can be pressure free, there's such a lot of pressure on both patient and visitor to sit there for two hours and make conversation, we used to encourage my husbands kids to bring photos or games (connect 4 or snap worked) when they visited so there was a focus other than conversation. Maybe your Mum would be interested in some old photos - it's worth a try.
Hopefully last night or this afternoons visiting will have gone much better, fingers crossed for you and your Mum.
dear paula. thank you so much for your response. it really helped me and put my worries in perspective. i am so scared for my mum. what a good idea about bringing games. it is true that it is very hard to chat for hours and sometimes i don't know what more to talk about. my mum would often say that we have said everything there is to say... will tell my sister to do so as well as she can visit more than me. yesterday not only was she confused but she was also tearful. she said taht some nurses talk to her as if she was crazy and it is true i have seen it, they talk to her not very respectfully. my mum was a highly intelligent and educated person and she is spoken to as if she was a child. oh it is so awful to be living so far away from her and i have a 3 year old to look after. thank you so much paula for your good advice
Oh bless you, I'm sending a hug.
Everything you're feeling is so normal, but being far away must be so hard as you can't see for yourself what's going on.
Tearful, while upsetting for you and your sister is fine, if your Mum wasn't upset and scared then that would be wrong - this is a sign that she's understanding what it means. Having a stroke is really scary, there's no knowing what the future will hold, we grieve for our old lives and everything we've lost - it's all so normal.
I can't imagine being a nurse, I am completely the wrong temperament so it's hard to judge, but I know that sometimes I've heard them with a strange tone of voice, even if the words are ok. My hubby couldn't say much in hospital but he did make it perfectly clear that he didn't like some of the nurses. We didn't mention it while he was in hospital as I didn't want to make anything worse, then we came home and it wasn't fresh in our minds anymore. We should really have said something but it's really hard without specifics and my hubby still can't really tell us those.
As you are far away from Mum and your sister, does that mean you moved away? Are you close to anyone there who you can offload to? Just to get it all off your chest, I found talking about it really helped. Actually, I talked to my husbands colleagues a lot, just talking about how wonderful he is, how strong and determined. That really helped keep my focus on him as the man I fell in love with instead of the one I was spoon feeding slop to. Maybe you could have some support from your Mum's friends - it's ok to cry on people and tell them you're sad/scared/angry.
I also think my stroke association lady is worth her weight in gold and if you were here in Lincoln, she would help you even if Mum's not in her area. So, you could try your local one, for advice, support and tissues.
I'm also wondering if your Mum could manage a mobile? So you could talk to her everyday? The man next door to my hubby in his first ward had one, just a cheap pay as you go in case it got lost but he chatted quite a bit to his relatives.
I'm waffling again - I'm trying to get a whole mornings tea and cake conversation into one message and it doesn't work!
I think your three year old will be a real help when Mum comes home from hospital, play is a brilliant way of relaxing and trying to do things in a pressure free way and grandkids are great at getting their Granny to play - we have teenage kids so it's not quite the same but some of them are quite creative!
Keep your chin up and let us know how you're doing
what can i say!!! you are so kind and supportive and i can say you are a lifeline to many people on these boards. thank you so much. i haven't been on these boards for a good few days as i was in bed with the flu and here is your lovely message,that is just so right and supportive. in the meantime the situation with my mum has gone from bad to worst and i am feeling totally at a loss. i have left my job as well as i didn't think i could manage it with my mind being so preoccupied. it is really really tough but hearing your words of wisdom is really helpful. My problem with talking to other people is taht they all have positive stories of other people who have gone on to make so much progress and have improved a lot. It is not my mum's case at all so i find myself even more lonely in my despair. My mum has now being diagnosed as having epilespy. Indeed, since i visited a couple of weeks ago, she started being extremely confused,agitated and paranoid. we didn't know what caused all this and after an ECG, they said it was epilepsy. My mum now say that they (nurses) are against her, they don't like her and they want to attack her! until now it was a saving grace that she was not unhappy there as she recognized how well they were looking after her. She is now convinced that they are all against her. I know what you say about the phone, but all my conversations with her are extremely frustrating as she forgets what she needs to do over the phone and half of the time, doesn't want to speak to me. To be fair I get also very nervous as i don't know what to say to her. We used to speak every day on the phone and speak for England but now it is just so stressful. I wish i could access the support that you mention in Lincoln. I am in London and i don't think they could give me support my mum being in France. thank you again. i like your "waffling" (quote from you) a lot, it does help to feel less lonely in that terrible journey! kind regards pc
You say some very kind things, I just hear so many sad stories and want to help, although there is frustratingly little that I can do. But if I have something relevant to say and it may help someone then it costs me nothing to say it - I have lots of spare time nowadays - the joys of retirement??!
