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What is a stroke, who is at risk and recognising symptoms
Hi my wife was sent to the hospital for a referal about 6 months ago, the consultant sent her for a brain scan, he put her on and stroke drug there and then and told her he would send her an appointment when the results were back, about 3 or 4 months later we got the appointment with the consultant again. The constultant told my wife she has had a small stroke and told her to carry one taking the medication and to see her gp about what other steps to take regarding this. in the time since the scan and upto the dignosis my wife seems to have gotten worse her neck has gone more and more over to one side to the point where she cant hold her head up straight anymore. i have booked her an appointment with the gp so we can sort someting out but i am sure the consultant should have set out a better plan or sent her for some sort of after stroke rehab or something.
I am looking for a little advice as to what should have happened and how best to next go with this. thanks for you time. simon
What we want is a GENERAL CHAT section PLEASE
I have been on other forums where there is a "General Chat" section that people can post about anything at all. Perhaps that is what HIGHTOWER meant by general Chat. Somewhere to post bits that do not slot into any of the headings already on here.
As for facebook, although I am on there and will check out the site mentioned here, there are many folk who don't use (or trust) facebook.
Like others, I do not trust Facebook (or Linked In for that matter). I do understand that they must be run at a profit, but I draw the line at my name and details and all others, friends or otherwise, having their details sold on, without being given any real choice in the matter. Removing oneself from this site is almost impossible.
The problem is that some friends, and more particularly some businesses deal almost exclusively through Facebook leaving you with no choice if you need to contact them, and it seems antisocial to tell friends that you will not communicate with them in this way.
I agree with you the only reason I set the page up on Facebook was out of frustration that I wanted to be able to talk when I want I could not find any websites that had a chat facility I also have difficulties now steering my way around a website at least on Facebook the page is on my phone screen and I can go straight to it x but I also don't want to take anything away from this site as I think it is absolutely brilliant the way this charity looks after people x
Hi I fully understand where your coming from with chat sessions unfortunately I also looked on here for that facility so in the meantime I have set up Stroke Support Group Uk on Facebook it's a page where anyone and everyone can chat and post comments it's new only been going for less than a week but growing everyday. After having a Stroke myself I know first hand how important it is to talk.
Hello High Tower - thanks for the feedback.
Can you supply me with any more detail regarding this suggestion of yours? Are there any other thread topics you would like to see?
Well were do i start , you dont have pictures folk need a place to have a talk a bout X factor that sort of thing . its great to talk about stroke but we dont want to talk about it all the time . we are stroke survivers but we fpolk NEED to have a life . I had my stroke april 16 last year so as you can see my spelling aint that good . But i am VERY lucky I have "Boracas Asphasia I could not talk when i left the hospital but with help the nurses have down a fantastic job . I still get short term meory and i need help to spell thoings and off couse i have Convolsions about 5 weeks between boughts . But I am VERY LUCKY could have died.
We need to be upbeat and have a chance to talk about anthing other than STROKE .
then folk will come back
all the best
Shaun (High Tower)
I too wanted to find somewhere to chat to others and although you can to a certain extent on here it's segregated into topics which for someone recovering from a Stroke like myself find it difficult to manoeuvre around. I have set up a page on Facebook called Stroke Support Group Uk and although its new it is growing everyday. I know how important and life changing it is to be able to talk to others it helps so much. I don't know whether in the meantime you want to add the link to your website.
hi, my mum had a stroke on Monday, the whole family is so shocked, she is the fittest person I know, she never drinks,smokes,always ate healty food and took a walk every single day.She always helped others, it was like she had a Duracell battery inside her, now she cant even swallow,will she make progress, we are all confused, what do we do about her bills, her bank, her cats.I wonder around her 'ever so tidy' house and I tell myself to put things away or she will be cross if things are out of place, then I go up the hospital and see her in her bed, lying there asleep with her mouth open and no make-up on.she can open her eyes sometimes and today she lifted up her arm, I sit and talk, yesterday I just cried all day.What is going to happen?
i am so sorry to read your post, i was 23 when i had a rare form of stroke caused by a blood clot on my brain, i am now three years down the line and can only offer you the below advice and support
fisrtly, a stroke is one of the most life changing events to ever hit a family, there will be good times and bad, and probably the hardest thing your mum and family will ever have to deal with in their life times
but in saying this, i now appreciate life, my friends and my family more than i ever have before,
everyone recovers differently some better then others, all you can do is take one day at a time, its not only the physical side of the stroke your mum has to recover from but also the mental side of things, she may get sad, frustrated, angry during her recovery but this is all to be expected, you have to remain positive no matter how hard times get,
just remeber there are good people on this site and people who have been exactly where you are now, stroke doesnt have to be a lovely place
I will keep your mum in my thoughts x
Your poor Mum, and poor you. When my husband had his stroke we weren't yet married, we'd been engaged less than three months and still lived in separate houses. I remember the first time I went into his house without him. I sat in the car on the drive beforehand and sobbed. I can't remember reasoning things out I was just a bit on autopilot I think and relied on my inner common sense to make sure I did what was needed.
From memory, I did a lot of washing and cleaning, so that the house wasn't going to rot during his absence. I also rummaged until I found the paperwork for his bills, I found out that I needed to advise his house insurance company if the house would be empty for more than three months - you should check that out to be sure your Mum is covered, if you can't find the paperwork just take out a second policy - if there are two you can get a refund on one when things are settled down.
I certainly opened the post to check if any bills needed paying, luckily I had some savings so didn't have to contact his bank to arrange payment. If your Mum's not on Direct Debit for her bills and you can't pay them I'm sure her bank can help - they must come across this all the time.
Try the stroke association helpline for more advice - they might even have a guide with a ticklist, that would be helpful!
I think the best thing you can do is reassure your Mum and yourself that her house is clean and tidy and you're taking care of everything so she doesn't need to worry. Then concentrate on looking after yourself as she won't want to see you looking a state and try looking after her a bit. If she used to enjoy wearing makeup maybe she'd appreciate a mini facial or manicure while she's in bed, we girls love being pampered! It would also give you something to talk to her about and something to do with your hands. Crying is ok and Mum needs to know you care but you can't just cry all the time, it's not good for either of you.
At the start of our journeys for life after stroke none of us know what we're going to get at the end - I couldn't have coped if I'd have known - we just take a day at a time and do what we think is right at the time. It's really early days for your Mum and hopefully she'll make good progress but this journey has the potential to be a long one, you must look after yourself, take your Mum's lead and don't turn to drink or cigs, eat properly and take a walk. When your Mum can sit in a wheelchair the hospital may even let you take her for a walk - you'd both enjoy that.
In April 2013, I had a stroke. I had wake up early in the morning and I was prepared to go to work that morning.
