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Research projects

 

A forum for researchers to post information about their projects that may be of interest to people affected by stroke, this will also include requests for participants in research studies. If you would like to post about your project in this forum please contact research@stroke.org.uk.

Digital Recovery Tool - Short Survey

Hello!

Stroke Association are developing an online tool to help support stroke survivors and carers in their journey of recovery after stroke.

It is absolutely crucial that stroke survivors and carers are at the heart of it's development, so we can make it the best possible product for them and their families.

Please complete this short survey to help us understand the needs of stroke survivors, their carers and families when creating what we hope will be a very helpful part of someone's life after stroke:

http://www.surveymonkey.com/s/DigitalRecovery

Thank you very much for your input.

Stunning change in AHA direction

New report by American Heart Association informs doctors that
Transcendental Meditation lowers blood pressure

A report from the American Heart Association published on April 22 2013 concluded that the Transcendental Meditation (TM) technique lowers blood pressure, and recommends that TM may be considered in clinical practice for the prevention and treatment of hypertension.

The purpose of the report, entitled “Beyond Medications and Diet — Alternative Approaches to Lowering Blood Pressure: A Scientific Statement From the American Heart Association,” is to inform physicians which alternative approaches to lowering blood pressure have been shown by research to be effective.

After considering meta-analyses and the latest clinical trials on different types of meditation, the report stated that while Transcendental Meditation is recommended to lower BP, there is not enough scientific evidence to recommend other meditation or relaxation techniques.

“This is an important breakthrough in the evolution of medical practice, since it is the first time that the Transcendental Meditation technique has been recognised and recommended for consideration by a national medical organisation that provides professional practice guidelines to physicians, health care payers, and policymakers,” said Robert Schneider, MD, FACC, director of the Institute for Natural Medicine and Prevention who has been the principal investigator for several research studies on the Transcendental Meditation technique and cardiovascular disease. “This type of guideline statement has been what health insurance companies have been requesting for many years.”

The authors of the report assessed three categories of alternative approaches: behavioural therapies such as meditation, non-invasive procedures or devices, and exercise-based regimens. The report did not review diets or dietary supplements.

Part of the impetus for this statement from the AHA came from the patients themselves, who are sometimes reluctant to take medication. “A common request from patients is, ‘I don’t like to take medications, what can I do to lower my blood pressure?’” said Robert Brook, MD, chair of the expert panel that authored the report. “We wanted to provide some direction.”

Meta-analyses referenced in the report found that Transcendental Meditation practice lowers blood pressure on average 5 mmHg systolic and 3 mmHg diastolic. Although this is by some accounts modest, Dr Schneider pointed out that for millions of people with high blood pressure, this reduction may help to bring them into a more normal range or prevent the need for hypertension medication with attendant side effects and costs. Clinical trials have shown that lower blood pressure through Transcendental Meditation practice is associated with significantly lower rates of death, heart attack, and stroke.

“We are gratified that our research demonstrating the efficacy of TM on blood pressure is being recognised and hope that this consensus will result in its wider use in clinical practice,” said C. Noel Bairey Merz, professor of medicine at Cedars Sinai Medical Center and principal investigator for an NIH-sponsored clinical trial on Transcendental Meditation and cardiovascular health.

The report also recognised that Transcendental Meditation is generally considered safe and without harmful side effects. As an additional advantage, the statement noted that many of the reviewed alternative therapies, such as meditation, may provide a range of health or psychological benefits beyond BP lowering or cardiovascular risk reduction.

The report concluded that, “It is the consensus of the writing group that it is reasonable for all individuals with blood pressure levels >120/80 mm Hg to consider trials of alternative approaches as adjuvant methods to help lower blood pressure when clinically appropriate.”

http://uk.tm.org/cardiovascular-disease

Mandel is active with

Mandel is active with promoting the city's arts and celebration scene. He is also an active volunteer with the city's local Heart and Stroke Foundation and with more than a few local Jewish organizations. MCITP Practice Exam

Volunteer stroke survivors needed for research

Volunteer stroke survivors are needed for research exploring the relationship between change in the sense of self before and after stroke (who I was before and who I am now) and the way that this affects adjustment and mood

Who can take part?