Obviously, I can just give ideas based on what I saw and felt but if enough ideas are thrown into the pot then surely one would work!
I'm sorry you've been poorly too - that's all you need. You were perhaps wise to stop working so you might avoid becoming run down. I think something like stroke can put things into perspective and make you realise that things that were previously important are no longer. My mortgage will no longer be paid by the time I am sixty (or perhaps ever!) but I am spending all my time with my husband making sure we are living a life after stroke. I didn't have these things in the right order before his stroke.
Now, your Mum. If the epilepsy is causing confusion, agitation and paranoia, perhaps treating the epilepsy will ease these feelings. That is a very definite question for a doctor. If these feelings are removed she may go back to enjoying being cared for.
This is all very stressful for you, I can't imagine how all consuming it must be.
It sounds very much like speaking on the phone is not enjoyable for either of you, so it completely defeats the object. I wonder if your Mum would enjoy it if you made video clips of you and your little one playing or just living life, you could perhaps send them to your sister to show her. You could send her messages and she wouldn't need to respond or have to concentrate for long.
I don't know what the Stroke Association's policies are for who they support, but it would perhaps be worth asking. Or even finding a local stroke group as there would be many people there who know what you're going through. Or, there is the Samaritans, I know it sounds drastic, but they support people with all kinds of problems, I spoke to them once years ago, before I even met my hubby and was at the end of my tether with one thing and another and I found them very calming, supportive and empowering - is that the right word? They made me feel more able, more capable. Sometimes just getting it all off your chest and hearing someone else say, poor you, that's crap can make you feel better, justified, reasonable.
I completely agree with you about the stories of recovery that seem to be all we hear about. It's lovely that these people have made these miraculous recoveries but the truth is that many, many people don't make as much/any recovery and have to live with terrible disabilities and hidden difficulties. I would like to hear as often about people who haven't recovered but are actually living some kind of fulfilling life.
I'm glad you don't find my lengthy posts off putting or too waffly (what a team, pancakes and waffles!), I am not a concise person really, I'm not into using one huge word when I can use fifteen little ones and I do have a habit of writing exactly as I talk. Teachers hated me! But these 'journeys' we go on are so intense that we learn bucketfuls in such a short time, you're experiencing decades of changes and emotions in a few weeks, and so, there is a lot to be said.
I do log on most days, have had a couple of days off as yesterday we were down your neck of the woods doing research at City University London and then out to dinner for my birthday, then today's my hubby's birthday so we've had a lovely round of visiting, skype and facetime calls. Tomorrow I think we need a rest! But you keep posting and I'll keep suggesting and maybe one day, someone else will join us too - there are hundreds of us out there!
Hi just joined as I had a stroke in my cerebellum . I had a visit from stroke association lady today(very nice) She gave me lots of leaflets and I thought I would join the forum. Hope to talk to other people who have been in same position as me (WALKING ROUND LIKE A DRUNK-PEOPLE STARING ALL THE TIME).
I had a cerebellum stroke last June too and initially couldn't walk but then did like a drunk person!!!! I now walk normally and you would never know I had been ill, it just took a lot of physio and time. I still stagger a bit when I'm tired but nothing which affects me getting on with day to day life.
All I can is don't loose hope and I know I got a lot better!!!
I had a Brain Stem mini stroke 10yrs ago at 46 and it was basically misdiagnosed by hospital and i was told to go home as just a migraine!