I was fine that morning without pain or aches on any part of my body. My doctor had told me once that I have high cholesterol and since then I had been mindful of what I eat. I also had a blood test every 3 months during which time the doctor sat down with me and explained everything to me. Never did he say that my cholesterol level was high.
I boarded a bus from Northumberland Park to Seven Sisters and on the way I began to feel unwell, feeling hot, though it was winter. After a while, I couldn’t move my legs and hands. When I got to my destination where I was to come off, I couldn’t get off from my seat. I could feel my face was twisted to the left side and my speech was slurred. I told a woman in the seat in front of me to tell the driver that someone was ill on the bus and that I needed assistance.
The driver came to the upper deck where I was sitting and then ordered everyone out of the bus. He immediately called an ambulance. I was taken to UCH where I spent two and half weeks. I was transferred to North Middlesex Hospital and spent two and half weeks. I was told that what was left for me was to come to Homerton University Hospital NHS Foundation Trust for rehabilitation.
At the hospital, I went to physiotherapy which was fruitful because initially I couldn’t walk, now I am able to. My speech was slurred, now I can speak clearly. The rehabilitation has been of immense help to me.
I have been at the hospital for three and half months and I am to be discharged on Friday 16th August.
Hi to All !
Please be aware that not all strokes are preceded by symptoms.
My mini-stroke came two days before a Bank Holiday weekend and was thought to be an 'inner ear' problem. The offered symptoms, F A S T, did not appear at all and is was not until the following Tuesday when I still could not balance upright that an ambulance was urgently requested.
Happily I have only double vision which is corrected by a prism, although at 67 any loss of marbles or concentration are probably hard to distinguish from the ageing process !!
My mom had no signs at all when she started to get ill, then 3 weeks later she died. Still numb from the shock and speed of it all
9 weeks ago i was with my partner looking at a appartment to fix and see wat had to be done we live on cyprus and were looking for a way to make some fonds after a walk to the appartment we went down to look at the bike room outsite whilee i try the lock and try to close the door i was missing my left arm it didnt show up whyle my partner was asking if everything was ok i didnt respond i try to step away and a moment later i found my self with my nose on mother earth hearing shouts from persons call a ambulance he has a stroke my partner was ligh on my back to prevent me from getting up like a enoying bug i didnt realise that time wat was going on and she were saving my livei went to hospital in 1 hour it takes the ambulance 45 min to find were the adres was were i was in the hospital i hear i had a major brain bleeding right site and total outfall left site of tthe body 2 weeks i was in there beeing homesick after 2 weeks my partner finnally gets me out of there now 9 weeks later i am almost back wat i was before the stroke 95% recoveryfeelings left all returned stil walk always with my girl on the left she gards me like a pitbull now today i still looking or awnsers i hear 2 weeks ago that i also have edema and haing medroll as med i mread a number of stroke story,s still i cant find no were info about edema after a stroke? i am 51still i dont have a clue wats going on there is nothing here to go to and no support my partne still wake up every night crying about wat happend 9 weeks ago trauma and i am always talking to her i try to calm her and even today like the last 51 yrs i wake up with a smile i always waking up in a good moodhow ever now i also got to deal with the edema i start to get depressed scared not for me but for her thnx to her i am awat i am today almost again the old self she was thaere for me 24/7 she makes me happy and give me streinght to go on every day now i try to find persons who also got edema after a stroke and how to deal with it
srry for the bad writing only use 1 finger cant find a way to fix the writing errors
My husband had a bleed during an operation to remove a cyst from his brain. He has been left with some right side weakness, aphasia, inability to read and write properly and some cognitive issues. The operation was 13 months ago, and he came out of hospital last November. He still needs to sleep a lot, two hours late morning and late afternoon plus he is usually asleep about 10.00 until 7.30 in the morning. Does anyone else have experience of this extreme tiredness and is it likely after this time that it will go. I appreciate that all effort he makes to move, think, speak takes lots of energy but sometimes he only manages to stay awake for 2 - 2 1/2 hours before nodding off again. I try to keep him stimulated as he must get bored with nothing much to do, he used to love listening to music but that tends to send him to sleep. Any thoughts.
Hi I am recovering from a Stroke that has affected areas the same ad your husbands. Fatigue has been one if the most difficult thing to come to terms with. Even the smallest of chores exhausts me and I find my eyes drooping. I have been told not to fight fatigue but to take action and go to sleep when tired which is about 2 or 3 times a day. I have had to give up work. Apart from the Stroke association I have found it really difficult to find support or talk to others so I have set up a Facebook page please feel free to comment on there. There is always someone to reply even if its only me at that time. It's called Stroke Support Group Uk.
My husband had been a very fit 80 year old but his walking was becoming more difficult over the past year. We thought he had probably had TIAs in the past. However it started to go downhill last Oct when he seemed to have continuous headaches and I became concerned about the number of paracetamols he was taking. On a visit to the GP he said it was probably a virus but ordered an ECG. We went away first on a holiday already booked and I became aware that my husband would not sleep in the hotel bedroom at night but would wander about the hotel and sleep in an armchair in the lounge. This happened on 2 subsequent holidays.
The ECG revealed he had an irregular heartbeat and he was put on warfarin immediately and another drug to inject until it took effect. This continued until February when he was due to have a cardioversion only to be told it had cleared up so it was no longer necessary but he stayed on the warfarin. He subsequently found it harder and harder to walk and after 2 visits to the GP who could find nothing wrong and simply juggled his tablets in case they were causing the problem he elected to go into hospital. With my help now he was still able to walk.
They were mystified but ordered tests including a CT scan and kept him overnight. The next day I was told they could find nothing wrong and could come out once the occupational therapist and physiotherapist were satisfied with the home arrangements, I protested that there must be something as he had been walking much better the week before. They seemed to assume he was 80 and this was what 80 year olds were like. The doctor rang me and said all the tests he had had suggested they could find nothing wrong,
I should add that my husband had been becoming a little confused during the preceding weeks too. I visited him that day and he was the same as he had been when he came in as they had suggested. The next day I went to visit and a very officious doctor had him transferred to the stroke unit, She said she had been told to find something wrong and the MRI scan showed old TIAs and two strokes. This information she was shouting in his ear, a man who clearly wanted me to be told and indicated to her as he was used to me taking the decisions but she insisted on ignoring me. If only she would listen to me I could give her the background. She then added that he was being put on Pabrinex as she did not want him to suffer from DTs. I stood there absolutely shocked and said that he hardly drank and had not had his usual pint of beer since October. The only alcohol he had consumed since then had been a glass of wine on his birthday in January. She retorted that he had told her that he drank 3 pints a day and that meant 42 units a week. I said this was absolute rubbish but she ignored me. I shall never know why she preferred to take the word of a confused man than his wife who knew his every movement.