To take part you must have had only one stroke, which must have occurred between the ages of 18-65 years. Also, at least 6 months must have passed since the stroke.

What is the purpose of the study?

Research suggests that acquired brain injury, such as stroke, can impact on one’s sense of self, which can lead to significant discomfort and can interfere with successful rehabilitation. It has also been shown that anxiety and depression are commonly experienced after stroke.

This study looks at whether there is a difference in the stroke survivors' sense of who they are now compared to who they were before the stroke. It also explores whether there is a relationship between the experienced difference in the stroke survivors' sense of self and how they feel emotionally, and what might affect this relationship. This will help to inform and improve psychosocial rehabilitation following stroke.

What does it involve?

You will be asked to complete some questionnaires that last approximately 45-60 minutes, including a 10 minute break. The questionnaires will be completed over the telephone, at a time and date agreed between yourself and the researcher. The answers to the questionnaires will be anonymised and kept confidentially.

How can you take part?

If interested or for further information about the study, please contact:

Irina Lapadatu (Trainee Clinical Psychologist)
029 208 70582
lapadatuil@cardiff.ac.uk

South Wales Doctoral Programme in Clinical Psychology
Cardiff University
Tower Building
Park Place
Cardiff
CF10 3AT

Research invite: a study of personality and stroke

I am researching how personality traits affect people’s adjustment to having had a stroke. In people who have not had a stroke particular personality traits have been associated with mood and quality of life. My research aims to find out more about this relationship in people who have had a stroke.

What do I have to do?

The research is done using questionnaires which can be completed online or on paper. It takes about 45 minutes to do. There a number of questions so if you find it difficult to concentrate, you can use paper forms so you can do it at a pace that is comfortable.

What are the benefits of taking part?

While you may not see any immediate change or benefit to yourself or your family, you will be contributing to our knowledge about how stroke affects people. Together with other research, we aim to improve the health treatment and services of others in the future. Unfortunately we cannot pay people individually however every person who participates will be entered into a prize draw to win £50 cash.

How can I take part or find out more?

Any person who has had one stroke can take part. Go to http://surveys.fahs.surrey.ac.uk/Adjustment_to_Stroke_02/ or if you would like to have paper copies, send your name, address and email to me using the contact details below:

Leah Bousie
Trainee Clinical Psychologist
Department of Psychology
University of Surrey
Guildford
GU2 7XH
l.bousie@surrey.ac.uk
Research Phone: 07538 956118

Mental Capacity Assessment / Communication Difficulties

Hello

My name is Mark Jayes. I am a Speech and Language Therapist and a researcher at the University of Sheffield.

I am applying for funding to carry out some research. The research is about mental capacity assessment.

Mental capacity assessments are often carried out in hospital by health professionals (e.g., doctors, therapists, psychologists) and social workers.

Mental capacity assessments are carried out to check if patients understand important, relevant information when they make decisions about their daily lives (e.g., decisions about their medical or personal care, living arrangements, money management).

We know that mental capacity assessment is difficult, especially when it involves people with communication difficulties.

The aim of my research is to develop and test a new tool to make mental capacity assessment easier and more accurate.

The tool will be tested with hospital patients with neurological conditions, including people who have had a stroke.

I would like to know if people think this research project is useful and whether it would help people who have had a stroke.

I would also like to know if people have had experiences of mental capacity assessment in hospitals.

Please post your replies on this forum.

Please contact me if you would like to find out more about this project.

I can be contacted on 0114 2225427 or at cm4mjx@sheffield.ac.uk

Thank you.

Mark Jayes

Measuring health and well-being after stroke

Your experience of stroke is unique. Could you help researchers to help other people following stroke by sparing 40 minutes of your time?

‘Self-management’ means the things that people do to manage their health and well-being.

Little is known about self-management following stroke and how it can be measured. However, 40 people with stroke have told us what it means to them.

