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aphasia

My husband had a stroke nine months ago and is paralysed on his right side. He also has aphasia. The speech therapist is discontinuing his therapy (paid for privately) in a month's time as she feels there is nothing more that can be done. My husband can talk but cannot find the words he wants to say, although we have been doing weekly therapy since he was taken ill. My concern is that it is still early days and that she is giving up too soon. Has anyone else got similar experience? Thanks.

Aphasia

Hello,
I wonder if nine months is a magic number for speech therapy - my husband was also discharged from the NHS SALT at about the same time for the same reason. At that point my hubby had yes/no sorted out, could do our names, was pretty good and copying one and two syllable words and had a good go at naming everyday objects, But none of it was very functional!
That's over two years ago now, since then the progress he has made is massive. He now talks in short sentences, makes jokes with words instead of just facial expressions, orders his own dinner in restaurants and we have conversations which are unnecessary - it's not all about food/pain/needs anymore, we can discuss The Apprentice!
How have we got here? How does anyone really know? He has never given up trying and I've never given up listening to him, even when I'm tired, the dinner is burning, the red lights are going on on Strictly - he gets my attention over anything! There are some things which I think have helped though......
Firstly Predictable app on iPad, we got it through the NHS SALT but it is apparently available for anyone to have. It takes my husband a long time to write sentences on this app but the predicting function helps, playing it back makes him hear where the sentence is wrong and being able to store the sentences means that when we're socialising he can have prepared and so can ask friends questions without pressure.
Secondly, check out http://aphasiasoftwarefinder.org/ - it's a website made by The Tavistock Trust for Aphasia, a British charity set up by the Duchess of Bedfordshire as her late husband lived with aphasia for many years, the quietly fund lots of research into aphasia. On this website they've got lots of different softwares and who they might be useful for - it also tells you which have a free trial! It might be a good idea to discuss these with your seech therapist while you still have her as she should know the right level to start at. But if it's a free trial - you might as well have a go at all of them!
Finally - the big one for me - Research. When we were at the stage you're at now I was in a panic, how were we going to live with this level of communication?????? At the same time, on this forum, City University London were asking for research participants, we replied, took part in a project where my husband had eight hours of speech therapy delivered over Facetime (video conferencing type thing) and we're now on about project number 8, some are therapy, some are for the researchers understanding of aphasia but they're all interesting and have given some purpose to our forced retirement. Every time he takes part in a therapy project I notice a burst in his improvement - maybe it's the therapy, maybe it's practise or maybe it's just an adrenalin burst that's showing in his talking - I don't care, I love it! Depending on where you live it might not be very easy to find research projects but we believe it's worth travelling for, we live in Lincolnshire and travel regularly to London for research and have even done a project at Oxford because it was sooooo interesting. If you're near enough to travel to London let me know and I'll find a link to City (we're going today actually to work on story telling), if not try the UCAS website to find a local uni with speech therapy department and see if they have research projects. It's so worthwhile in so many ways.
So, while nobody can promise progress, it is possible - our life is so different now from two years ago, don't give up!
Take care
Paula
x

Not really sure where to put this...

Hi.
I actually had a pontine stroke about 7 years ago... I'm not looking for advice as so much as just people to talk to; all of my friends have gone AWOL (military term meaning you left and no one knows where you went)
BTW my short-term memory was affected so I might post the same thing a couple of times.
Also I live in the United States so my vernacular may be a little different from yours.

Welcome. Feel free to join in

Welcome. Feel free to join in when you like. (or you can lurk as I often do).
Janet

New and need some advise

Hi

My dad had a stroke three weeks ago, he has lost the movement in his right side and his speech has suffered.
He has been doing so well all the nurse doctors and the team of pysios have told us how well he is coming on, the only heartbreaking thing is dad can't see this himself.

We are all visiting everyday as he is still
In hospital and take him off the ward every day for a break. I understand he is going to be feeling low after what he has gone through and the frustration that he can't do some things now without support.