Anyway during the next week he continued to deteriorate (although the hospital say he was improving). He was taken to the gym on two separate days and as I was there I could see his walking was deteriorating each day until by the end of the week he could not walk at all. Because they never knew what he was like before admission they classed this as improving as he was walking.
He was sitting in a chair each day but becoming more and more tired and falling asleep. The night time problem continued and he was accused of trying to get out of bed at night until he could no longer stand.
A friend who used to work as a carer visited him a couple of days in and was shocked when she saw him. She said he was very dehydrated and ran off to buy some water for him which he drank. However during the course of the week I noticed he was resembling a dried up prune which I understand can be related to dehydration.
He had been weighed at the hospital the previous Christmas at 78KG and to all intents and purposes he was that weight when he went in, but they omitted to weigh him. They now say this was because he was too ill which is a complete nonsense if he was able to sit in a chair every day.
Nobody ever came to speak to me and I assumed this was normal procedure and just relied on my own suppositions from the chart. After nearly two weeks I became concerned about his weight as I noticed his chart was saying he was 64KG. Out of desperation I rang my GP and he told me to arrange to speak to the consultant and gave me her name which he had found out by ringing the ward himself. He had been told my husband had had 2 strokes and had been responding to treatment at first but had now gone downhill.
I thought as no-one would discuss it with me I would list every sympton he had had over the past year since I had noticed the intake of paracetamols and at least perhaps the consultant would read it as I appreciated how busy they are. When I got to the hospital and following my GP's instructions asked for an appointment with the consultant I was told I could not have one for another week. By now I was absolutely terrified of the effect the loss of weight was having on my husband and I asked if someone would hand her the chronology as I thought this would assist as they had no idea of the background and I had the sense I was being treated as an alcoholic's wife. Eventually the same doctor I had seen originally saw me and I handed her the chronology which she was pleased with as she said she could now see the background. She stated that she understood from a rumour on the ward that I was separated from my husband. I was shocked but it did explain my treatment. I told her this was untrue but her response was that may be so but we had been separated for the past year. I was by now beginning to get annoyed that she would rely on rumours rather than what I was saying. I told her we had been married 41 years and never been apart which I think she finally believed. She then went on about the alcohol and I informed her yet again that my husband as so rigid in his views he would never drink at all during the day but did enjoy a pint at night after exercising but this had all ceased long ago. At the end of the meeting she said this was all new to her and took my sheet of paper and said she would need to mull it all over.
Thinking I was getting somewhere I went in the next day and asked what was happening and was told they were getting a psychologist to look at him and a nutritionist. Although I thought the former was ridiculous, I assumed the nutritionist would stop the weight loss. However this was a Friday and nothing happens at weekend and she would not see him to Monday. Her records state that when she saw him he was 63KG. She assumed that as his weight had never been recorded when he went in unknown to her that he had in fact lost 2 KG being 65 KG when last weighed. An NG tube was to be inserted. Although my husband was not overweight when he came in she insisted that he should be 60KG according to her calculations. In other words everything was OK except by now I was visiting a man who was usually unconscious and could not stay awake for even a few minutes. He was never out of bed and just slept. He had lost the use of all limbs.The next day I visited and the tube was inserted but he needed an x-ray before it could be started which by the time I left that evening had not even taken place. A few more days without food.
The next day I received a message to get to the hospital as soon as possible as he was seriously ill with pneumonia. He did recover but has since had pneumonia again and umpteen urinary infections. He was inserted with a peg but his weight continued to plummet and was on two occasions 56.7KG. The consultant told me he would never get any better and was not to be resuscitated. I have spent every day with him for four months and have monitored everything about him and of course I know him well anyway. He has received no physiotherapy since that first week and I was told he would never talk again, would have severe dementia and would not walk or use his limbs. In fact the indication was that he would be better dead. Just before the second bout of pneumonia I pleaded with them to increase his nourishment (he was on 1800 calories a day and this I was told was adequate by a team who will not accept his original weight). Without going into the detail of how I have now got this increased to 3300 calories. However when he had the pneumonia they had to insert a catheter which he still has. They also told me at that time that he had severe anaemia but did not need a blood transfusion and a probable ulcer. A few days later they said neither was accurate. Each time the nutrition is increased he gains some weight and all his faculties come back. Since the last increase I have been exercising the left arm which had always been left unused by the wall and he is now in the space of the past week managed to lift it above his head, If I approach the physiotherapists they just get annoyed with me so I have bought aids and exercised him myself which has got the improvement he has now. His main problem is weakness. He is not paralysed although he was told this but simply too weak to lift his arms and legs which I have proved when he puts on weight. This latest surge was as a result of a slight increase in nutrition despite keep having urinary infections. I also found out he was being prescribed laxative twice a day which a week ago I got stopped and he has not needed any since.
I need to get him out before anything else goes wrong but the latest weigh in shows he is beginning to lose weight again although is at present 61.3KG hence the improvement. I am terrified that we are about to repeat the past yet again and I am at my wits end to know what to do. When the consultant last spoke to me before this recent improvement she stated he would never improve, never talk (although when he puts on weight his speech comes back very softly and not very clearly but the speech therapist like all the others has nothing to do with him. They all wrote him off weeks ago on the consultant's advice that nothing could be done. She also added that one of the strokes was down to his alcohol problems. Here we go again! Once in the notes never to be erased. She said the stroke had confused his bodyclock and he thought night was day. She did not want to know when I said he had been like that for months and it was not just when he came into hospital and that I was sure he was suffering from malnutrition and this was the cause of all his present problems. On the basis of her own diagnosis this surely meant the stroke occurred some time ago.
Although they were all sure I would get it, I have been refused continuing care and now I am faced with a bill I know not what. I insisted on an after care package and a meeting with the therapists who do not want to know him anyway has been arranged for a couple of days time.
Basically I want him reassessed by an independent nutritionist and to have some rehabilitation (not just me exercising him) but after all this time I am extremely weak myself and I feel my husband will just stay in hospital going down with infections, will lose capacity again and the use of his limbs as no-one there will recognize the link between his lack of strength and the loss of weight. If it means I save my husband's life I would willingly use all my savings to get him somewhere to achieve this but do not know where to even start. By the way I have been informed that he has never had another stroke whilst in hospital which means it has to be before he went in.
As you no doubt recognize I would be so grateful if someone could help me.
I had a vertebral dissection leading to a massive brainstem stroke in 2009. My life was destroyed overnight. I was in hospital for 6 months before returning home. I suffered no mental impairment and my personality and speech is unaffected thank goodness. I just feel this overwhelming sense of loss. I still can't walk and am unable to work and rely on carers each day. I will never get used to the loss of independence and the grieving I feel for my old life. I am so unfulfilled and although I have several good friends, no one knows how it feels apart from fellow stroke sufferers.