Their experiences helped us develop a new questionnaire to assess self-management following a stroke. The questionnaire is called the Stroke Self-Management-Questionnaire (SSM-Q). We hope it will be used to assess self-management for people with stroke.

We would really value your help to test how well the new SSM-Q measures self-management. We would like a large number of people who have had stroke to join in with this research. You can help us by completing the SSM-Q. You can complete it by following the link:

http://www.smart-survey.co.uk/v.asp?i=59347tpkre

The link below tells you a bit more about the study:

http://wires.wessexhiecpartnership.org.uk/video-series/stroke-care/

Many thanks for your interest
Emma Boger
e.j.boger@soton.ac.uk

Investigating Memory and Attention Post-Stroke

I'm investigating memory and attention in stroke survivors 6-months or more post-stroke. The study lasts 12 weeks, participants would be asked to a) complete memory and attention tasks and questionnaires at the start and end of the study b) wear a physical activity monitor at the start, middle and end of the study and c) complete a daily diary reporting on memory, attention, mood, anxiety and sleep quality.

If stroke survivors have a live-in caregiver they have the option to take part. Caregivers would be asked to complete questionnaires at the start and end of the 12 weeks, wear the physical activity monitor the same time as the stroke survivor and complete a daily diary reporting on the stroke survivor’s memory and attention and their own mood, anxiety and sleep quality.

Inclusion criteria: adults between 18 and 80 years, self-report memory and attention difficulties, living within Glasgow and surrounding areas. Exclusion criteria: visual or hearing impairment that prevents hearing or reading or if there is difficulty understanding English language.

If interested please contact me at joanne.cummings@strath.ac.uk. Tel 0141 548 4756

The effect of aphasia on the use of social networking sites.

Hi I am looking for participants to complete a short online questionnaire on the use of social networking sites before aphasia and with aphasia.
Please find the questionnaire here:
https://adobeformscentral.com/?f=TKb3ipWlt%2AUy2yq6eQgS5A

Further information can be found through the link and below.

1) Title of the project:

What affect does aphasia have on the use of social networking sites.

2) Recruitment criteria – who are you looking to recruit to your study?

Adults who have aphasia resulting from stroke.

3) Summary of the study

The aims of this project are to determine whether aphasia changes the way a person uses social networking sites and whether or not it changes how difficult it is to use. It also aims to find out whether social networking could be further used by people with aphasia to enable their continuation of social participation and if any help may be needed from therapists in order to do this.
The aims will be met by participants filling out a short simple questionnaire online.

4) What will the participants be asked to do?

Click the link above that will take them to the questionnaire. This will take no more than 10-15 minutes to fill out.

5) What will happen to the data after the study has finished?

The raw data will be deleted, however the results produced from the data will be written up and read by others such as the marking tutor. All data will be anonymous and there will be no way of recognising the participants.

6) What information will be available to the participants after the study has finished?

The participants will be provided with the researchers email address and are able to contact the researcher for any further information they may require including a copy of the research.

7) Has the project got ethical approval? If so, who from?

Yes – from the researchers dissertation supervisor at Manchester Metropolitan University

Contact details:

Full name: Sophie Lissaman

Institution you study/work at: Manchester Metropolitan University

Email: mmustudent09269940@hotmail.co.uk

Experiences of multiple conditions

1. Has the project got ethical approval?

The study has been approved by the Berkshire Research Ethics Committee ref. 12/SC/0495 (narratives of health and illness). The study is funded by the National Institute for Health Research.

2. Recruitment criteria – who are we looking to recruit to our study?

We want to try and better understand how patients manage their different conditions, and are interested in speaking to people over the age of 18 who have at least two of the following:

• stroke
• COPD
• diabetes
• heart failure
• epilepsy
• asthma

We are looking to speak to people in the Oxford and Manchester areas. In future, this area may be expanded to include more of the UK.

3. Title of the project

Improving the management of long term conditions with the clinical use of Patient Reported Outcome Measures (PROMS) in Primary Care.

