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Prevention and risk factors

Discussions on maintaining a healthy lifestyle and managing the medical conditions that are risk factors for stroke.

Playing Sports

Dear all

I am 42 and suffered an Ischaemic stroke in June last year whilst playing cricket. It wasn't an easy recovery but improvement just seems to have kept on coming thankfully. Physically I only have minimal left side weakness which is more like aching and quite a bit of dizziness/giddiness. Living in Scotland I find it hard to find advice regarding playing my beloved game. I wondered if any one could let me know whether I am taking too much risk in trying to play cricket next month or whether in fact I should be aiming for plenty of exercise and maybe even more vigorous exercise. As you might guess I also have a bit of a mental block about cricket as the stroke occured whilst playing. If anyone has come across fellow unfortunates who have returned to playing cricket or other sports I would be very interested to hear from you?

Any advice or comment is most welcome,

eddie

Sports

Could you try a different sport that requires similar skills? For example, baseball or softball, rounders or stoolball. Softball would probably be the safest of these.

Any advice or help to prevent a reoccurance

Hi all

My Father has had 2 mini strokes in the past week - the first affecting his legs last Wednesday which is now back but still a little wobbly and today's affecting his right arm. Both times it was the right arm which went first - no impairment of face or speech. He didn't call an ambulance the first time last week as didn't want to bother anyone but today called them and they were there in 5 mins.

His first stroke which was a bigger one happened 27 years ago and just age 40. He also had a TIA last January (exactly a year ago before last weeks to the day).

He's had tests upon tests, he's aged 67, very healthy, never ever smoked, doesn't drink, eats sensibly and exercises regularly. The one last year caused his eye sight to be affected which came back within about 6 months. We've had numerous CT scans, blood tests, Doppler's (?) and apart from the damage caused last year by the TIA nothing is showing.

The Consultant today there is nothing more they can do as they beleive it's in the small vessels of his brain which they cannot see or control. He's already on a pile of meds and from last week back on Aspirin for a month (he was on these since his first stroke but taken off last year).

They say there's nothing they can do and to just keep active and doing what he's doing.

Anyone else have a similar experience or any advice/guidance to help prevent further mini strokes.

Thanks

Laura

cerebral small vessel disease

cerebral small vessel disease

I have SVD this normally would show up on both MRI and CAT scans.

To assist me my Consultants changed my anticoagulant to Pradaxa. Also I have oxygen 3 hours at lunchtime at 8 Litres a second and overnight at 3 litres a second. They also prescribed a medication called Maxalt.

I have found the above has made a difference; albeit the above does not cure SVD it just makes it easier to live with.

Kind regards & best wishes for future.
Tim

SVD "cerebral"

cerebral small vessel disease aka SVD

I have SVD this normally would show up on both MRI and CAT scans.

To assist me my Consultants changed my anticoagulant to Pradaxa. Also they put me on oxygen therapy for 3 hours at lunchtime at a highrate of 8 Litres and overnight at a therapeutic rate of 3 litres. They also prescribed a medication called Maxalt.

I have found the above has made a difference; albeit the above does not cure SVD it just makes it easier to live with.

Kind regards & best wishes for future.
Tim

Dear Laura Sorry to read

Dear Laura

Sorry to read about your father. From what you write it appears that he is a similar case to my late mother, who suffered from small vessell disease. This is what I believe the Consultant was trying to explain to you, and as he/she said there is no cure for this. However, there is hope because the way they seek to control the effects of this disease is basically by controlling a patient's blood pressure. This can be done using a combination of medication and having a healthy life style, which your father does.

Therefore, the message I am trying to get across is to simply encourage your father to try and lead as normal a life as possible with little or no pressures. My mother may on occassion get frustrated and I was just there to support her as much as possible.
Hope this helps,
Frank

Hi Frank Thanks for the

Hi Frank

Thanks for the response. Not sure whether I was pleased or not as like you say there is no cure which I suppose is what everyone wants.

But at least we know it's controllable and hopefully can control it for as long as possible to lead a normal life. He's a person that does worry a lot about things so hopefully we can make sure we limit these as much as possible.

How long did your Mother suffer with the illness? I'm hoping we won't be visiting the hospital again for at least a few years (well apart from next week when he needs to go in for a 24hr ECG).

Thanks

Laura

Hi Laura Just read your

Hi Laura

Just read your reply.

My mother suffered from small vessel disease for many many years. I cannot recall the exact timeline but I would say it was in excess of 20 years. But as you will appreciate everyone is different and I do not know whether this is a normal timeline.
Regards,

Frank

Is Having a PFO closed important if so why am I still waiting?

Hi

Feeling pretty low at the moment. Had 2 full strokes since 2007 (I was 32 then) and various TIA's.