Once you are discharged from hospital there is very little in the way of rehab. I have two sessions of private physio per week which is improving my situation all the time but because progress is slow I feel that life is passing me by.
In the early days I wondered why on earth I had survived, now I feel differently but every day is such a struggle.
I would love to hear from others, especially those who have suffered a brain stem stroke or other catastrophic stroke resulting in a total life change.
I wish you all well in your daily battles.
Oh Caroline, I know how you feel! It was my husband that had the stroke but all our lives have changed forever. He was 54, I was 35 and the kids were 18, 16, 15, 13 and 12. It's been 18 months now but I still cry regularly, everything has changed. There's not one single thing in life that's as good as it used to be. My hubby can walk with his stick in the house and holding my hand on pavement but can't talk or go out without me. But it's silly things that make it unbearable; food tastes wrong, he can't bring me tea in bed and he can't smell my hair when it's been warming in the sunshine. We, like thousands of others, battle on everyday by amending our expectations. My husband is very brave so we do stupid things like taking the kids to the Olympics - I spent the day petrified and now, looking back I don't know how we did it, but we did it! Last week we saw Robbie Williams in concert - I was a bit tearful watching all the people down the front jumping up and down, waving their arms while we were sat at the back thinking about how things used to be. I had never paid attention before to the lyric 'I don't wanna die, but I ain't keen on living either' - I think that's what my husband means when he says 'shoot me'. I'm not sure what else is as cruel as stroke, it has taken away everything from us and we still have decades in front of us that will not be as they should be. Regular Father of the Bride speeches will be impossible, looking after Grandkids will be different, we'll even be bystanders when the kids are setting up their own homes. I believe that there will not be a day in the rest of our lives when we don't have a tear in our eye or a lump in our throat over how things should be or used to be. As for friends, ours are a great diversion but due to his aphasia my husband is sometimes a bit of a bystander. We don't seem to have anything to talk about with our friends as we don't do anything and some friends just don't get it, they don't understand that actually we're not lucky being retired 10/30 years too early - we're skint and we're bored, they don't understand that when they're moaning that they've not got enough time to do everything they want to do we're wishing we still had that problem instead of all the time in the world but nothing decent to fill it with. My hubby is still very wise, I can see it in his face, but before stroke when he was wise and could talk if I said to him 'it's not fair' he would just reply with 'life's not fair' - how right he was! So, you are not alone - I cannot help you, just agree with you that it's all rubbish.
Paula, I could have written what you have just posted because our life is just about the same. My husband had a bleed while undergoing an operation to remove a benign cyst from the brain. He was in hospital for 6 months and although things have improved since he came home he has aphasia and can't read or write properly and walks only with a frame and not outside at all. .We have a carer who comes in in the morning to get him up and wash and dress him but the rest of the day is ours to fill. He still needs to sleep late morning and in the afternoon which makes it difficult to plan anything. Friends find it difficult because of his speech and really we don't see so much of them any longer. My husband will be 70 this year and I am 68. I worry so much about what would happen if I was unwell. Neighbours are good an supportive but there are times when I feel very lonely. My husband doesn't always understand problems so I feel I have lost my everything. What can we do but go on from day to day hoping that there will be improvement, but its very slow.
So we are not alone! I'm sure there are loads of people around the country thinking 'what on earth will we do today'. The trouble I find is balancing activity and cost, we're National Trust members so we get free entry, their properties are great and they're really helpful to people with mobility problems BUT you still have to get there and with the price of fuel...... It would be really easy to just stay home and get really miserable. But you're right - we just chin up and carry on. As for what to do if you became poorly - I'm not registered with the council as being a carer but if you are they can make a plan with you for emergencies that they would put into place. So they would arrange extra carers or call your family for you - whatever plan that you decide on with their help. I think the point is that it's all written down calmly when you're well so that you don't need to think about it if the worst happens. Which doesn't mean you wouldn't worry about him - there are so many little things we do and know that couldn't possibly be written in a plan! Well, it's a beautiful day - lets go do something outside and get our hubby's some fresh air!
Well what I personally think is all about how you handle your brain and how you manage your things.It's really very important that you control your brain.
how to improve memory
in 2010 my mum suffered from a stroke at the age of 42, she had recently been to hospital due to a severe pain in her left arm, it was diagnosed as a frozen shoulder.
she was then rushed into hospital after her stoke a week afterwards it turned out she had a severe blood clot in her brain and their was nothing they could do for her,even if they did operate she would of been left without any memory and wouldnt be able to continue her life ad before, she sadly passed just hours after.
Was wondering what people's experiences of dealing with increased anger issues - simple things like driving, wlaking in busy streets etc. seem to be causes for anxiety and feeling aggressive. Any suggestions?
Hi, I had symptoms (loss of speech, left weakness, facial droop) that looked like stroke in june 2012 and had a clear CT and was discharged from hospital after a couple of days as symptoms resolved mostly. I was then diagnosed with right brain ischaemic stroke after an out patient MRI In July 2012. I took reasonable care of myself from that date... But
2 weeks ago I had similar symptoms as before and was taken to ED by ambulance admitted to stroke unit.. I should add that i am post anterolateral MI x2 in 2004 and am on the usual meds. My stroke symptoms included left side weakness, loss of speech, drooping face left side all of which resolved fairly quickly. 2 weeks ago i had four separate episodes each lasting longer than the last. I was discharged same day, symptoms unexplained after clear CT scan, but had an echo on Tuesday that showed a blood clot in left ventricle. Following an MRI I was diagnosed with another ischaemic stroke right side brain in a different place and placed on warfarin and have to inject deltaparin daily for a few more days.
I am not due to see my consultant until june, so i thought i would ask you... Am i missing some info? As you can imagine i feel like i have changed. Im constantly tired, and decisions, understanding and speech sometimes take some effort. Today is a good day.. I am being referred to the anticoagulation clinic re inr but need advice on what effects some foods, and alcohol have on warfarin and deltaparin. Additionally what do i tell my friends, apparently i am all out of context lately, i assume that is normal?
Apart from my GP and the interweb, who do i go to to get these answers, should i go back to the hospital for an info pack? Does one even exist?
Anyway i am glad to have prevailed, twice, i just hope now we know about the clot i wont be back to hospital for a while yet.
Best wishes to you all
I do not have all the answers to your questions. But what I would recommend is you first make a list of the questions/issues you would like information on a piece of paper.
Then I would recommend you speak to your pharmacist and/or GP on the issues that concern you. If you have the piece of paper to hand it will help you to cover everything that concerns you.
Hope this helps.