4. Summary of the study

The Health Experiences and the Health Services and Policy Research Groups at the University of Oxford are conducting research on the management of multiple conditions. This part of the project is designed to explore the experiences of patients with at least two of the following conditions: asthma, COPD, diabetes, heart failure, epilepsy, and stroke. We are interested in hearing people’s experiences of managing multiple health conditions, and how they feel that their care could be improved. We are also interested in speaking to GPs about their experiences of managing patients with multiple conditions. To receive an information pack with further details about the study and what would be involved, please get in touch by telephone or e-mail.

5. What will the participants be asked to do?

Taking part involves an interview at your home or another location convenient for you. You will be invited to talk about your experiences of living with more than one condition, how you manage these, and how you feel the care provided for people with multiple conditions could be improved.

6. What will happen to the data after the study has finished?

This is part of a five year project. Data will inform the development of an intervention for patient reporting of outcomes in people with multiple conditions. Subject to additional funding and participant consent, some data will also be published on www.healthtalkonline.org, a website sharing patient experiences, collected by researchers at the University of Oxford.

7. What information will be available to the participants after the study has finished?

Following completion of the five year study, the research will be disseminated and accessible to the public.

Thank you for reading about this study. To receive further information about being involved, please contact:

Kate Neal
Department of Primary Care Health Sciences
University of Oxford

Email address: kate.neal@phc.ox.ac.uk
Telephone number: 07775 003928

Sleep Changes, Sleepiness and Fatigue Following Stroke

Hello, my name is Isabel and I am looking for participants to complete a series of questionnaire's as part of my final year dissertation.

My study seeks to find out whether there are changes in individuals sleep patterns, sleepiness and daily activity following stroke.

Taking part involves clicking on the link below, which will take you through 5 questionnaires in order, once completed you will have participated in the study. All information you give will be kept confidential and anonymous.

http://surveys.fahs.surrey.ac.uk/changes_in_sleep

If you would prefer for them to be sent out in the post, please contact me by email.

The study has been reviewed and received a favourable opinion from the Faculty of Arts and Human Sciences Ethics Committee at the University of Surrey.

If you have any questions or would like a questionnaire pack to be sent out in the post, then please email me at: ib00020@surrey.ac.uk

Thank you for taking the time to read this post.

Isabel

Young stroke suffers

I'm writing on here to ask you all a very big favour, I'm a student at South Tyneside college and have being set a research task, the topic I chosen to look at is young stroke survivors. I am trying to find out an average on what age the younger generation is having strokes and what the cause is? this is hard to do without primary research. This is why I'm asking everyone for a helping hand and two minutes of your time! The reason I picked this subject and know about this organisation is because this time last year my mother woke up confused with numbness down her left side, she of course was suffering from a major stroke, it being a hard year and by doing this is helps me to learn what my mother and many thousands of other people are going through. Of course no names need to be left and everything is confidential. Thanks for your time guys. if you do not want to post it on here my email is Lisa115751@yahoo.co.uk you can email me your answers If you prefer that! thanks everyone!
Young stroke survivors questionnaire

1) How old were you when you suffered from your stroke?

2) What kind of stroke did you suffer from?

3) how did your stroke affected you in the long term?

4) What was the cause of your stroke? (underlying medical condition/lifestyle choices)

5) what lifestyle changes have you made since having your stroke?

6) What do you think could have prevented your stroke?

7) Do you think there is enough done to raise awareness about strokes, if not why?

8) Was there any aspects of the care you have received that has affected your recovery?

young strokes

21
ischaemic
left side spacidity,speach, short term memory loss, impaired sight, walking gait
mood swings.
drugs or rispieradol
sence
no 1 thinks it will happen young
clubs r full of older pepole so r adverts
rehab for 6 years has helped

Stroke survivor questionnaire

1. 36 years
2. Embolism stroke
3. It was less than 3 months ago but I have made a full physical recovery. Suffering from vertigo and memory loss now.
4. Cause appear to be pfo and currently being monitored for atrial fibrillation.
5. Stopped smoking, I was self employed physio with 4 kids under 4 so I have decided to take time off work to recover and be with the kids
6. Not smoking would have helped and maybe less hectic lifestyle.
7. Difficult to answer, I'm aware of it because of my profession, but generally perhaps not.
8. No

Experiences and needs of carers of family stroke survivors

Hello my name is Diane Dunn and I am doing a research study on carers experience and needs of caring for a family stroke survivors. I would be extremely grateful if you would like to participate in a questionnaire. The questionnaire will focus on your experiences as a carer, your views of social work support which you may have accessed/received and any suggestions on how support services or professionals could improve in order to meet the needs of carers.

