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I had my stroke 10 years ago this summer. I went through several years of rehab, and even tried going back to work. I was a public school administrator, but the state of Texas, which is where I live, decided that I was no longer necessary. Now at the age of 54, I find myself living a pretty decent life. I like to garden, I have a riding lawnmower which I can use even though I am only a one armed man now, and I enjoy helping my friends in any way that I can.
Recently I went back to see my rehabilitation doctor, and he decided to start doing another round of Botox therapy to help my right foot recover. He also decided to start me on another round of physical and occupational rehab. So now, 10 years after stroking, I'm going back to rehab again. I look forward to it.
I just wanted to tell the world that you don't have to give up anything after having had a stroke. Even years later there is still some hope for recovery.
I keep seeing comments on this Forum from people with relatives who need specialist housing, be it a nursing home or just some sort of supported (sheltered) housing. For older people, this is a very good website:
This has been combined with the site originally run as Elderly Accommodation Counsel.
You can search by country, county and borough for housing in your area. Most of the schemes listed are in the public or voluntary sector and both residents and relatives/friends can comment on each place that's listed.
in 2010 i had my bowl removed,septicemia,septic shock,ARDS,epileptic fits.dvt's in the legs 3months in a coma and to cap it all a bleed on the brain(stroke)came out of hospital 61/2 stone in a wheel chair.After 3 years i am still suffering severe memory loss,fatigue and balance issues.The biggest problem is that people look at me and think nothing is wrong because physically i look ok,but i do look drunk if i walk without a stick.If you can't see it there is nothing wrong.I was sub 3 marathon before all this and yes am now on antidepressants as i will probably never run again properly nor can i go back to my old job(hgv1 driver).But who is going to employ a brain damaged 45 year old who has only ever driven a truck and has very little capacity for learning something new.I owe my life to my wife because without her i would not be here.This is as much stress on her as it is on me,she lost the man who went into hospital and my kids lost their dad.WHERE IS THE HELP????
I understand your concerns. I also suffered sizable memory loss, mostly from areas in the left-hand side of my brain. I have been unable to return to my type of work, so now I do basically nothing. I stay very busy, which is what I recommend for you. Find something that you always enjoyed doing when you were pre-stroke, and make a way to involve yourself in it. Perhaps you cannot drive your truck anymore, but maybe you can help new kids learning to drive.
I have read your post and note your comments.
DO NOT GIVE UP HOPE.
We all have different aspects to our stroke
I suffered a TIA in 2006 and realised it was a warning of problems to come. My right arm would not work, but with time it came back.Unfortunately last year I had the real thing and for the first week in hosptal I could not walk, talk,go to the bathroom on my own, and did not know what day it was. Eleven months down the line I am just getting back to normal,more or less.
You do not appear to say how old you are, but I am 69.
I found determination and stubbornness a great help.
I am prearing an article called "my year as a stroke survivor" with help from my speech therapist and am hopeful that when it is finished shortly this website will publish it.
Hang in there Stephen, where there is life there is hope.
thanks for the reply but i am getting nothing back from anyone. when i was in hospital they offered me allsorts of help but i've got nothing. they said i would get lots of physio but no, it's all lies. i got a wheelchair but no ramp. i was in hosspital for 6 weeks ive been home for 5 weeks still no physio, no one comes to see me, i got a wal;king frame thats too small for me and i cant use it. i have fell at home about 5 times, im depressed, angry, suicidal and frustrated. its a joke this country. so you tell me hang in there, there is hope? when is there hope? 2050? i'll be dead then. by the way i'm 54. dont expect to live to 55. my benefits stopped when i went into hospital. i've reapplied but got nothing. im in debt heavly now. there is only one way out of this mess.
I have read your posts and I am sorry to hear that you are feeling angry, depressed, suicidal and frustrated. It sounds like this is a really tough time for you. We are concerned that you are feeling this way and don’t feel you have any help or support. We are here for you if you would like to talk to someone. Please feel free to call the Stroke Helpline on 0303 3033 100 or email firstname.lastname@example.org.
Also, to let you know, I have edited part of your post so that it meet our terms and conditions. If you would like to read these, they are available here: http://www.stroke.org.uk/ts-cs/talkstroke-terms-and-conditions.
I hope you find TalkStroke helpful and supportive.
