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New Stroke Association website & forum

Hello everyone.

I'm Caroline, the Head of Marketing and Digital at the Stroke Association.

Apologies for interrupting any discussions you may be having, but I have some exciting news I want to share with you all.

Some of you may recall a request Matthew, our Website & Digital Manager, placed here in TalkStroke last year, asking for some input from you to help shape our new website, including a new and improved TalkStroke forum.

Well, we’re delighted to say that this new site will be launching in just over two weeks on Wednesday 8 April, and it will be a vastly improved Stroke Association site built on the back of yours and other users’ thoughts and feedback. Thank you!

As is the case with other parts of the site, the TalkStroke forum has been redesigned too and will start afresh.

What this means is that TalkStroke will cease to exist in its current format and the new version will have a lot more functionality that you’ve been asking for.

Not only will TalkStroke be better designed and more user-friendly, you will now also be able to:

~ create your own personal profile with an individual biography and photo
~ send private messages to other forum users
~ create individual topics within wider categories, making it clearer and easier to follow a conversation
~ ‘like’ your favourite posts
~ report inappropriate posts.

To access the new TalkStroke on 8 April, you will be required to re-register your details on the new forum. Please take a few minutes to sign up to the new forum so that you can continue to be a member and make the most of all the new features (you’ll be able to create your new account by following the simple instructions we will post on the new TalkStroke homepage when the site launches).

Once you have created your new account you will be able to add your personal bio and photo, which other users will be able to see, as well as select your preferences with regards enabling private messaging or receiving email notifications whenever someone has replied to one of your posts.

Having a new forum does mean that past conversations will be lost in transition. If there are any particular conversations that you don’t want to lose, please let us know.

In addition, we’d love to know what topic categories do you think we should have in the new forum? I can see that most posts get placed under Rehabilitation, Carers and About stroke.

Are these meaningful categories? What others would you like to have? Are there any topics that you would like us to create so that they are waiting for you from the first day?

We’re really keen to get your feedback to help continue the development of TalkStroke before we launch and look forward to your response. You can contact us via TalkStroke or by email on

Many thanks for your time and we look forward to talking with you.

Best wishes,

Hadrian's wall Trek

Hey guys. On the 17th July, me and some mates are going to be trekking the 84 mile length of Hadrian's wall in aid of Stroke Association and Cancer Research UK. It would mean a lot if you could donate or share the page around.

The money raised goes to two incredible causes which have done an incredible amount of good work in pioneering new treatments.

I am undertaking this trek in memory of my Nan and Granddad who sadly passed due to a stroke and my friend who is also taking part in the trek lost his father to a stroke.

Thank you for taking the time to read this and I hope you donate or share.

Scafell pike climb

Hi guys,

My mum unfortunately suffered from quite a bad stroke in March last year, however she still lives to tell the tail.

The support we received from the Stroke Association has been incredible, they have been there not just for practical issue but also emotional, they were there to talk to!!!

Thats why me and my friend have decided we are going to climb Scafell Pike (highest mountain in England) to raise money and awareness, so we can at least attempt to return the favour.

We'd appreciate any donations and word of mouth.

The link to donate is

Many thanks


It's good to know that there

It's good to know that there are people willing to help and raise awareness against stroke to save each others lives.

Dead Man Running! Great North Run 18Months on!

Hi everyone. Only my 2nd post.
18months ago I suffered a stroke aged 43 which was caused by a huge arterial bleed from a ruptured AVM.
Doctors have since informed me that I should technically have died on the spot and that "I dodged a bullet" or am a "dead man walking". All pretty grim reading but thabks to a swift response to a helicopter medevac and neurosurgery within an incredible 30 mins, I am so proud to be fundraising for the stroke association next weekend by taking part in the Great North Run
I'll be running alongside my wife as I'm still facing challenges caused by loss of vision.
My career as a 747 pilot and ability to drive has gone but determination to beat this thing has not.
My/our story has curiously been picked up by the BBC who will interview me after the race.

My donations currently sit just under an amazing £3000 in no small part due to generous donations from fellow BA pilots.

I would be so grateful if you take a moment to read our story and donate just a few pounds to this incredible charity.

Thank you.

communication wanted

I am a young 66year old female who had an ischemic stroke in Spain last August. As a result of this, I now have a few problems and I need to talk to someone who has had similar ones which may now have been resolved……………..or not as may be the case. I have Ptosis of both eyes i.e. the eyelids of both eyes do not open unaided ( have found Steristrips to be the most successful way of doing this). I have vision in each eye but double vision if both eyes are open at the same time as I have a bad squint. This is due to 3rd nerve damage,it seems. I also cannot balance to walk due toThalamus damage.PLEASE CAN YOU HELP?