1.Has the project got ethical approval? If so, who from? Yes from Liverpool John Moores University Ethics Committee.

2.Recruitment criteria – who are you looking to recruit to your study?

Adult carers who have or are currently caring at home for a family member who has suffered from a stroke.

3.Title of the project
Exploring the experiences and needs of carers of family stroke survivors.

4.Summary of the study

The study will explore carers personal experiences and needs as a carer. It will explore the various impacts caring can have upon their life and their views on social work support they have had or are receiving. By gathering their views and needs it may help to identify gaps in service provision, which may in turn help to improve support services.

5.What will the participants be asked to do?

They will be asked to read an invitation letter and participant information sheet which explains what the study is about. If they wish to continue to take part in the study they will be asked to complete a short questionnaire.

6.What will happen to the data after the study has finished?

Data will be used in a dissertation however all data will be anonymous and confidentiality will be kept. Once the study has been completed all data will be destroyed. (Approx October 2013).

7.What information will be available to the participants after the study has finished?

They will be asked if they would like to receive feedback of the results of the study which will give them a indication as to what the study found. They would have also been provided with useful contact details of support services which is listed in the participant information sheet.

My contact details:

Full name: Diane Dunn

Institution I study: Liverpool John Moores University

Email address: D.M.Dunn@2011.ljmu.ac.uk

If any one would like to take part in this research please contact me on the above email address.

Many thanks.

Measuring health and well-being after stroke

Your experience of stroke is unique. Could you help researchers to help other people following stroke by sparing 40 minutes of your time?

‘Self-management’ means the things that people do to manage their health and well-being.

Little is known about self-management following stroke and how it can be measured. However, in the first stage of this study, 40 people with stroke have told us what it means to them.

Their experiences helped us develop a new questionnaire to assess self-management following a stroke. The questionnaire is called the Stroke Self-Management-Questionnaire (SSM-Q). We hope it will be used to assess self-management for people with stroke.

We would now really value your help to test how well the new SSM-Q measures self-management. We would like a large number of people who have had stroke to join in with this research. You can help us by completing the SSM-Q. You can complete it either:

- via the internet, or;
- using a paper version (Postage paid return envelope provided).

To complete the SSM-Q, please follow the link:

http://www.smart-survey.co.uk/v.asp?i=59347tpkre

To receive a paper questionnaire pack, or for further information please contact:

Emma Boger

Post-graduate Researcher
Faculty of Health Sciences
University of Southampton

e.j.boger@soton.ac.uk
Mobile 07596 125575
Landline (0)23 8059 8924

Many thanks for your interest

A comparative case study of participants with aphasia

Hi, my name is Holly Shannon and I am a final year student at Sheffield Hallam University studying English Language.

I am basing my dissertation on language and the brain, concentrating on aphasia. Because of this, I am hoping to find participants to partake in several activities that I can then record and analyse. The activities will be along the lines of being shown a picture and describing what can be seen or matching pictures with their corresponding words. The activities are not designed to cause any distress. In doing this, I will be able to analyse the similarities and differences in different sufferers of aphasia and how it affects people differently, relating this to current theories and research in the area.

I hope that focusing my dissertation on aphasia will raise awareness of the condition.

Any participants would be greatly appreciated. I currently live in Sheffield but I am from Warrington but will be more than happy to travel to willing participants.

If anybody is interested please contact me:
Email: hollyshannon02@hotmail.com
Telephone: 07801834623

Kind regards,
Holly Shannon

Do you struggle to notice things on your left-hand side?