Good afternoon to you all,
I am in need of some help. Nearly 4 weeks ago my boyfriend suffered a stroke affecting only his speech. He was allowed home a week later - during his time at home he began doing bits and pieces in the garden and felt really good until 3 weeks after his stroke when he had an unsteady moment at home. Since this time he has had major balance issues whereby even sitting down on the sofa - he feels like he is going to fall over. Is this common? Has anyone suffered this sudden onset of unbalance/unsteadiness? He is so frightened about being on his own at the moment and is terrified of going outside even with someone. I hope someone can help me as I am at a bit of loss about what to tell him. Oh - I do have an appointment for him to see his GP but would rather speak to someone who has been through this before!!
Hi - following my stroke I did not have any immediate problems. But a few weeks late I had balancing and coordination problems and it was really awful by the time I had the follow up appointment at the stroke clinic. I couldn't walk from the living room to the kitchen without hanging on to the wall or a chair. And supermarket shopping was a no-go - total disorientation so I would have to leave my husband with the trolley and sit in the car. Then at the out patient clinic they found that my diastolic blood pressure reading - the lower figure - was extremely high. I was also told that the anti inflammatory painkillers taken for arthritis should have been stopped. Urgent referral to GP took another two weeks so it was 2 and a half months after the stroke before pain killers were changed and blood pressure meds started. BP took some time to adjust but eventually I was prescribed Ramopril plus amlodipine. The combination did the trick and I felt sanity had returned. My concentration improved and I no longer had to do a balancing act. What a relief!! I thought at one point that I was going a bit mad. It really was an awful feeling so I can understand what it feels like. It may be worth your boyfriend having his BP checked again but there may of course be another reason. My mother-in-law suffers from vertigo and she has similar symptoms so he really does need to get checked out sooner rather than later. Good luck!
I just wanted to share. On Thursday 11th April, I had a ischaemic stroke, I'm only 43. Never smoked, haven't drank for two years through choice, and have been left with the right side of my face paralysed. The fabulous staff at the hospital looked after me wonderfully, and couldn't fault them.( food another story)
But what I did want to share is, even though Im lucky enough to have a wonderful partner, family and friends,
I just feel so down. Alone and want to seek some advice from others who have been where I am at the moment.
So I look forward to hearing from you soon,,
Hello - hope you are starting to feel a bit better now you are home. I had my stroke (small bleed) a few years ago aged 53. I know how you feel - it doesn't matter how much support you get from your great family and friends, they still don't really understand what it feels like unless they have been through the same experience themselves. I came home from hospital not knowing whether I could ever work again - was I still capable of doing my job? What about driving? Would I even remember roads signs etc or would I be a danger in the car? I found that it was a steep learning curve and little by little I realised what I could do or couldn't do. I was lucky in that after 5 months I returned to work and found that I could cope in my own way (but with some help from colleagues as well). But my confidence took a big bump and has never been quite the same since. I have learned to be quite a good actress in some ways as I quickly cover up any mistakes or even just laugh it off. Don't ask me to fix anything!! I was not very adept before but I now know that this bit of my brain has definitely been affected because I just look at things totally blankly because I probably don't know what to do. At first It used to upset me but now I just swallow my pride and ask somebody else to do it. But not everyone has the patience to help and in time you will learn to know who you can totally trust and rely on. Those are the people on your side and will still be with you throughout your ordeal. This s a very good way actually to learn more about the human race. You can distance yourself from those who you feel uncomfortable with because you may be better off without them. Sounds harsh but you really do need to be able to rely on caring people to support you on this long hard journey. The emotional and psychological affects are tremendous and may be far worse than your physical problems. My husband found it extremely hard to adjust as he wanted me to be the same person as before. It was difficult for him to realise that my personality has changed as I get far more mood swings than before. And maybe I am not always so tactful either!! I sometimes say things without thinking and apparently this is a very common trait after a stroke. But it does get easier with time. Plenty of rest alongside your rehabilitation is essential as tiredness is one of the worst things for me even after all this time. I have some good days but lots of bad days too. I don't always have good concentration on the bad days so it is a good opportunity to be a bit lazy!! Take each day as it comes and build yourself up gradually. I am sure that you will find your own strengths and weaknesses and work around it as best you can. Life does go on. I didn't' think in such a positive manner 5 years ago but I am still working and aim to get my pensions. Good luck in your recovery and take care. El
After a bout of seizures i had weakness which sometimes is nothing new. however i felt awful, and knew something wasnt right. then i noticed that i couldnt grip anything with right arm or hand and leg was weak.
i finally went to gp several days later who suggested mini stroke but my weakness in my hand has not gone away, i still cant make a fist or move fingers etc.
Also ive started getting worse again with headache and chest tightness. where all i can do is stay in bed.
the gp faxed a letter to stroke consultant who at first said he wanted to see me straight away but now has passed the management back to my gp.
but trying to find out whats happening and for my gp to ring me is not happening.
what am i meant to do when my symptoms arent getting any better?
I'm certain I suffered minor strokes in my teens - I was on the pill and a heavy smoker, I had daily headaches, and I had what I referred to as 'attacks' which I believe were strokes. There's also a history of cardiovascular disease in the family, both heart failure and stroke.
My symptoms included;
- VERY painful headache (behind left eye).
- Stiff painful neck.
- Numbness throughout body.*
- Going in and out of consciousness.
- Non-stop vomiting.
- Loss of ability to understand letters or numbers.**
- Light sensitivity and blurred vision.
- Altered sense of smell and taste.
- Drooping eyelids.
- Loss of balance.
* Numbness would start in my nose first and then my mouth would go numb so I'd start to badly slur my words and drool, this would would quickly progress to a point where I'd not be able to hold my arms up, put my foot flat on the ground to walk, or even be able to hold my own head-up. It was like my muscles had given-up, I felt like a marionette puppet being swung with no real control.
** It's hard to explain the loss of understanding of words and numbers, I recognised the symbols but somewhere in my head they'd get mixed-up. Once when away from home I had an attack, before it got too bad I tried to find a bus home but upon checking the time table I found I just didn't understand the numbers or how they related to the numbers on my watch.
*** I had no idea what I was saying or doing, no idea of what was happening around me so at my worst I'd get upset. I also experienced a symptom where I struggled to direct myself; I'd attempt to walk to the side but walk forward instead and walk into something, I'd try to adjust myself but end-up doing the exact same thing again, I just couldn't adjust myself. I've walked into doors, furniture, and even fell down stairs as a result of this.
Photos from my late teens show a facial slump on one side (no longer present), and since these 'attacks' I swear I've lost some mental ability and my memory, also I notice a slight delay in my brain telling my legs to walk or hands to pick things up...not a serious problem, just noticeable.