Just wondered has anyone experienced this with a loved one and what you did to help pick them up.
The last thing is wanting his to go into a depression state

Xx

That happened to me, but I

That happened to me, but I seriously doubt what pulled me out of my funk (a pet duck) will pull him out of his ... A lot of being happy after a stroke is realizing that your life is different and adjusting accordingly. Yeah, you can't do such-and-such anymore and you just have to be OK with that.

Confidence issues

Im a 53 year old male,I had a minor stroke about 3 and a half years ago, although to look at me you wouldn't think there was anything wrong with me, it's mainly when I walk as in my movement at times is poor and I have at times falling over due to tripping up, I have a big problem with even a small curb or even if the path becomes uneven it's like a fear comes over me. I know since the stroke things have improved but my confidence has got worse I've been to the doctors about it but he just doesnt want to know. I don't get any help from the nhs I just don't know which way to turn I know with help I would get my life back. Any suggestions ?

Difficult question

Hi Mrs Boyle,
There are so many points of view on this one - as Janet said, keeping a diary is brilliant for many, many reasons.
Almost three years on and when people tell my husband how well he's done/is doing he hates it - he doesn't want to be able to name pictures on a card and work really hard getting his point across, he wants to be able to speak fast and fluently and with feeling and humour. Anything but a full recovery and my husband wouldn't accept he's done well.
I've given up telling him 'but look what you can do now' - I tell him 'I know, you're talking's rubbish, but it's less rubbish than it used to be'. That then makes him laugh. Everytime, bless him, maybe he's humouring me!
But that's kind of our relationship, we've always teased each other gently over various things that we know deep down we're good at.
I think you have to work out what's good for your Dad. Maybe the attitude 'well you're not going to get better sat there moaning, lets do this exercise'. Or, the dreaded Goal Setting. I see the theory behind how it works, but my hubby wanted to put walking and talking as his goals - I think they're supposed to be smaller, more achievable as stepping stones towards the final aim.
It's just occurred to me, look up Solution Focused Brief Therapy. My hubby did a research project to see if people with aphasia could benefit from this kind of therapy, it's almost a life coaching things I guess, about celebrating achievements and noticing change. Each week he had to tell the therapist 10 things which meant life was going in the right direction. This kind of worked in two ways as he was firstly noticing good things, so he could list them and secondly trying new things that he could then celebrate achieving. Maybe you could try listing Dad's achievements - for him or with him - so he ends up with an achievement log as well as a diary of more detail of how he got there.
Having said that my hubby is very similar to your Dad and doesn't like acknowledging his baby steps of progress, we've never struggled with depression - I think they don't necessarily go hand in hand. It's been really hard for me to learn to let my husband do what he can, not to just take over because it's easier - but by him taking half an hour to do a task that would take me half a minute then at least he has some satisfaction, some independence. For my husband it's really important that he's in control of his life. He's also remained firmly my husband (although he was my fiance to start with but you know what I mean), if I feel down I go to him for a cuddle, he still has to stroke my hair and rub my feet, it's still his job to go without quilt on a cold night. He knows I love him now as well as the version I fell in love with originally - it strikes me that being loved and needed is really important. Think about your Dad's 'jobs' - find some that he can still do some or all of, be creative! I think if you can surround your Dad with love and make him feel useful he's less likely to be depressed even if he is still frustrated with less than a full recovery.
I'm banging on again and I have school uniforms to iron so must dash, but try a bit of everything, see how it goes and with all of Dad's recovery be creative, shake it up and have as much fun as you can. Like Mary Poppins, turn it into a game!
Take care
Paula

Improvement tends to be a

Improvement tends to be a slow gradual process rather than great leaps forward. You could keep a diary detailing what he is able to do and any changes. Then in say 3 or 6 months you can point out to him exactly how things have changed.
Best wishes
Janet

my gran

Hi my gran who is 84 years old has had a stroke on saturday .
she has lost all movement on her left side of her body and her vision had deterioted as well.
my gran is still able to verbally communicate with us however she doesnt think she has had a stroke as she feels fine in her self except feeling very tired. is this common after a stroke?