Long long story,..... but i saw a Neuro privately 3wks after the event (could barely walk as dreadful balance probs)...he told me verbally that i had had a mini stroke in the brain stem after i have him a history of symptoms. He did an MRI which was 4 wks after the event now and it came back clear? He told me this happens but i prevented as a stroke patient so had lots of other tests. I told him I was going down the road of negligence by the hospital and not long afterwards he wrote to my GP but told him my MRI was clear so I therefore hadnt had a stroke? (you couldnt make it up eh!)
I was sent to Stroke Rehab interestingly and the Physiotherapist wrote a report to my GP stating i definitely presented as having a stroke and she treated me as such. I showed the Neuro this report and he just laughed and poo-pooed it.
A couple of years after this event, my palpitations i had been having for years, were confirmed and I was diagnosed with Atrial Fibrillation, a major cause of stroke!!!
I have never been able to work since as i never recovered from this due to lack of acknowledgement from health professionals.
I have had three further episodes in the last few years, of sudden onset of severe vertigo with right sided weakness... very similar to original symptoms but not quite as severe...both times i have been to the hospital A&E who have just said they weren't sure but gave me stemetil to stop the vertigo/nausea. No MRI or CT carried out?
5 months ago, i had a further scare and was sent to a different Neuro who was quite frankly, the rudest consultant i have ever met! He went through my 10yr history and said, 'there is no medical reason to suggest you ever had a stroke'??? Your MRI was clear so you couldnt have had one?.....I was too gobsmacked to reply and when i get upset or stressed, i lose the ability to speak and am unable to express my thoughts (since 1st stroke). He labelled me as having a neurological condition and just wrote down the details of a website he wanted me to visit and dismissed me! This website horrified me when i read it and it was for people who have had a psychological trauma sometime in their life??? That causes the brain to malfunction?
What i would like to know is (before i file a complaint ) has anyone else had a clear MRI and/or just been diagnosed with stroke on symptoms alone?
Sorry about this being long.
My case is the same. I lost my hearing, I have everyday pain. I can't even in a place where there is mush noise. It will be good to get answers.
Is there anyone who can help us.
I hope you get help....
Hi I am 52 I had a stroke 7 years ago I was left with a weak left side 'drag leg' but not all the time I assume it comes back when I get tired does anyone else have that problem ? Four months ago I had another episode they think its another stroke waiting for MRI results again drag leg but worse but some days not doesn't notice as much as others , also fatigue is much worse :( does everyone have symptoms that are worse one day and better the next ???
Hi Boo, I am 61 and I had a major stroke nearly 10 months ago. Although I have recovered well from the initial total paralysis of my right arm and leg, fatigue is now the main remaining issue for me. Some days are fine, others I just have to go to bed and sleep.
From comments by the medics treating me (and browsing this site and others), it seems this is not unusual. So yes, for me, symptoms can be worse one day and better the next. I call them good and bad days. I think my family and friends are getting used to the idea!
In September I had a PE, treatment with Warfarin and Heparin resulted in a stroke. I am now on Warfarin for life. In December I felt light headed, went to A & E and my INR had dropped to 1.8. I was given an injection and my warfarin dose was updated for a couple of days. I felt better. A couple of weeks ago I had the same feelings, went to hospital and although warfarin level had dropped a little no real change was made to dose. I was admitted and had a range of tests done with no problems identified. I have been discharged without any real answers. Do other stroke sufferers have these feelings of ligh headedness when INR levels drop?
Hello, i have been researching about stroke but i am still trying to find out why my uncle that had a stroke last for months does not want to sit on the chair that long. His therapist wanted him to sit at least 3hrs in the morning and 3in the evening. I put him on the wheelchair not even 30mins he starts crying. He tried all different type of excuses to make me put him on the bed. He wants to be in bed 24/7 but i don't accept that. If i try to do some exercise on his right side he starts screaming. I don't know what to do i am about to give up and take him to a nursing home. Please help...Oh he has aphasia and right side paralyse.