After seeing a 2nd consultant as the 1st gave up, he got the contrast echo done which showed a pfo and then the test with the camera down my throat to show a better picture. Well this was done 2010 september and my consultant referred me to Manchester Royal for closure. Due to him now finding this he put my appointments to 12 monthly. I saw him Oct 2011 and he assumed I'd been seen and had the closure, told him no. He wasn't happy at all and wrote to them. I was seen then in November 2010 at manchester by a registra as the main man was on holiday. He was very negative, told me it wouldn't prevent me having another stroke, wouldn't cure my migraines, my tiredness and generally my life. oh he also asked who and why i'd been referred (as it turned out they'd lost all the paperwork). He told me they would have to ask for the test results as they didn't have proof and I should give them until January the latest to do this (Jan 2011). I gave them alittle longer and rang them, apparently they hadn't requested the info, so I rang my consultants secretary who faxed through the details needed and got them to confirm they were received. I gave them 2 week as suggested, tried to ring Manchester, no answer, rang my consultants sec she got hold of someone who said that they were waiting for the Prof to come back from hols and give them a couple of week. Tried various times after that and couldn't get hold of anyone at all at manchester, my consultants sec tried and had the same problem. In the meantime I ended up in hospital 3 times, 2x with TIA and 3rd suspected pnemonia. My consultant wrote then another letter stating he was very concerned as I still hadn't been seen and that I'd had further TIA's. This was ignored, we tried again to ring with no joy. March came and my consultants sec said I should consider a official complaint, so i thought instead would contact PALS at Manchester which I did, they tried for 2 weeks to get hold of someone in the department and even they couldn't. Eventually they got hold of someone, who said they hadn't received the details of test (which is total rubbish as previously they'd said they had) but would put me on the list for closure. I am still waiting. Seeing my stroke consultant on the 11th oct for my yearly check and he'll assume the same again I know it.

To be honest I really don't see the point in having it done, if I can have all them things happen to me and still not in they're eyes as been a candidate for help why should I bother.

Oh yes I have 4 (18, 15,13, 4) kids husband and had to stop work. don't know what to do really I think someone is taking the mick but who and what does anyone suggest if it is important having done why are they playing with mine and my families lives like this?

Janine xx

SUPA ASPRIN

HAS ANYONE BEEN PRESCRIBED SUPA ASPRIN FOR THEIR STROKE.
THANKS
SCR

Spam

Er how is air freshner going to prevent a stroke
Deal with the spam moderators

dypridamol

or retard as box says i saw consultant neuro 2 wees ago who told me to stop tking this and that it almost always causes headaches!(thatll b it then) it was on my list as a question anyway as up to now hve been told"its brain damage" before u all start chucking this away i do however tke clopidogrel dr said i dont need both(suits me 1 down only 17 to go) lyn

the 2"models" of disability

for those who are unaware this term relates firstly to the medical model(the condition that determines our disability, in our case stroke) the second model is social and in general occurs due to the various"bariers" society imposes that diallows us to live a "normal" life, b it stairs wen unecessary, for those with vip(visual impairment) ensuring wall colours in shops are clearly different from the floor, shop counters(espec tills) being at a gd height for wheelchair users, slowly various disability group's are getting thru to the world at last that those with a disability hve enough to cope with on a daily basis with these barriers a few of u may recall a guy who fairly recently from greece he came to visit my city and we met for a chat and cofee and he said in his country disabled pple are termed"pple with special needs" i think its a nice thought and not as negative as disabled seems to b any ideas, thoughts comments? nice to b bk btw lyn

Pfo closure

Hi all
I'm due to have a pfo closure tomorrow following a fairly large stroke 16 months ago has anyone here any comments on the procedure thanks Roy

PFO closure

Hello Roy
Sorry for the late reply but I have only just discovered this website. I had a stroke in January 2011 and PFO closure in April this year. I had no hesitation in deciding to go for it. If it's possible that a hole allowed a blood clot to get to my brain, not having the operation was never an option for me.
The surgeon was fantastic. The operation only took 15 minutes (once the anaesthetist had got herself sorted!) and I went home 6 hours later.
I was tired but recovered really quickly and finally have peace of mind.
Hope things went well ... Hope you are ok.
Kind regards,
Louise

Pfo

Thanks for reply Louise I have had the closure now with no problems admitted to hospital at 11 am and back home by 7 pm . I have to admit I worried about the op needlessly it was no big deal in the end just left with a huge bruise properly
Because of warfarin aspirin and clopdogril at the same time I've been taken of warfarin now which along with getting rid of a risk factor (the pfo) made me have the op .
Ps they found a ten mil pfo I don't know if that's large or not but may well have caused my stroke Roy

will

b thinking of u roy gd luck(sure u wont need it) but u know watever its better than cva any day tc lyn xx

Pfo

Thanks lyn I've been trying to email you roy

was

surprised id not heard but pc been in shop again in june! tc chin up sure all will b well lyn xxx

Pfo closure

I had PFO closure in Jan without any complication and was discharged same day .

Pfo

Hi were you drowsy after the op I'm also down for same day discharge

pfo

Hi the effect of the anaesthetics was only for a couple of hours after the procedure in the morning. once the scan to check the position of the device and x-ray was okay .then I was offered option to stay overnight or to go home but decided to go home and sleep on my bed

Yes I think it sounds better

Yes I think it sounds better than disabled, and people with special needs covers so much more, and your right it does not sound so negative.

hi

thnx susie this flippin new site! only just seen yur reply, ive been told that world-wide pple are looking for alternative"labels" that are not negative wen i was in regypt they still use handicapped despite being a country to sign up to the un on human rights for those with a disability well before the uk, cant say its a term i much like i spk to pple all over the workld and their attitides are fascinating, espec wen compared to the uk lyn

countrygirl

hi dont log out and you will be able to get back in..
i have to get a new log in every other day.. but it works..
scr

hi

thnx thats not the provlem its me cant find my way round site! and i dont like the fact it no longer tells u wen someone has replied to yur post thnx again lyn

countrygirl

i know i have to check each column in get talking , it says responses but dont know unless you go through the lot is one response is for you or someone else...
cheers
countrygirl...
sue scr i always check the dates at the top the of each column
you are a regular visitor like me...
im still trying to get help with advise on vertibral stroke