after a consultation with the consultant today 22/10/2014) we have been told that she has developed pneomonia and is back nil by mouth. we have been asked if we have talked about to resus her if it came down to the worst.has anyone experiences simular story and if so has your family member come out of hospital.

im really worried that we are going to lose her, my gran is the world to me and i dont know how myself, my mum and brothers are going to cope if it turn out we are unable to take her home. none of us are sleeping very well either which is hard too.

if anyone could help it would be much appricated.

jacki

mental peculiarity after stroke

My husband, who is 80, had a stroke in Jan this year affecting his left side. He also has cognitive issues, some confusion, lack of concentration etc. In the last couple of months he has started to read books again and recently he spent several hours with his nose in a Dick Francis novel, which i was really pleased to see until he stopped reading and informed me that his name was Derek Franklin (the novel's main character) and was on the run from a criminal gang after the death of his brother. He did not know where he was, although he appeared to find me quite familiar, and said he was waiting for his chauffeur, Brad, to come & get him to take him to London. He stayed in character all that day and refused to go up to bed that night, in case Brad came for him - insisted I put his outdoor shoes and a jacket on him and then sat in his chair, waiting. Fortunately he is not very mobile or he would have carried out his intention to wait outside the front door. He eventually fell asleep and was OK in the morning - phew. He appeared to have no memory of the episode. Since then he has had several lesser but similar events after seeing a tv program or reading about some disaster, war etc. On one occasion he spent 2 days insisting I conserve drinking water because there was going to be a water shortage and on another he woke me in the morning to tell me he had come home in the middle of the night after going into the local polic station to warn them there was a gang of criminals after him and that, as a result I was in danger but that there was a ring of police around the village where we live. This one lasted until about midday. Has anyone had experience of anything similar?

Not exactly like that but

Not exactly like that but sometimes I'll recognize someone but for the life of me I can't remember their name.

hi im new I had a stroke in

hi
im new I had a stroke in march im 48 yrs old my friend has been looking after me since then but it has all become too much for and she wants me to leave I have nowhere to go and no-one to talk to im too upset and don't know what to do next

I'm new

Hi

Sorry to hear your situation, in the first instance I would contact the stroke association support line on:

0303 3033 100

They may be able to offer some support

From a practical point of view it may be worth contacting your GP of local council and ask for adult social services

Remember you are not alone in this albeit at the moment it may feel like it

Julie

My husband is shouting me out

My name is pat my husband had a Tia in April he seam fine after wouldst but this 8 weeks he has got depression and has left are home and is been very cold not wanting to see me I have tried everything to help him but he knocking me back people keep telling me not anything I did but I am so hurt my has he shut me out can anyone tell

I was only 23!

Hi my name is Lorna and I am 24. I have just joined this stroke association because I would love to hear from other people who have suffered from a stroke and are around the same age as me. I had my stroke on the 21st May 2014 and I have felt I have been so lucky that it hasn't affected my mobility. Apparently it has affected the sensory part of my brain which I constantly use as I am a hairdresser. 2 months after having the stroke I went back to work. I was glad to go back as 2 months off just seemed like forever. I only went back part time hours though which were Tuesday to Saturday 9am - 2pm. After a couple of weeks been back I noticed that I was getting more tired and my eyes would twitch because of how tired I was. In the evening I would get home from work and just look forward to going to bed and having a good night's sleep ready for the next day. Only recently I have been getting even more tired and finding it really hard to deal with. Been a hairdresser is a very stressful job and I find it takes me a lot longer to do a task and after it I need a sit down as I feel drained. As of yesterday I've has to leave work again and go back on the sick as I feel like how I felt not long after I had the stroke which was getting things muddled up i.e the time and words, I would put the wrong number or word first. I feel exhausted all the time and all I want to do is rest.. not much of a life for a 24 year old! I would like to hear from someone who has been through what I have been through and could tell me if these feelings are normal and if likely to improve. I would also like advice as to what i can do about the way I feel. Im finding it very hard to deal with and family and friends can't help as they haven't been through what I have been through but are trying as much as they can. Thank you for reading and I will look forward to hearing from you :)