Could it be that his wheelchair is uncomfortable? We had to get my Dad a good one as the rental from the hospital was falling apart.
My dad has similar effects - right hand side and aphasia (severe)
What we found was my dad was so tired for the first few months and would want to spend lot of time in bed asleep, this is not uncommon
Gradually he spent more time out of bed and he moved to a nursing home from hospital and to be honest from day 1 (4 months after his stroke) they kept him out of bed all day (one reason being when they allowed him to go to bed one afternoon he refused to get up later!) He often nods off in his chair but he is happy to be seated
Your uncle seems to be suffering discomfort if he is crying - maybe the therapist needs to assess him again, may be a chair (recliner) and not a wheelchair may be more comfortable
From day one dad did not respond to physio, he indicated that he was in so much pain his right side has sensitivity, this is compounded now his the muscles have tightened due to not being used so every time his right hand side is moved he winches with pain, so if your uncle is screaming this maybe why
Every situation is different - some times a nursing home is the best place, for my dad it is (the experience of the carers he has is makes him more comfortable than we ever could) for others it won't be and with time he may be able to be comfortable at home
I had a stroke in October whilst in hospital for a heart attack. My right side was not working. Everything returned very quickly - within a day. A few days later the consultant identified signs of Quadrenopia - not being able to see through on of the upper segments in each eye.
I believe this may prevent me getting my driving licence back in April (six months after my ICD was fitted). The DVLC are not particularly helpful.
I would like to hear from anyone who can help me with their experience.
where can I get some help from to improve my sight
what can I do to ensure I don't loose my driving license.
My partner Jill has had a stroke which has affected her visual cortex, meaning she is virtually blind, cannot read or write, is prone to some horrific hallucinations, and has coordination problems..
She left hospital directly from a high dependency ward because she developed a cough, the consultant (not hers) decided that she would be better off at home, the result she was packed off home with not one single back up in place, just an appointment to see her own consultant in a months time.
We had just moved home, and Jill was my carer as I am disabled, we didn't even have a doctor, the whole business has been a nightmare, nobody seemed interested, social services were not interested as too was the hospital itself, if it was not for the people from the Stroke Association I don't know what I would have done.
Paula, thank you for your comments I really appreciated it he is a lucky man I realise that now it could have been a lot worse especially after reading your comments.
The stroke has only affected his arm and his speech, he has always been a very independent person so for him to ask for help is very difficult for him also his medication is having side affects such as insomnia etc but be has a follow up appt next week.
We are visiting family tomorrow which I am hoping will help as they are always good for a laugh which he needs.
Hi , i am seeking as much help and advice for an elderly friend who is finding it difficult coping with after-effects of his stroke.
He suffered a stroke on left side of body and has made good recovery but has difficulty walking and using left hand. He is an alcoholic, diabetic and partially sighted. His wife is also an alcoholic with ill health.
He has no family and i am his loyal friend. He has been placed in a care home but is so lonely and distressed there as most residents are unable to have daily conversation. This puts a lot of pressure on me as most of his friends were alcoholics or drug users so i am his main visitor. Other friends visit once a fortnight if he is lucky.
I would like to find social clubs where he could meet make new friends if possible. Though he is 80, i would be hoping for anyone over the age of 50 or a stroke victim. He is currently based in catford
This is the first time I have used this site and have read quite a few comments that give me hope for the future.
My husband had a stroke just before Christmas and I was wondering if people could give me some advice on how to support him during this difficult time he is only 41 and 4 weeks before it happened he was made redundant so he is out of work we are very lucky and have family members supporting us financially which is making him feel like a sponger his words not mine.