Fundraising ,


Not sure if this is the right place to ask this

I am doing a charity bike ride in the new forest for the Stroke association but keep getting asked if i have sponsorship form - can the stroke association issue me with these forms - i have set up a just giving page but people want to sponsor in cash?

thank for any help


Sponsorship form

Sorry this is a late response but if you haven't already found one, you can email stroke association fundraising events team (email address found in the contact us section) and they will email you a sponsorship form. They may also be able to provide a T-shirt to wear for the event.
Hope this helps.

Three Peaks challenge

On the 13th September. I am taking part in the Three peaks challenge in which you trek up GB's three tallest peaks within 24 hours.The trek is sponsored, any donations will go to stroke association(UK) and will be gratefully received.
I am completing it in support of my grandma who suffered a stroke a few years ago and in memory of my nan Ada Moss
My fundraising website is

Step Out


My husband suffered a stroke in October 2013, he was only 43 and it occurred totally out of the blue, but he was very lucky as it occurred in front of me and within seconds I realised what it was and immediately dialled 999, so within 15 minutes we were in the hospital and he was receiving treatment, he is now fully recovered and back at work. We are Stepping Out on Friday 30th May at Stewart Park in Middlesbrough and have raised over £250 up to now and hoping for more before the day, really looking forward to the event, we want to give a little back for all the support we have received as a family xx

Lincoln Step Out for Stroke

I'm slowly recovering from yesterday's Step Out for Stroke in Lincoln. It was a lovely, sunny day and it was great to see purple everywhere!

As well as raising a bit of money for the Stroke Association I wanted, more than anything to raise awareness of Stroke - its profile doesn't match its devastating effect on peoples lives. After some thought my friend and I decided to Step Out three-legged style, in recognition of how difficult walking can be after stroke. I'm really chuffed that we managed five laps, as we'd hoped, before time ran out - but also so pleased that people were interested in what we were doing, many people learned something about stroke in Lincoln yesterday.

I learned something too - I have watched my husbands battle to walk after his stroke in 2011, so I know something of all the different muscles needed to walk normally. But by walking tied up to someone else I learned of unexpected muscles, my ribs even ache this morning! It was also very clear that just changing one small factor - having my leg tied to my friends - everything about my walking changed, I was slower, unconfident and very wobbly! I have massive respect for all those stroke survivors who manage to get back on their feet - it cannot be easy!

Good Luck to all of you who are Stepping Out in other event around the country, I hope you enjoy it as much as I did. For anyone considering it, I would highly recommend it, there was such a diversity at Lincoln I do believe practically anyone could take part!

Problem with step out for stroke website

Hi I was trying to register all 5 of my family for the step out for stroke event in Kings Heath Park, Birmingham but it seemed to crash before I could get my payment details in. Ill check back tomorrow but just thought you should know.

We can help

Thanks for letting us know of this. We're sorry to hear a page crashed before you could complete your payment. 

If you want, you can contact the Step out for Stroke team via email or the hotline 029 20524426. I know they will be happy to help.

Many thanks for your support,


Friendship Dances

I am adding a point concerning Fundraising Dances. If there are several square dance clubs in your area (you can check on it would be possible to run a Friendship Dance for those clubs to get together. There is a Calendar of Events on the website so that dances don't clash. Money can be made on tickets (most square dancers expect to be asked for pot luck then pay about £3-£4 on top), a raffle, a tombola and stalls selling dancewear or square dance records. It is essential to state the level of the dance in all publicity and most are run at Mainstream and/or Plus level. Callers can be found via the website.

I am appreciating such a good

I am appreciating such a good stuff and Marathon race are really helpful about future however Half Marathon Training Tips for those people who wanna participate and coaching for marathon race.

Trentham Gardens Car share

My lift to the race has fallen through for the Trentham Gardens Resolution Run. I was wondering whether anyone near Crewe would be willing to car share to the race? I'm happy to contribute to petrol funds.

Step out for stroke

Hi I was wondering what size the small t shirts are I have mine it's a medium but was wondering if you did children's sizes so I could get one for my daughter she will be walking with me on the day and my reason for doing the event thanks

Emma :)

Hi Emma We do a child size

Hi Emma

We do a child size (age 7/8) it is quite small. If you would like one please contact the Step out for Stroke office with your conatct detaisl and the event you are participating in.