your stroke question

Hi. I am 43 and I knkw that will seem old to you but for a stroke it is very young. I am healthy but had the stroke after a visit to the chiropractor tore an artery in my neck. I had a cerebellar stroke.
I am 9 1/2 months post stroke but it took 8 months to get a diagnosis. I am so stressed, so anxious and so depressd because my old life and career is over. I tried to go back to work but the fatique and brain fog was too much.
everyone has different symptoms and different recoveries but please find a psychiatrist and a psychologist. They can tag team on the emotional problems. This happens to everyone with a stroke, be glad you are alive eventhough its frustrating. I was in exactly your spot, & a little bit of time and finally finding doctors and getting the right treatment I can tell you that things get better.
My psychiatrist is actually the one who recognized brain injury therapy was needed when 2 neurologists kept telling me i was fine. Dont compare yourself today to your "pre-stroke" self because its not realistic. Compare yourself to what it felt like in the hospital right after. Then you will see you are improving.
Find the mental support you need because anxiety feeds the cycle of not healing. when someone told me this I thought it meant that I was making it up and this was all in my head. please no that is not what this means a stroke does damage to your brain and anxiety and depression if part of what has to be treated along with your physical symptoms.

I was 21!

Hi, I'm 24 to & 3 years ago I suffer a major stroke. I had 1 year left at uni when I had the stroke but went back last year to do it part time, over 2 years. I was in hospital for 9 months and decided to take another year out to get myself physical perpared. I'm still in a wheelchair but can walk short amounts, thankful because of our age I'm still improving everyday it's very slow and everyday I wish I could wake up and be my old self. I was really tied for about the first 18 months, but in order to get me back I attent 1 thing, for a few hours, on week one. Then every week I added 1 more thing, this could be anything but talk to your boss and maybe do 1 day one week, then 2 days the next ect. Small steps. Also see if you could do some later shiftes, I find I need time in the morning doing very little before I can start. The feeling you have are normal I still feel the same, and keep remerber what I once had. But my view is I have another 50/60 years of my live and if it takes 10 years to get back everything I had then I have to keep fitting. You more and likely keep how your feeling too your self I know I do but it good to talk, but get it out there you will feel better if others know what your going through.

Good luck
Leah

I was onlly 23-oops

Hi Lorna

Iprobably can't offer much advice because that is what Iwould like myself but Ithink the fact that you are sooooooooo young must be in your favour?

Iwanted to reply to your posting though. Hope you don't mind?

1Wherre do you live?
2) Which hospital did

you attend?

I am not allowed to put my email address here unfortunately

Hey. Thanks for getting back

Hey. Thanks for getting back to me. I live in Stratford in Manchester. And I was at hope hospital in Manchester. They have a main stroke unit. So have you had a stroke then?

7to Hey thanks for getting back to me

Yess Ihad a stroke in Aug. 2013 but IamA BITolder than you and retired. Ilive in between lLoughborough and Ashby de la Zouch and live in Coalville, Leics, Will say more later ok/

Sorry Stetford in Manchester

Sorry Stetford in Manchester

support

We live in Angelsey now after my wife Pearl suffered a serious stroke 5 years ago. Since then she has had a kidney removed when diagnosed with an aggressive cancer.a year ago. So far she has excellent care from The MRI in Manchester and I have become her full time carer. After 12 months of non stop caring I feel that I am becoming "exhausted" and need a bit of regular time off. Pearl can look after her toileting needs and manages minor tasks BUT as soon as I leave her in the house I feel guilty and come back quickly. How have others solved these problems as I am sure that I am not alone in this ?

Hi Tony, sorry hearing this.

Hi Tony, sorry hearing this. Second sorry if jumbled words my two strokes messed up writing reading big time!

Suggest in person support quickly soon possibly can.

From gp, social worker, someone known in care team or help line here stroke association excellent really are!

Despite muddled words I loads experience care world of!

Sounds like urgently quickly get care package sorted acceptable both you plus off time totally free all things you need it!

Yes guilty you'll feel but nobody human being working no break all years no time off!