I can not believe it has happened to us before it happened we were trying for a baby as we have only been married for 6 months I love my husband and want support him any way I can so any advice would be great thank you
Hi I have only just joined this site after reading through comments for over a week now and feel as if I have been coping and staying strong for long... in fact my boyfriend ha a stroke on the 2nd jan (2014) so it hasn't been that long but definitely feels it. I feel what you are going through as my bf is only young (39) and at the moment I feel so angry that this has happened to him as he was very healthy, didn't smoke etc and our lives together had only just begun and we were talking about having a baby. not sure if my advice will help but all I can advise is to stay strong as recovery takes time... take every day as it comes as I have been doing. My partner is still in hospital and I miss him so much but the rehab process is so important so whatever you can do to help that is going to be very beneficial. I am a student physio and have a year left to in uni before I graduate so I have learnt a considerable amount re stroke rehab and how important it is to support and encourage stroke survivors to never give up hope... Also speaking with your husbands physio re what you can do at home with him will help. Is he still in hospital? my bf had a bleed type stroke and has right sided hemiplegia although his right leg has improved substantially he still has sensory loss and his arm hasn't improved as much as his leg but every day I am seeing an improvement and his speech is improving also. this is the hardest thing I've ever had to do especially as I have been having exams throughout and still awaiting results ( not positive about those) but stay strong and as we see improvements, this will make them even more determined.
I thought i was reading something the girlfriend wrote then, i cant believe how similar our lives have been. i had a massive stroke just over a year ago i couldnt walk talk i even lost my sight, I worked at Tesco at the time they were ok but only kept my job a while before terminating my contract luckily i had some redundancy left to live on plus help from my family, the state well they didnt really want to know what you have to do is claim for what you are entitled to you probably will be refused but complete the forms and send them in again and again over and over again eventualy you will get what you want DONT give up you are entitled to as much help as you need. please please dont give up on him he needs you more than you think even now after over a year i find it hard to talk to people about whats happened i start to break down and cry if it wasnt for my gilfriend i would be in a very dark place, please please just dont give up
It is shocking, I know. You should perhaps be prepared that it can be shocking for many months. But I think the fact that you're on this site looking for information shows that you're being realistic and not burying your head in the sand like some of us do!
How is your husband doing? The best way to support him really depends a bit on what kind of problems he's battling.
I think for a young man, who's used to providing for everyone, one difficult aspect is having people do everything. It's really important for me to remember to let my husband do any chores that he wants to try - just helping him with parts of the task he really can't do. This isn't actually as easy as it sounds, when I'm tired or we're short of time and I know that the job would get done so much quicker if I just did it myself. I just remember the first time I saw my husband cry post-stroke, I was battling with the lawn-mower and perhaps letting some of my own anger out on it and he was so upset that he couldn't help me. Now he's mastering walking around the house without his stick, a few days ago he asked in quite a coherent sentence did I want anything bringing from the kitchen - I was in such a panic, it's so long since I asked anyone for anything! I was racking my brains for something to ask for that a) I sort of wanted and b) I thought he could carry. Settled for after eights and really enjoyed them! I wonder if he'll progress to tea in bed!
I'm digressing, so - let him do his chores if he possibly can. My husband has felt unworthy of me since his stroke (we weren't actually married at the time) and has frequently told me I'd be better off without him. It's really important for him to feel loved and wanted and like half of a couple, even if it's a couple with different dynamics than we're used to. So, I always consult him about any decisions. If his kids ask me anything I suggest they/we ask their Dad - he's lost a lot of control so I try to give him as much control as possible. I also remind him why I love him - we all need that, even when healthy - if I'm honest, there have been times when it's been hard to tell him what I love about him post-stroke, for a while it was so hard to see his personality, he couldn't speak or care for me back and I was so tired and so very very low. Now he is talking a bit and laughing and it's very easy to see what I love - or maybe I'm just in a better frame of mind.
I think it's important to ask your husband what you can do, offer and tell him it's your job now to help him get as perfect as possible - purely selfish reasons of course! - So, the first time his best friend wants to take him to the pub your husband might want you to come, or just walk him in and come back for him, or just see him to the car - it will depend on your husband. My husband still doesn't understand that I ask for his opinion for a reason and he should tell me the truth - not just the answer that he thinks is easiest for me - drives me nuts!