At the time I didn't go to the hospital and it was assumed by my doctor that I was experiencing severe migraines, no migraine medication or painkillers worked. No one ever suggested stroke or that the pill may be the cause of the problem - I suspect my doctors forgot my symptoms, reminding themselves why I was there by looking at their screen and seeing the last thing they tried was migraine medication so kept following that line of thinking, so they missed the obvious.
When I came off the pill and I stopped smoking these 'attacks' stopped completely. Although I don't suffer these 'attacks' any more it would be nice to know what they were as they caused such serious problems with my education and my life in general, I also worry that it may have caused long-term damage and put me at higher risk of stroke later in life.
Can doctors determine if I've suffered strokes?
Would minor strokes show-up on CT scans or MRI's, or would they be able to diagnose from symptoms? How difficult would it be to convince my doctor to consider diagnosing something that happened in the past?
Not sure if this helps, my dad suffered from a mini stroke (TIA) 14 months ago and a CT scan didn't show this, he has since suffered from a stroke (on Sunday) which did show on a CT, it is unusual that young people have strokes, although it seems to be getting more common and given that you were on the pill and smoking, the doctor could have worked on the percentages and figured you were presenting signs of a migraine rather than looking deeper into the problem to find something else with similar signs and symptom's of a migraine. Did they do any blood pressure, cholesterol checks or take blood samples? When I was chatting to a stroke nurse in the hospital over the weekend she said that mini strokesTIA's don't always show on CT scans. How long ago was your last attack??
Hi i just wondering if anyone has had a minor stroke.
In Nov 2011 i was told i had a very small stroke although the cat scan and MRI didn't show anything but i had presented with left arm weakness and a small droop to my mouth. I was put on medication and advised to stop smoking which i did. and thankfully the droop to my mouth corrected after a few days but my left arm still had a little weakness but life went on as normal i was just coming up to 47 then. I also had a family history of strokes my mother suffered a few mini strokes and then a massive one in April 2011 from which she died and father had suffered quite a few mini strokes which left him with Alzheimer's and he died 8 yrs prior to mum.
In Mar 2012 i collapsed at work and was taken to the hospital where again i had a cat scan that showed nothing on my brain but the above symptoms were present again. but apart from the slight weakness in my left arm i fully recovered. On Feb 9 of this year i was at work and begun to feel unwell i felt nauseous my left arm felt heavy and tingling i did not like light in my left eye i could not raise my eyebrows could not move my tongue the way the paramedics were asking me to had less feeling in the left side of my face and arm and although i could answer questions put to me i was slow to respond to these questions. I was taken to hospital where a stroke nurse carried out these test again and by then my neck was also hurting and it was hurting to lift my head. They give me a CAT scan and spoke to a stroke consultant via a t.v screen about my condition and he was able to view the CAT scan image. He then spoke to me and said he wanted the stroke nurse to administer a drug called THROMBILISTIS as he did not like the density of what he was seeing. I agreed and this was duly given and i was put on the Acute Stroke Ward where i wes monitored very closely. When my husband arrived the stroke sister explained to him that i had a stroke to the back of my head and to what they had given me and that there would be a CAT scan or MRI on Sunday to be carried out to make sure that there was no bleeding to the brain. On the Monday i saw the consultant who said without checking my arm or eye or face that i had NOT had a stroke i could go home and that i did not need the medication that i was on. to say the least i felt very shocked but relived and he walked away. The consultant then turned back to me and said i will send you a letter for an appointment at my STROKE clinic but it will take about 4 weeks and walked off. So here i am at home as my GP signed me off work for a month with my arm weaker than it was before this a constant headache my face and arm less sensitive to the right and i can't sleep for longer than a couple of hours of a night. My consultant has left me feeling a fraud and if these symptoms accrued again i don't think i would feel comfortable calling for an ambulance again.Has anyone any advise? PLEASE.
Hi too all members, I symapathise with you all, After having a cerrebellium brain stem stroke , Sorry too me ecerything is 5 yrs ago I cant seem too get by 5yrs ago
But the family say it was few yr more I spent along long time in hospital ,At 1st not recognising anyone at all, It was a xmas day ,I had tingling in my hand I also had a very weighty numb feeling in my hand From then on,
I cANT REMEMBER anything , My little grandaughter seemingly was there,
i dont remeber i was in and out of bed, my son say,s
I still thought after the memory Of itall come a little 4mth or so on, The tingle the numbness, my son saying he was phoning the doctor,
i WAS IN THE WESTERN FOR AROUND 6MTH (HOSPITAL) My left side wouldn,t stay up I couldn,t understand what was wrong , But 1 day the Lady across from me elderly, i rember her , trying too clean , Saying something about her Husband will be home ,Before my stroke i was a carer in a nursing home , So as i watched , My reaction when she went Too fall was try Jump out of Bed and get too her, I Fell sliding all across the floor I Still Couldnt understand why this was happening why i could,nt sit up without being propped up by pillows , The nurses what i mind was more concerned for me I was angry trying too point too the woman As my speech was also affected, and obviously my balance,
Anyhow the story goes on too long , My young brother was over Daily and its along way too travel, my youngest Ibrought up Since the age of 8 as my mum died at 40 with cerrebellium hemoarge , That must have been awful for my brother and my Young sister who i mind always looking away, and breaking her heart, But as i was not awre still of really what was happening