Time now care yourself! Please do help line fantastic supporting they are!

Tell how get on soon.

Chris

Guilt

Hi Tony,
You certainly are not alone in how you're feeling! I don't know about you, but for me it's a 'sick to the stomach' feeling, pure panic and 'what am I doing'. Even before I go out, I have a knot in my tummy worrying about what might happen.
But, going out is sometimes necessary, so we should be able to do it. Going out is good for us so we should make time to do it. Most important for me, one that had to be pointed out to me and my eyes are pricking thinking about it, going out is my husbands present to me - he can't surprise me with flowers or chocolates any more but he can say that he wants me to go out for a little while and have a nice time.
It still feels completely weird but I am managing increasingly longer and more adventurous trips, but everything is very well planned - as much for my peace of mind as for my husbands comfort and safety.
A really important one for me is contact, my husbands mobile went back to work after his stroke and he's never wanted another - I think there is some concern that he couldn't text anyway - but he knows how to answer the landline. He doesn't normally answer the landline because of his aphasia but if I go out we both write a 'timetable' and agree what time I will call him, he then answers the phone at that time and we can have a little chat - at least if he's answered I know he's safe, if he didn't answer I would need to call a friend or neighbour to go to check......
One time I don't fail to go out is every couple of months when my husband has a pub lunch with his old friend. We started going all together, then I just dropped them at the pub (literally getting my husband to the table!) and picking them up again, now his friend picks him up from home and brings him back and while he's out, I go for lunch with my friends! It took a while for my husband to trust his friend as he's always relied on me so much (you know the silly things like forgetting which foot to use to step up!).
It was a real milestone for us this week - I went to work - I was looking for something on a Saturday as I lose the will to live a bit with football match after football match on the tele. Saturday's are easier as my son's often home and he's plenty big enough to keep an eye on my hubby and implement an emergency plan if necessary. Equally my hubby makes sure my son doesn't have too many girls visit in one go! I think my hubby's going to really enjoy having a bit of time to himself, yesterday he surprised me by having painted my bird table, he said it took him four hours - mostly thinking around the logistics I would think - but it's beautiful and it's something he did for me when it's so hard for him. It means a lot.
Before I go out I make sure that everything's where it should be, I check if my husband wants a 'packed lunch' or anything buying in if I'll be out over a meal time. We have our agreed times for me to ring home (I sound like a teenager!) and I ask him what he might do while I'm out in case we need to prepare anything. I still worry, which is why I call, but he feels perfectly safe which is the important thing and if we are going to do this for the next thirty or forty years then we really do have to get used to working through some of the problems - they won't go away!
The hardest for me is the things we used to do together, things that kind of 'defined' our relationship. We met in the sauna and I can't go to the pool now alone - I tried it once and blubbed like a mad woman. Maybe if I persevered it would get easier but it's kind of lost its appeal. Having tea and cake with my friend in the village tea shop has definite appeal though!
Maybe you could try some of the ideas that I've found have helped me, take it gently at first and perhaps just have a walk around the block. Try a bit of brainstorming yourself, I think as stroke survivors and carers we learn to be really creative in finding ways to live, we sometimes need to apply that to ourselves as well as our stroke survivors! This might sound obvious, but what does your wife think - have you chatted around the subject with her? We always have a little chat after I've been out about how we both felt.
I wish you lots of luck, persevere a bit - there's nothing wrong with you having goals too.
Let me know how you get on!
Cheers
Paula

Cerebellar stroke

My sister had a cerebellar stroke 5 weeks ago and is permanently dizzy and vomits all the time. Her husband has continually requested help from doctors and despite being given sickness pills the vomiting continues. She is losing weight and we are all very worried about her. Her physio was so concerned that she requested she had injections for the sickness which start tomorrow. She has no paralysis or speech problems just this dreadful sickness. Wonder if anyone else has had the same problems and if so how long did it last?