I think things might pop in my head all day long - there's so many subtle ways to make a difference. I was really lucky and, by letting my house, could give up work when my hubby came out of hospital. But rewind to in hospital, for various reasons we arranged for, wherever possible, the physio's to treat my husband during visiting - then his parents and I could watch his progress, I also quizzed the speech therapists about what I could do at any opportunity. So, when he came home I was there to drive him to all his appointments, watch and listen and be able to replicate a lot of it at home. You learn so much just by watching! So, I have been able to help him with his exercises at all times - which I try to be enthusiastic about even when my eyelids are closing! It also helps that I can tell his friends and family what's going on with his therapies as it's really hard for him to make them understand.
If he feels like a 'sponger' we need to stop that! Maybe there's something he can do now to 'earn' some of that money. Researching your family's energy switch or car insurance, turning old Christmas cards onto gift tags for next year, dusting skirting boards - anything he might manage really. Doesn't need to be worth the money, just needs to be something that your family would love done that he can do. Visiting Granny maybe? Depends on the situation - I would love to have a cup of tea with you and bounce ideas!
I might stop now as I'm aware that I do information overload some days and sitting typing isn't getting my house clean before my parents come PANIC!
If you want to go into more detail, let me know what kind of difficulties your husband has and we'll devise a plan together!
Really enjoyed your letter, gives a lot of support,my husband had heart attack, stroke and has a lung condition, 19th December 2013, he is nearly 82, is home now slowly recovering, still very fatigued and breathless, we have come through a lot of different things, he drives normally, and keeps on about starting again short distances, I feel worried about that, but reading your letter, I wonder if he would be ok, hope your hubby is progressing Xxxxxx
I'm wondering if any experts out there have a view on the cause of my grandmother's stroke? She's in her nineties, in care and sat around doing very little, until she decided that she had to go to her friend's daughter's funeral. At some point during the day, she felt ill and slurred her words, a stroke as it turned out. She was in hospital within three or four hours. I think this was her first stroke.
Could the event itself or change of surroundings have triggered the stroke?
Hi my wife was sent to the hospital for a referal about 6 months ago, the consultant sent her for a brain scan, he put her on and stroke drug there and then and told her he would send her an appointment when the results were back, about 3 or 4 months later we got the appointment with the consultant again. The constultant told my wife she has had a small stroke and told her to carry one taking the medication and to see her gp about what other steps to take regarding this. in the time since the scan and upto the dignosis my wife seems to have gotten worse her neck has gone more and more over to one side to the point where she cant hold her head up straight anymore. i have booked her an appointment with the gp so we can sort someting out but i am sure the consultant should have set out a better plan or sent her for some sort of after stroke rehab or something.
I am looking for a little advice as to what should have happened and how best to next go with this. thanks for you time. simon
What we want is a GENERAL CHAT section PLEASE
I have been on other forums where there is a "General Chat" section that people can post about anything at all. Perhaps that is what HIGHTOWER meant by general Chat. Somewhere to post bits that do not slot into any of the headings already on here.
As for facebook, although I am on there and will check out the site mentioned here, there are many folk who don't use (or trust) facebook.
I also don't trust Facebook. I use a fake profile and dump it every so often to make a new one. I don't tell them anything that is true. And I join and leave groups and pages at random to keep them guessing....
Like others, I do not trust Facebook (or Linked In for that matter). I do understand that they must be run at a profit, but I draw the line at my name and details and all others, friends or otherwise, having their details sold on, without being given any real choice in the matter. Removing oneself from this site is almost impossible.
The problem is that some friends, and more particularly some businesses deal almost exclusively through Facebook leaving you with no choice if you need to contact them, and it seems antisocial to tell friends that you will not communicate with them in this way.
I agree with you the only reason I set the page up on Facebook was out of frustration that I wanted to be able to talk when I want I could not find any websites that had a chat facility I also have difficulties now steering my way around a website at least on Facebook the page is on my phone screen and I can go straight to it x but I also don't want to take anything away from this site as I think it is absolutely brilliant the way this charity looks after people x
Hi I fully understand where your coming from with chat sessions unfortunately I also looked on here for that facility so in the meantime I have set up Stroke Support Group Uk on Facebook it's a page where anyone and everyone can chat and post comments it's new only been going for less than a week but growing everyday. After having a Stroke myself I know first hand how important it is to talk.