Title of the project
Does Repeated Vestibular Stimulation Induce Lasting Recovery From Hemi-Spatial Neglect?

Recruitment criteria – who are you looking to recruit to your study?
We are looking for individuals who suffer from hemi-spatial neglect. This is an attentional disorder that commonly arises after stroke, causing sufferers to act as if the left hand side of their visual world is missing. Symptoms include bumping into objects, leaving food on one side of the plate, and failing to notice people on the affected side. Sufferers are not partially blind (a condition also known as hemianopia) - if strongly encouraged, they can attend to things on the left. The problem is that for some reason, they simply fail or forget to do so.

In addition to suffering from hemi-spatial neglect, our study participants must have no electronic implants (i.e. pace-makers) and have suffered a stroke to the right side of their brain. They must also be 18years or over.

Summary of the study
Our novel therapy involves passing tiny electrical currents through the part of the scalp that lies just behind the ears. The currents are applied via two rubber pads attached to the head. The currents are too small to cause discomfort, but stimulate nerve pathways that project from the inner ear to those parts of the brain that are damaged in people who suffer from hemi-spatial neglect. Conventional treatments do not work very well and, unike ours, are time-consuming. Our study is funded by the Medical Research Council and seeks to show if our new therapy is effective.

Participants will receive 10 days of stimulation plus several follow-up sessions a few weeks later. Although everyone will receive stimulation, some get more than others. Each stimulation session lasts approximately 45minutes during which time you can sit, relax and chat with the researcher. The stimulation sessions run across 2 weeks, Mondays to Fridays only (i.e. excluding the weekend). To date, we have had participants come from as far as Scotland and Ireland! The study will finish in December.

What will the participants be asked to do?
You will need to come to one of our study centres in Kent for the stimulation sessions, although it may be possible to conduct some of the later follow-ups at your home. We do have some limited funds to help pay for your travel to one of our study centres

What information will be available to the participants after the study has finished?
We will provide participants with both detailed feedback on whether the intervention reduced their hemi-spatial neglect, and how much stimulation they received. We will also tell them about the more general findings of the study.

What will happen to the data after the study has finished?
The data from all participants will be anonymous and stored in locked filing cabinets and password-protected computers. The data will be handled in strict accordance with both the Data Protection Act and the guidelines laid down by the Medical Research Council.

Has the project got ethical approval?
Yes, from a recognised NHS body (NRES Committee London – City & East).

Further information
Further information, including a short video, can be found at the following webpage:

http://www.ekhuft.nhs.uk/hemispatialneglect/

If interested in participating then please contact us using the details below:

Full name: Dr Olga Zubko

Institution: University of Kent

Telephone number: 01227 823066

Email address: olga.zubko@nhs.net

Postal address: School of Psychology, University of Kent, Canterbury, Kent, CT2 7NP.

Bowel problems after stroke?

Title: Developing a patient reported outcome measure for neurogenic bowel dysfunction for clinical and research use

My name is Maureen Coggrave and I work as a nurse specialist and researcher. I run a clinic for individuals with bowel problems related to neurological conditions like stroke. I’m very experienced in talking about bowel problems and helping people to manage their bowel.

Summary of the study

Many people with neurological conditions such as stroke, spinal cord injury and multiple sclerosis have problems with bowel function and control. This results in constipation, difficulty emptying the bowel and some times bowel leakage. When an individual receives treatment for this kind of problem it is important to be able to measure how well the treatment works for them. It is also important to be able to measure how well new treatments work as they are developed.

At present we do not have a good ‘tool’ to measure this. This project aims to develop a ‘tool’ or questionnaire based on the views and needs of individuals with the problem. This involves spending time talking to individuals with bowel problems due to neurological conditions and using what they say to make the questionnaire. The questionnaire is then piloted, tested and refined before being published for general use.

The study is funded by a Clinical Lectureship from the National Institute for Health Research, part of the Department of Health.

Who can take part?

I am looking for individuals who have had a stroke at least one year ago and who have some problem with bowel function – constipation or difficulty emptying their bowel, or bowel leakage - due to the stroke.