and i was allways there for all of them worked, did decor, plastering haha, you name it in my home all myself ,Going back too my brother and 2 sisters God now i think mY BROTHER Who was on holyday when my mum Died in his arms And me being the eldest, Had too go for Him Then go and identify my muM gOD THAT WAS THE HARDEST PART IN MY LIFE , MY DADHAD DIED AT 40 TOO WITH CORNARY ARTERY HEART ATTACK, FEW YRS PREVIOUS , SO ANDREW MY LITTLE BROTHER MUST HAVE EEN HIT HARD BY ME HAVING THE CERREBELLIUM STROKE WITH , THE NEAR SAME THING MY MU DIED IN HIS ARMS WITH, AS IT WAS HIM THAT FOLLOWED THE AMBULANCE IN TOO ,AND THEY WERE ALL TOLD TOO EXPECT THE WORST ,THEY TOLD ME LATER , AFTER THAT HOSPITAL IT WAS 1 CLOSER TOO HOME ,THEN THE BRAIN INJURY UNIT TOO LEARN TOO COOK WALK ECT DRESS ECT
I DO SYMPATHISE WITH ALL YOUR COMENTS ABOUT THE TINGLING PAIN ,PAIN ESPECIALLY WHEN THE WEATHERS BAD , THE DIZZY SPELLS NAUSEUS, SLEEPY ECT ECTITS AWFULBUT ,BUT WHAT I DONT UNDERSTAND IS ,,DOES ANYONE GET ,ON THERE BAD SIDE SEVERE SORE JUST IN ,,SAY LIKE MINE 2 PLACES ??THE ITCH IS LIKE NOTHING IVE FELT BEFORE IT STARTS A RED PATCH ON MY BACK A LITTLE SPOT,BLEEDS FOR A LONG TIME I CANT WEAR ANYTHING EVEN DOWN TO SOCKS WITHOUT CHECKING THERE,S NO BITS OF FLUFF THE SLIGHTEST THING SEEMS TOO IRRITATE ME, YET I CAN JAB PINS IN ME I HAVE NUMEROUS BURNS OF THE OVEN ,I HAVE TOO FEEL THE TEP OF WATER WITH MY OTHER HAND FOR BATHING, ALTHOUGH I DONT WHEN WASHING FEW DISHES, AND MY HAND GETS ALL SORES WITH THE BURNING WATER , I JUST FORGET AND DO IT NOT THINKING WHEN ITS FEW DISHES,,
IM SORRY THIS IS ALONG STORY, IVE NO,ONE TOO TALK TOO ,I DONT GO OUT UNLESS THE SHOP ON THE CORNER, BUT THAT AL DEPENDS ON HOW I FEEL THROUGH THE DIZZYNESS ECT I KNOW MY LIMITS NOW ,,WHEN I CAN GO OR NOT , IVE ALSO BEEN IN PRIVATE LETS FOR 5YRS MAYBE ONE 6MTH HVING TOO STAY THE TIME SYS ON MISSIVE ,THEN AGAIN MAYBE A YR ALL HAVING TOO PAY MYSELF AS THE HOUSING SAY THEYVE NOTHING SUITABLE FOR MY NEEDS , IN THE AREA,S IVE ADDED,,,, IM NOT ENTITLED TOO SHELTERED HOUSING AS IM ONLY 53,, ,YOU HAVE TOO BE 6O , I GOT THE SCOTTISH PARLIMENT INVOLVED LAST YEAR ,THE HOUSING PROMISED ID BE HOUSED THE NEXT AVAILABLE 1 THAT CAME UP IN AREA, BUT I PUT IN FOR 3BUT ONE THAT IT LAY EMPTY FOR 7WEEKS, IT JUST SO HAPPENED SOMEONE WITH HIGHER POINTS ON THE LIST LESS TIME THAN ME,, GOT THEM
IVE MOVED FROM HOUSE TOO HOUSE GOT THEM DECORATED AND PUT NEW FLOORING DOWN ECT AS ,I CANT LIVE IN DIRT THEN FIND OUT THAT I HAVE TOO MOVE YET AGAIN, AS THE LANDLORDS DONT CARE , TOO TELL YOU PROBLEMS IN AND AROUND THERE HOUSES, AND ALOTS BEEN BAD MOVES (BUT ME NOT KNOWING ) UNTILL ACTUALLY IN IT,, IM SO DEPRESSED ,THE LAST BUNGALOJUST LAST YEAR I HAD TOO MOVE AGAIN ,SO BACK AT BOTTOM OF HOUSING LIST AGAIN,,AS THE PAINT WAS JUST ALLWAYS FLAKING OF,RUINING MY SUITE FLOORING MY HEALTH WITH MY SORES ESPECIALLY AND DAMPNESS BAD, THE PAINTER I HAD TOO GET IN TWICE WHO RUBBED IT RIGHT DOWN ECTSAID ITS A WASTE OF MY MONEY, AS ITS NEW DOORS FACINGS ECT ECT AND THE DAMP THE O,T THAT CAME OUT FROM HOUSING SAID THE HOUSE WAS SUITABLE BEING A BUNGALO TOO LET, AND IT WAS JUST MY MENTAL HEALTH PROBLEMS THAT WAS MAKING ME THINK THAT, MY DOCTOR WAS FURIOUS, IVE NOW MOVED TOO YET AGAIN ANOTHER PRIVATE LET ,ON THE 8TH DECEMBER AS HEALTH GOT TOO BAD AND ID WAITED ,SO LONG AFTER THERE PROMISES ,BUT THIS TIME ITS CLEAN,,,BUT STUPIDLY TOOK IT THINKING I, WILL MANAGE THE STAIRS AND IM NOT , SO IVE GOT KETTLE ECT ECT UPSTAIRS IN ROOM INCASE I CANT GET DOWN THEM ,()I THINK BECAUSE IM ON MY FEET WITH A WALKING STICK NOW , THAT IM FINE,, ALTHOUGH THE DOCTORS WROTE IN NURSES IVE NEVERE EVER IN MY LIFE BEEN A BAD TENANT BEFORE MY STROKE, ,,AND ALSO IM NOT ALLWED A 2BED,ROOM BECAUSE NO,ONE CLAIMS CARERS ALLOWANCE FOR ME ALTHOUGH I SUFFER NIGHT PROBLEMS AND DUE TOO A BAD EXPERIENCE ,IN THE PAST I WILL ONLY ALLOW MY SISTER ,TOO HELP DURING THE NIGHT AND STAY , IF NEEDED I NEVER ASK FOR HELP ,FROM DAUGHTER ,SON FAMILY ,THEY KNOW IM UNWELL SO I SHOULD NOT HAVE TOO ASK,,I ONLY IN THAT ASPECT FOR NIGHT PROBLEMS AFTER FALLING AND TRYING TOO MAKE BED AGAIN BATHE SO ,,SHE COULD BE NEEDED 1 NIGHT 3 OR 7 ,I NEVER KNOW FROM DAY TOO DAY HOW MY HEALTH IS GOING TOO BE THERE IS NO JUSTICE IN THE HOUSING SYTEM ITS SHOCKING
SO SORRY IVE WENT ON AND ON BUT ,AS I SAID I DONT SEE ANYONE FROM DAY TOO DAY UNLESS , ITS I NEED MY SISTER TOO STAY , AND SHE,L COOK MEALS SO I CAN MICROWAVE THEM ONCE A WEEK THATS IT FOR ALL THE YEARS IVE SPENT MY YOUNGER LIFE CARING FOR THEM, I ALSO THINK BECAUSE IM UP ON A STCK NOW,I TALK BETTER IM FINE BUT IM NOT ,
I had a minor stroke 7 yrs ago and I am very great full to be almost back to normal, the only things it left me with is altered sensations which is progressive started just in my left hand and now is affecting my arm shoulder and half way down my back, a very gentle touch can send me into tears it feels like millions of knives being jabbed in me the tiny fingers of a baby's touch is the worst pain ever but if a hand is put on me firmly I am fine, I also find hot and cold a problem every thing is very hot or very cold on all the same areas. I am telling you all of this as I work with a lot of stroke clients that still live at home and many times my symptoms have helped me explain to family members,a scream when touched (but we are so gentle) or shout its burning me (when water is normal temp) so if your loved one cant tell you and gentle hurts be a little firmer or if water feels right to you make it a bit cooler it really is a horrible sensation and it must be hell not being able to tell someone that they are hurting you when you can't speak (and many family members feel helpless ) thank you for reading x
Thank you for this info, my dad had a stroke on Sunday and he is doing really well, this illness is strange to get my head around and everyone's stroke story is very different, no everyone is left with the same things to deal with and I feel frustration is a big part of this for both those who have suffered the stroke and the people around them. Thank you for taking the time to write
My partner Trevor of 35 years in August had a bleed to his brain 3 years ago now and he had a slow recovery ,fed with a peg ,poor speech and his left side was not good . He was sick so much as the bleed had effected his balance and cordination . The Bleed was in the Celeral bellum brought on by high blood pressure . We 3 years on he now drives and has patches to comact the sickness and medication for other symptons that he has been left with . He has very bad reflux and often can choke ,very frightening to watch ! I look at him and think well done look how far you have come . He cannot see it as when he was in hospital and care for over 6 months he was looking out and had no idea really what he had been through . My story to his is completly different as i saw how bad it all was ...