Hello High Tower - thanks for the feedback.
Can you supply me with any more detail regarding this suggestion of yours? Are there any other thread topics you would like to see?
Well were do i start , you dont have pictures folk need a place to have a talk a bout X factor that sort of thing . its great to talk about stroke but we dont want to talk about it all the time . we are stroke survivers but we fpolk NEED to have a life . I had my stroke april 16 last year so as you can see my spelling aint that good . But i am VERY lucky I have "Boracas Asphasia I could not talk when i left the hospital but with help the nurses have down a fantastic job . I still get short term meory and i need help to spell thoings and off couse i have Convolsions about 5 weeks between boughts . But I am VERY LUCKY could have died.
We need to be upbeat and have a chance to talk about anthing other than STROKE .
then folk will come back
all the best
Shaun (High Tower)
I too wanted to find somewhere to chat to others and although you can to a certain extent on here it's segregated into topics which for someone recovering from a Stroke like myself find it difficult to manoeuvre around. I have set up a page on Facebook called Stroke Support Group Uk and although its new it is growing everyday. I know how important and life changing it is to be able to talk to others it helps so much. I don't know whether in the meantime you want to add the link to your website.
hi, my mum had a stroke on Monday, the whole family is so shocked, she is the fittest person I know, she never drinks,smokes,always ate healty food and took a walk every single day.She always helped others, it was like she had a Duracell battery inside her, now she cant even swallow,will she make progress, we are all confused, what do we do about her bills, her bank, her cats.I wonder around her 'ever so tidy' house and I tell myself to put things away or she will be cross if things are out of place, then I go up the hospital and see her in her bed, lying there asleep with her mouth open and no make-up on.she can open her eyes sometimes and today she lifted up her arm, I sit and talk, yesterday I just cried all day.What is going to happen?
i am so sorry to read your post, i was 23 when i had a rare form of stroke caused by a blood clot on my brain, i am now three years down the line and can only offer you the below advice and support
fisrtly, a stroke is one of the most life changing events to ever hit a family, there will be good times and bad, and probably the hardest thing your mum and family will ever have to deal with in their life times
but in saying this, i now appreciate life, my friends and my family more than i ever have before,
everyone recovers differently some better then others, all you can do is take one day at a time, its not only the physical side of the stroke your mum has to recover from but also the mental side of things, she may get sad, frustrated, angry during her recovery but this is all to be expected, you have to remain positive no matter how hard times get,
just remeber there are good people on this site and people who have been exactly where you are now, stroke doesnt have to be a lovely place
I will keep your mum in my thoughts x
Your poor Mum, and poor you. When my husband had his stroke we weren't yet married, we'd been engaged less than three months and still lived in separate houses. I remember the first time I went into his house without him. I sat in the car on the drive beforehand and sobbed. I can't remember reasoning things out I was just a bit on autopilot I think and relied on my inner common sense to make sure I did what was needed.
From memory, I did a lot of washing and cleaning, so that the house wasn't going to rot during his absence. I also rummaged until I found the paperwork for his bills, I found out that I needed to advise his house insurance company if the house would be empty for more than three months - you should check that out to be sure your Mum is covered, if you can't find the paperwork just take out a second policy - if there are two you can get a refund on one when things are settled down.
I certainly opened the post to check if any bills needed paying, luckily I had some savings so didn't have to contact his bank to arrange payment. If your Mum's not on Direct Debit for her bills and you can't pay them I'm sure her bank can help - they must come across this all the time.
Try the stroke association helpline for more advice - they might even have a guide with a ticklist, that would be helpful!
I think the best thing you can do is reassure your Mum and yourself that her house is clean and tidy and you're taking care of everything so she doesn't need to worry. Then concentrate on looking after yourself as she won't want to see you looking a state and try looking after her a bit. If she used to enjoy wearing makeup maybe she'd appreciate a mini facial or manicure while she's in bed, we girls love being pampered! It would also give you something to talk to her about and something to do with your hands. Crying is ok and Mum needs to know you care but you can't just cry all the time, it's not good for either of you.