Cerebellar stroke vomiting

Hi. I had this too but my dr. Gave me zofran and meclezine. Helps calm down the vestibular system which is commonly damaged from crrebrllar stroke. This is the inner ear where you body keeps balance and orientation to gravity. Physical therapy is needed to help fix the damage. the catch is you cannot start therapy until you are somewhat under control because you can not take much of the meds while you're in therapy. In the u.s. this is where I found help. Maybe you can use this to find someplace similar near you. Www.360balance.com and www.corehealth.com .

take those drugs like they're candy for a few days to start the calming.

Cerebellar str9ke

Think I would go with her to her doctor and do the very unBritish thing -make a big fuss and DEMAND something is done to help your sister/

random care seemscommon

You have not mentioned in your message anything about your own stroke

hi the reason being I battle

hi the reason being I battle write anything, not all strokes the same and 2 in eight months left me with huge battle. writing reading talking walking balance everything at present difficult extremely !
thanks
Chris

hi the reason being I battle4

Then well done you, You have managed to find,type and post messages on this website. You just can't give up so I hope to hear more about yourself,

Thank you for your recent

Thank you for your recent posting on Talkstroke. I just wanted to let you know that I have edited it to remove your personal contact details.
All posts on Talkstroke are public and can be viewed by anyone, not just people registered with Talkstroke, so for the protection of our members we remove personal contact details.
Regards
TalkStroke Moderator

Stroke Unit/Hospital

could someone please inform me if stroke nurses have ro specialise in that area when they study? It's just that from my own experiences, they don't seem to understand the devastation a stroke can deliver nor how much a stroke survivor wishes ro get back to rheir old selves. Surely a bit of empathy is not a lor to ask?

I remember,a nurse in a stroke ward, where I was the youngest and only one who couldn't see properly, tell me that I was in C hospital NOT C Hotel. On reflection and feeling more capable now (this was in Oct. 2013) I am cross Ididn't report her to the Matron.....................yes there was a Matron/

Hi random care seems common!!

Hi random care seems common!! Not seen stroke nurse!

They would have general training RGN where they might learn something about strokes! Say might as theory not practice for all depends which wards they do!

Might then do other short courses I guess would need to!

Think whole lacking compassion issue is biggest issue and seems lottery -some excellent care others like me -& you to a point none or poor care.

Sad!!

Take care insist help if needed.

Chris

Hi random care seems common

Hi Chris

My confidence was at an all time low when I left the stroke unit after one month. Have I got it all wrong and you are meant to leave Hospital feeling a lot worse than when you entered it? Silly me. I assumed it would help me to feel better. Not being used to staying in a hospital, I thought the nurses would have the empathy,kindness and general skill necessary for the job/profession. In fairness, the locals did not seem to be as suited to the job as those from further climes and of different religious persuasions and seemed more cliquey if I think about it. Where are you based in the uk by the way?

oh dear sorry hear this. I am

oh dear sorry hear this. I am in SW region. been 100% nightmare of year so far!
how you now?

No I don't think it's a stroke......

I had a similar experience two and a half years back. Definite stroke symptoms, tingling, intermittent numbness, difficulty walking, out of breath, plus seeing stars in my field of vision at times. Went to Doc's told I had Anaemia,cue blood test, - severe iron deficiency anaemia, cue three units of blood, felt fine for one day then, vertigo, pain in head, vomiting, this on a Friday night, spent night with pains in both arms, then left arm went numb, went to A and E on Saturday teatime (husband took me in the car) and, eventually, two days later (our local hospital did not do scans on a Sunday) got ct scan. Informed it was two strokes. Was on an ordinary ward not a stroke ward. Seen very briefly by Stroke nurse who gave me loads of information leaflets I left after four nights with meds. Now on relevant meds. Arm still numb but mostly regained use of it but feels heavy a lot of the time, Never saw a physio. Got an ambulatory 24 hour check six weeks after stroke and that was it apart from occasional blood tests at docs. Anyway still here and still feeling bloody-minded about it all. Never smoked either. Ha!

Hi. Sorry you've had little

Hi. Sorry you've had little care ! My story -registrar decided I wanted be ill missed mri report had 2 strokes -clot and bleed different places!