I now reflcet on it all and have another struggle with his changes in personality, he can be aggresive and nasty too me .. its always my fault ,he constantly repeats himself and if you dare say "yes you told me" he hits the roof . If i pull a face he screams at me and get very angry . He tries to do things in doors, but as he has only really one hand he can use and thats not great he gets so frustrated .. i am at times at my wits end in trying to cope with the way he is now . I have read so many stories today and realise this is not just happening to us ... and its helpful to share with you and know you understand thank you ...
I had my stroke in May 2012. Paralyzed my left side for a few days, still, not right. It can be frustrating, but I HAVE TO keep trying, no one can help because, in my view, that defeats the purpose, of working at "getting back to normal". I feel that I need to set a new normal, because I have been so affected by the stroke. I often just want to scream, "Just leave me alone!"... be normal! Try to discuss it while everyone is calm. For example, I had some hearing issues, and I made sure that we had a clear phrase, 'repeat that', which meant just that, not that I did not understand. Layout some guidelines, together during a calm time.If Trevor says "frustrated" then you know what's up and he knows you want to help, but doing nothing is the real help that Trevor wants. Good Luck, brain damage is hard to work with.
It sounds like Trevor has done really well recovering from the haemorrhage in his cerebellum and you are being very strong assisting with his care.
It is common that an injury to this area of the brain causes problems with balance and feelings of seasickness. Has he had any physiotherapy?
Perhaps an exercise program will help to focus his energy and help him to be more positive about what he is able to do - rather than what he is not able to do. Ask your GP for a neurological physiotherapy referral.
Perhaps an occupational therapist who specialises in cognitive beahvioural therapy would provide advice about how to cope and manage his personality chances post-stroke.
Stay positive and best wishes.
Sorry to read about the problems both you and your partner have been experiencing. My mother suffered a major stroke, resulting from a bleed in the brain, and I have to say her behaviour subsequently changed.
If you concsider your partner is having problems with his memory it would be a good idea to get him to see his GP, which explain part of his change.
Hope this helps
Possibly you may be able to assist me in any kind of way.
My Father (59) had a 2nd stroke in April last year, at the time he lost his short term memory, actually he lost all memories from the previous 5 year, at the time this put a great stress on the family as we lost my Gran a month before. Anyway, as the months past my Dad slowly got better,
Now if you did not know him, you probably would not think anything was wrong with him as he looks great, takes pride in his appearance and he still wants to achieve things in his life.
However, for family members close to him we know something is not right, he is short tempered and extremely aggressive and unfortunately this has now got to the stage where my mother and him are fighting so much that the Police have been called several times has resulted in my Dad being
Arrested, spending 2 nights in Police Custody, and now has a restraining order where he is not allowed back to his house until sometime in May, although that may sound rather scary for him, we have my mother who has been living in fear and walking on eggshells round him for 6+months, as things
Currently stand my mother simply cannot cope with his behaviour, I think she see’s him as the same person, and cannot understand his difficulties. My concerns are my dad has currently left the family circle and is staying with friends who will take care of him, but I feel the path they are will lead to
No good. He can’t seem to understand my Mum has his best interests at Heart, but all his hate and anger is directed towards her.
I have tried to speak with my Dad about his feeling’s and to be honest, the feeling I get is he does not actually know himself why he is angry and getting frustrated, although he acknowledges he has had a stroke, I think it’s quite not there that he is suffering personal turmoil and my Mother cannot
Support him. All my Dad says if she is pushing all his wrong buttons. I find it sad and it’s starting to take a toil not just on my Mum and Dad, but also on myself, sister and Aunt’s.
I have read up on strokes and brain injuries and all the signs are there which are even noted in your website, but we feel alone and require some kind of help to allow me to hopefully sort this.
Any suggestions, or advice would be most welcome and appreciated.
Sorry to read about your parents and the difficulties you and your family are facing. I just wonder whether it would be good for your father to go to his GP to see if he has any underlying medical problems that might be the cause of his change of behaviour. For example, my mother suffered a major stroke after which it became apparent she had both depression and vascular dementia.
Hope this helps
what about going to a counciller .I know of others that have been in this situation with their Mum and Dad, and having seperate meeting first, then as group has helped confront the issues and have allowed all parties to open up ... Your dad says that your Mum pushes all the wrong buttons, and thats the issue your Mum is carrying on as she always has before this happend to him and needs to see clearly how he feels and like wise your dad needs to see what this is doing to your Mum ... having a neuteral person may help ...
good luck and best wishes ,
My mother has recently suffered a minor stroke, and in her case one of the functions it has affected strongly is her internal body-clock. Whereas prior to the stroke she could rely on that clock to know roughly what time of the day it was and what day of the week, now it is telling her that it is mid-morning when it is late evening, or Saturday when it is Sunday etc. This seems to be quite an unusual stroke effect - can I ask:
1. Has anyone else on this forum experienced such symptoms post-stroke?
2. If so, do they have any advice on strategies for rehabilitation?
Thanks in advance for your help.
I'm sorry to hear about your mother's stroke and its odd effects. I had a minor stroke in summer 2010, and it left me with a strangely similar problem. For the first few months after the stroke my sense of time was off, usually by a few hours. That has passed, but I am sometimes left with the sense that today is tomorrow. This off-by-a-day thing was also one of the first symptoms of my stroke. It now manifests itself most often in the late evening when I am tired or early morning upon awakening.
I did quite a bit of day/date/calendar type of exercises during rehab, but this curious problem seems to have stuck with me. Getting back to a daily schedule (I'm a college teacher) helped. Self awareness of fatigue is my main defense; that's when I have to actively second-guess my "internal calendar."