At the start of our journeys for life after stroke none of us know what we're going to get at the end - I couldn't have coped if I'd have known - we just take a day at a time and do what we think is right at the time. It's really early days for your Mum and hopefully she'll make good progress but this journey has the potential to be a long one, you must look after yourself, take your Mum's lead and don't turn to drink or cigs, eat properly and take a walk. When your Mum can sit in a wheelchair the hospital may even let you take her for a walk - you'd both enjoy that.
In April 2013, I had a stroke. I had wake up early in the morning and I was prepared to go to work that morning.
I was fine that morning without pain or aches on any part of my body. My doctor had told me once that I have high cholesterol and since then I had been mindful of what I eat. I also had a blood test every 3 months during which time the doctor sat down with me and explained everything to me. Never did he say that my cholesterol level was high.
I boarded a bus from Northumberland Park to Seven Sisters and on the way I began to feel unwell, feeling hot, though it was winter. After a while, I couldn’t move my legs and hands. When I got to my destination where I was to come off, I couldn’t get off from my seat. I could feel my face was twisted to the left side and my speech was slurred. I told a woman in the seat in front of me to tell the driver that someone was ill on the bus and that I needed assistance.
The driver came to the upper deck where I was sitting and then ordered everyone out of the bus. He immediately called an ambulance. I was taken to UCH where I spent two and half weeks. I was transferred to North Middlesex Hospital and spent two and half weeks. I was told that what was left for me was to come to Homerton University Hospital NHS Foundation Trust for rehabilitation.
At the hospital, I went to physiotherapy which was fruitful because initially I couldn’t walk, now I am able to. My speech was slurred, now I can speak clearly. The rehabilitation has been of immense help to me.
I have been at the hospital for three and half months and I am to be discharged on Friday 16th August.
Hi to All !
Please be aware that not all strokes are preceded by symptoms.
My mini-stroke came two days before a Bank Holiday weekend and was thought to be an 'inner ear' problem. The offered symptoms, F A S T, did not appear at all and is was not until the following Tuesday when I still could not balance upright that an ambulance was urgently requested.
Happily I have only double vision which is corrected by a prism, although at 67 any loss of marbles or concentration are probably hard to distinguish from the ageing process !!
My mom had no signs at all when she started to get ill, then 3 weeks later she died. Still numb from the shock and speed of it all
9 weeks ago i was with my partner looking at a appartment to fix and see wat had to be done we live on cyprus and were looking for a way to make some fonds after a walk to the appartment we went down to look at the bike room outsite whilee i try the lock and try to close the door i was missing my left arm it didnt show up whyle my partner was asking if everything was ok i didnt respond i try to step away and a moment later i found my self with my nose on mother earth hearing shouts from persons call a ambulance he has a stroke my partner was ligh on my back to prevent me from getting up like a enoying bug i didnt realise that time wat was going on and she were saving my livei went to hospital in 1 hour it takes the ambulance 45 min to find were the adres was were i was in the hospital i hear i had a major brain bleeding right site and total outfall left site of tthe body 2 weeks i was in there beeing homesick after 2 weeks my partner finnally gets me out of there now 9 weeks later i am almost back wat i was before the stroke 95% recoveryfeelings left all returned stil walk always with my girl on the left she gards me like a pitbull now today i still looking or awnsers i hear 2 weeks ago that i also have edema and haing medroll as med i mread a number of stroke story,s still i cant find no were info about edema after a stroke? i am 51still i dont have a clue wats going on there is nothing here to go to and no support my partne still wake up every night crying about wat happend 9 weeks ago trauma and i am always talking to her i try to calm her and even today like the last 51 yrs i wake up with a smile i always waking up in a good moodhow ever now i also got to deal with the edema i start to get depressed scared not for me but for her thnx to her i am awat i am today almost again the old self she was thaere for me 24/7 she makes me happy and give me streinght to go on every day now i try to find persons who also got edema after a stroke and how to deal with it