What will participants be asked to do?

Participants will be asked to take part in a digitally recorded interview about their bowel problem, how they manage it and the impact it has on every day life. This is often done over the phone depending on the location of the participant but can be done face-to-face if feasible.

Has the project got ethical approval?

The study has approval from Berkshire Research Ethics Committee (South Central Strategic Health Authority) and the ethics committee of Buckinghamshire New University

After each interview the information gathered will be made anonymous. The recordings will be destroyed once they have been transcribed. The interview transcriptions will then be analysed to identify common themes and categories which will be used in the questionnaire. The interview files will be retained in a secure place for 15 years, according to current requirements, then destroyed.

A brief over view of the findings of the interviews will be provided next year to all interested participants. Two papers will be published in the medical literature in the coming 2 years, one about the experiences of people living with bowel problems due to neurological conditions and another about the actual ‘tool’. Copies of these can be provided to any participant would like to receive them.

My contact details:

Full name: Maureen Coggrave

Buckinghamshire New University and the National Spinal Injuries Centre, Stoke Mandeville Hospital

Telephone number: 01296 315888 or 07714754603

Email address:Maureen.coggrave@buckshealthcare.nhs.uk

Postal address:
National Spinal Injuries centre, Stoke Mandeville Hospital, Aylesbury, Bucks, HP21 8AL.

Did you struggle to recognise the effects of your stroke?

Hello

I am Madeleine, a researcher from the University of Sheffield.

I am designing a research project about lack of awareness of disability after a stroke. The research will develop a tool to assess this problem.

I am interested to hear from you if you struggled to recognise the effects of your stroke or if you care for someone with this difficulty.

An example of this is not realising you can no longer do a task or use a part of your body soon after having your stroke, for many stroke survivors this is only temporary. I would be interested to hear from you even if you have now recovered.

I am looking for people who might be interested in drawing on their experiences of this to help me to design a research project.

This would involve looking at the summary of the research and discussing with myself whether you think it is important and sharing your opinions about what would help other people in that situation.

If you are interested in being involved and would like more information, please contact Madeleine:

Telephone 0114 2225424 or email madeleine.harrison@sheffield.ac.uk

Your Companion in Stroke

Hello!

I am Kristina, IT project assistant at Stroke Association.

To assist Stroke Association with the project I am working on, we would really appreciate it if you completed this short survey:

http://www.surveymonkey.com/s/strokecompanion

What's it about?

We recently came across some interesting advances in technology which could help you take more control of your life after stroke.

We are aiming to bring you your own online companion in stroke, which can be personalised to suit your needs and interests.

This interactive programme could have all kinds of tools on it to give you support, information and advice any time of the day and night.

Completing the survey will really help us with this project, we can't do it without you!

Many thanks,
Kristina

Aphasia Therapy Over the Internet

I am a speech and language therapist working at City University in London. We want to find out if therapy to help with word finding difficulties can be carried out over the internet, using software such as Skype.

Participants will receive 8 hours of speech and language therapy. We will lend them a computer for the therapy and show them how to use it. We will also carry out some assessments. Sessions will be in the participant’s home.

We are looking for people with aphasia who:

• Have word finding difficulties (but have some speech)
• Had a stroke at least 6 months ago
• Have a friend or relative who could be their partner in the research
• Were English speakers before their stroke (but they can be bilingual)
• Have a broadband internet connection at home.

If you are interested in taking part and would like more information, please contact:

Anna Caute
Tel: 020 7040 8202
Email: Anna.Caute.1@city.ac.uk

Returning to Work After a Stroke

Hi there,

I’m conducting some research on stroke survivor’s experience of retuning to the workplace after a stroke. If you have returned to work after a stroke and would like to share your good and bad experiences, I would be really interested in hearing from you!

Please email and i will send you further details.

christopher.henry@stroke.org.uk

Best wishes,

Chris

Returning to work

I would be prepared to help with this.

Liz

The use of digital (iPad etc.) applications in aphasia treatment

Hello,

I am an undergraduate student of Linguistics at Lancaster University looking for a participant undergoing therapy for expressive (Broca's) aphasia after a stroke.