Kind regards

Step out for Stroke team

Virgin London Marathon


Does the Stroke Association have places in the London Marathon 2014? How much are runners expected to raise for their chosen charities? I did the GNR, a Resolution Run and a Zip Wire for the Assoc and have done a few more half marathons and after watching the event today I am considering applying for next year. I would like to run for a 'good' cause and whilst the Assoc is close to my heart due to my mum, it does concern me that until I 'sign' on the dotted line I wouldn't know how much I would be expected to raise.

Does anyone know?


Hi Ali Thanks for your

Hi Ali

Thanks for your message. That is fantastic that you are considering running in the London Marathon 2014 for Stroke Association.

Stroke Association do have a limited number of guaranteed places in the 2014 event.

Our Gold Bond Application process will open towards the end of this week and will stay open until 01 October 2013.  You will be able to submit an application at Successful applications will be informed in October and will receive written confirmation. Unsuccessful applicants will be placed on a waiting list in case a place becomes available.

Due to the amount of applications we receive, all applications will be subject to a selection process. Shortlisted participants will have a telephone interview before a decision is made. Places are based on strength of application, so we will ask you to include as much detail as possible. We want all participates to pledge to raise a minimum of £2000 (not including Gift Aid).

I would also strongly recommend you apply for a place in the London Marathon ballot on the 29th April. If you are lucky enough to get a place through the ballot you can still be part of Team Stroke, however there would be no minimum sponsorship target. Applying through the ballot doubles your chances of getting a place.

If you have any questions at all about any of this, please let me know. Thank you once again for wanting to support us.



Fundraising Dances

I have many years' experience of fundraising activities including organising and running dances. I have therefore put together an information sheet, which I am happy to email to anyone, entitled Fundraising Dances. Just contact me with 'Fundraising Dances' in the Subject field and I'll send you a copy:

Hello ladies and gents, I

Hello ladies and gents,

I have signed up to a 10K run around eton dorney lake in May. Training hard in the cold weather.

Does anyone have any tips for fundraising? I haven't been very successful on twitter so far.

You can view my link below.



Our fab DIL

This morning our Lovely dil Mandy told us that she is going to do the Bupa Great North Run in May 2013.

Mandy is hoping to rise money for The Stroke Association
As my husband Eddie stuff a serious stroke in October 2011.

Any help or advice for Mandy would be very helpful. Also if people would like to sponsor Mandy near the time. All would be gratefully received.

Thank you.

Eddie, Jane and Mandy Thomson x

Runcorn Bridge Zip

Hi I've just signed up to zip wire from the Runcorn Widnes bridge on the 25th November. Has anyone else?


How did you get on? Did you

How did you get on? Did you do it?


Walking the West Highland Way

Hi, My name is Steve, I am 33 and live in Faringdon near Oxford. I am going to walk the West Highland Way (96 miles from Milngavie, near Glasgow, to Fort William in the Highlands) in 6 days during September, to raise money for the Stroke Association. My Nana is the inspiration for my walk, having suffered with multiple strokes over the past few years. She has battled bravely and is still fighting hard, but I want to do anything I can to support this cause. I have set up a blog to track progress through my training and the walk itself. Feel free to follow me at the link below:

Thanks for reading Steve

your post

Dear Steve,

It was really lovely to read your inspirational story, and thank you for thinking to fundraise for The Stroke Association. It was also really interesting to see the progress you have made in your blog.

We have had to remove part of your post, which lists your JustGiving link, due to this not meeting our Talkstroke Terms and Conditions. Please see below for the relevant section of our Terms and Conditions:

“Donation and fundraising requests are not allowed on TalkStroke these should be confined to appropriate sites such as JustGiving.”

The reason that we have had to do this is because Talkstroke is designed as a way for people affected by stroke to share their experiences and offer mutual support. Although your stroke journey does share your experience, we are unable to list any links for fundraising within the forum at this time.

Perhaps you could join The Stroke Association Facebook page, as you are able to list your JustGiving information on there.

Many thanks,

Talkstroke Moderator


u must hve had a great recovery well done!(wats the secret? lol) for those of us who can barely walk the room 96miles sounds amazing, id settle for as far as the corner shop! well done to u congrats and all the best with yur walk lyn


u must hve had a great recovery well done!(wats the secret? lol) for those of us who can barely walk the room 96miles sounds amazing, id settle for as far as the corner shop! well done to u congrats and all the best with yur walk lyn