Now seeing new team next Monday.

Stay determined -it helps I feel!

Insist care if needed though!

Take care of you, rest exercise when you can and no smoking! Never smoked either!! It's not only "cause" !!

Chris

stroke

i am 52 and last sun at 11.30 am a blood clot travelled to my brain and caused a stroke , my family where told i probably wouldn't make it as my pupils had been fixed from leaving home , the doc went in through my groin and grabbed the clot from the base of my brain , and i woke up ,chatting away to the nurse like nothing was wrong then i saw family crying , nurses hugging and doctors shaking their heads , because i really shouldn't have recovered , let alone fully, i can only thank everyone involved for my amazing care as i also have parkinsons(5yrs), i feel it has given me something back and thankfully not taken anything away , i am truly blessed , there is a lot more to this story , this is just the basic info

Wow! That doesn't sound

Wow! That doesn't sound possible

Sounds unusual !

Sounds unusual !

What should I now do?

communication wanted

I am a young 66year old female who had an ischemic stroke in Spain last August. As a result of this, I now have a few problems and I need to talk to someone who has had similar ones which may now have been resolved……………..or not as may be the case. I have Ptosis of both eyes i.e. the eyelids of both eyes do not open unaided ( have found Steristrips to be the most successful way of doing this). I have vision in each eye but double vision if both eyes are open at the same time as I have a bad squint. This is due to 3rd nerve damage,it seems. I also cannot balance to walk due toThalamus damage.PLEASE CAN YOU HELP?

Travel insurance

Hi Iam Graeme 41,

I had bilateral stroke , I have been lucky , my fitness was high before so hopeful

I need some advice or recommendations for holiday insurance

Any help please

Thanks Graeme

New today

Hi. At 51 with complex medical history had two strokes this year

First one missed had every symptom and sign the hospital said not a stroke!! Second one a bleed.

Doing well considering no treatment or care and millions healthcare errors.

Exhausted, bit emotional week discovering it was two strokes!!

Hope right place to say hello. Not really clear for me right now.

Thankfully determination will help me push forward somehow.

Chris

Hi Chris

Hi Chris

I have just read your post and wanted to reply.
My mum has had 2 strokes, one in 2010 and one a few months ago.
She is also young like you, a 54.
This seems to be the right place to say hello, I just registed today, more so to see what help I can get for my mum.
I know she struggles and doesnt tell me the half of it but I know.
Determination is the one thing you must keep.
Read peoples posts on here and talk about it as much as you want.
Im glad there is a place like this for people to come and talk.
I have sent my mum the link in the hope she will come on tooand have a browse to realise she isnt on her own.
xx

HI Chris

Dear Rebeccalou84

Hello! I have only just registered too, hoping to get in contact with people/persons in similar situations. I am now really fed up and just want things to get "back to normal". My husband is struggling too though he would never admit that.

Thank you for your recent

Thank you for your recent posting on Talkstroke. I just wanted to let you know that I have edited it to remove your personal contact details.
All posts on Talkstroke are public and can be viewed by anyone, not just people registered with Talkstroke, so for the protection of our members we remove personal contact details.
Regards
TalkStroke Moderator

Thanks. See another

Thanks. See another consultant Monday results last scan etc then! Trying hard. Hope mum -your mum doing ok.
Chris

hello

hi chris and glad to hear your doing reasonably well! I know where your at,i think! had a/f for four years then a stroke in april this year and still im mystified by it all. as for health care....had stoke on Friday,hospital,then chucked out first thing Monday!! still seeing a neuro therapist and physios and next week off to orthotics to get my foot working again. I too get tired still,so my advice to is when your tired,whenever or what ever the time is,sleep. its the brains way of healing itself,thats what im told anyway.
be strong,its a long road but you will get there
simon

Hi Simon, thanks. See new

Hi Simon, thanks. See new consultant Monday afternoon! Had recent mri see changes etc if any since strokes. Been nightmare first consultant team rather useless admitted their errors!
Yes I'm learning ways cope and slow progress better none!!

Take one day at time.

Chris