Participants will need to be using some form of digital application as part of their therapy. This research project is all about gaining an understanding of the effectiveness of digital applications such as iPad apps etc. in therapy for aphasia.

If you have been recently undergoing therapy for expressive aphasia using such applications, or know somebody who has, and are willing to participate, please contact me at the e-mail address below for more information:

Jonathan Dodd

j.dodd@lancaster.ac.uk.

Thank you for your time.

Rehabilitation of the arm and hand after stroke

People who have had a stroke are needed for a study looking into the effects of arm and hand rehabilitation after stroke. The study takes place at the University of Southampton.

Participants will receive 2 weeks of one to one daily therapy (2 hours a day, 5 days a week, Monday-Friday) with a therapist, using the ArmeoSpring rehabilitation system. More information about this system is available on this website: http://www.hocoma.com/products/armeo/armeospring/

Potential participants will need to attend an assessment session at the University of Southampton, to determine if they are eligible to the study.

Participants will also need to attend 4 measurement sessions (2 before and 2 following rehabilitation sessions), which will consist of EEG recordings during reaching movements, and movement tests.

To receive a participant information sheet, please contact Sebastien on sebastien.pollet@soton.ac.uk

Many thanks,

Sebastien Pollet
Faculty of Health Sciences
University of Southampton

Do you have hand function difficulties due to a stroke?

Are you willing to receive 4 weeks of acupuncture, a traditional Chinese treatment involving the insertion of fine needles into the skin, as part of a study?

Amy Din is a University of Southampton master’s degree student, looking for people in the Southampton/New Forest area, who are willing to take part.

Since your stroke do you have difficulty using either of your hands?
Do they feel tight or stiff?

Did your stroke occur at least 6 months ago?

If you are interested in taking part and would like more information, please contact

Amy Din: Tel: 07795436052 Email: aed3g11@soton.ac.uk

Self-help techniques for anxiety

I am conducting a study into whether self-help techniques for anxiety are effective after a stroke. I am interested in hearing from anyone who has had a stroke who experiences feelings of worry or anxiety.

You would need to be able to answer questions about yourself over the telephone once a month for four months and follow self-help techniques from a free CD for a month.

Please contact me on 07504 685463 or at k.golding@surrey.ac.uk to register your interest or discuss the study further.

Katherine Golding, Trainee Clinical Psychologist, University of Surrey

Can botulinum toxin help recovery of active hand function?

University College London's Institute of Neurology is conducting a trial to investigate whether botulinum toxin together with physiotherapy helps recovery of active movements such as gripping, moving and releasing objects after stroke better than physiotherapy on its own.

We are looking for people who have had a stroke to take part. If you can hold a glass, but have difficulty letting go of it, then you may be eligible.

Participation in the trial will involve a single session of injections into your arm, followed by 10 sessions of physiotherapy over 4 weeks, and 3 more assessments after this.

Not everyone will be suitable for this particular treatment. The final decision on eligibility will be made by a multi-disciplinary healthcare team in the spasticity clinic.

All tests and therapy will take place at the National Hospital for Neurology and Neurosurgery. We will reimburse you for travel expenses.

If you are interested in taking part, would like more detailed information leaflets or would like to ask questions without committing to anything, then please call Luci Crook on 020 3448 8758 or email Luci on l.crook@ucl.ac.uk.

Skiing or snowboarding

Dear peterjeff
The content of this post has been removed because it breaks the terms and conditions of TalkStroke.

TalkStroke Moderator

what does this have to do

what does this have to do with stroke?this looks like poor taste in the extreme to me. do you just bombard any old forum with ads ? or do you ever consider ethics?

TalkStroke comments

Dear petecope.

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As you will see we have deleted the post in question as it broke the forums terms and conditions. Our TalkStroke moderators check each section of TalkStroke frequently, so we aim to delete/edit any posts that are not in line with the forum's terms and conditions. I am sorry that we have missed the one you highlighted to us. We will try to make sure this does not happen again.

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