I HAD A STROKE RECENTLY. IN HOSPITAL I WAS LEFT A LOT. NOW HOME IT'S WORSE. I'M ANGRY COZ MY ARM WONT WORK. I KEEP FALLING OVER AND IT'S A LONG TIME BEFORE SOMEONE PICKS ME UP. I SAID TO MY DAUGHTER "I WISH I WAS DEAD" SHE SAID "I WISH YOU WERE DEAD". NOW, AFTER THE CARE WORKER GIVES ME MY BREAKFAST CALL, I GO BACK TO BED UNTIL ABOUT 6PM. I HATE THIS LIFE, I WOULD HAVE BEEN BETTER DYING. I AM IN CONSTANT PAIN WITH MY NECK AND SHOULDER (FROM A FALL). I CAN'T GO ON. I'M USELESS AND NO GOOD FOR ANYONE. MY DAUGHTER WONT TAKE ME OUT IN MY WHEELCHAIR COZ I'M TOO HEAVY. THEY PROMISED ME A RAMP BUT IT NEVER CAME. WHATS THE USE HAVING A WHEELCHAIR WITH NO RAMP? ON MONDAY BANK HOLIDAY I AM GOING TO TRY GOING OUT MYSELF. I CAN PUSH IT WITH MY LEFT LEG. I WONT SAY WHERE I'M GOING BUT IT'S BETTER THAN THIS LIFE. WHY DID I HAVE TO HAVE A STROKE. I'M ONLY YOUNG. GOD MUST REALLY HATE ME.
I had my stroke in Dec 2012, I was quite 'lucky' so I am told, it didn't affect my spech, the only thing I suffered with was my left side was totally paralyzed, I didn't even know I was having a stroke as I didn't have any of the symptoms as shown on television in the F.A.S.T. advert.
I suffer from complex post traumatic stress disorder, I saw a new doctor two days before my stroke, I had a massive anxiety attack, part and parcel of CPTSD, I woke the following morning with a tingling sensation down my left side, as I had it before and it went away, I didn't take any notice.
As the day progressed I got very tired, I had an early night, on waking the next day I got out of bed and landed on the floor unable to move my left side. I phoned my GP's and told the receptionist what was going on, I did mention I might have had a stroke, but also I had had a massive anxiety attack. I called the GP at 9:00am, my doctor turned up at 14:30.
Since my stroke I have been having quite a number of issues with my CPTSD, also my body, I have the strangest sensation on the left side of my chest, shoulder and arm. My chest feels like I have a rolled up towel under my armpit, the sensation goes from the bottom of my rib cage up to my shoulder, front and back, also on my upper arm. I cannot feel heat on my left hand, the area between my left thumb and index finger, As the day goes on my left arm raises away from my body and my arm gets weaker.
My left leg is ok, I guess, at least I can walk for short distances, but it gets harder the further I go.
Also I take a medication that has made my legs and feet swell up, some sort of reaction from the medication and my stroke, also my weight has sky rocketed, I am now 10 stone overweight, yes I was overweight before my stroke, but I was going to a gym to get it down, but now I am a total disgrace.
I had a fall yesterday when I was getting out of the bath, made a terrible mess, my wife panicked, she has been great, but things are so damn difficult. I have had twin handrails put on the stairs, I have a chair that can be raised and an electric seat to be used in the bath.
I am finding things so difficult, which isn't helping my CPTSD at all, another thing my wife works so I am left alone all day, I find it so difficult to even make a cup of tea at times.
Another side effect of my CPTSD is going out, I have terrible flashbacks so would rather stay indoors where I can hide away from any triggers of my flashbacks, so I am not exercising.
I wonder if you can help me my granddad has recently had a stroke and has lost some of his speech, he is speaking in letters like M and N and O but can say certain words like thankyou, ok and no he can turn very angry when you don't understand and keeps saying he wants to go home.
He is sleeping alot and general up and down. He has mentioned things in the past and gets very annoyed when you don't understand.
I wanted to see if anyone knows what the best way to appoach his speaking what does the letters mean? When he gets angry what to do for the best? When he try's and get out of bed to go home how do we stop this.?
Any help and advice would be great.
Thank you Danielle
My mother had a Stroke in Sept 2011, her speech has been very badly affected. My sister and I do our best to understand her. Things you can do to help your grandad are as follows:-
Get him a pad and pen, if he cant verbalise, he will probably be able to write down what he means.
Talk slowly to him, his brain has taken a big knock, its takes time for the brain to heal.
Have patience, ask him clear and easy questions. Do you want a drink? Would you like Tea? Coffee?, How are you today?
When he gets angry, stay calm, ask him to repeat what he wants to say, starting with the sound of the first word.
Try and not talk at all once. He will find it hard to listen to more than one person at a time. Talk directly to his face, use gestures, movements. Facial expressions can say a lot.
He will be tired, a lot. Respect the time that he wants to sleep. and of course he will want to go home, is he still in hospital? Who is at home to care for him? You need to make sure that things are in place before he leaves the hospital. Make a fuss to the hospital, dont stay quiet and ask questions.
I hope this has helped you.
Hi. I just wondered if anybody can gve me advice about travel Insurance.
I called my previous Travel Ins Company today to get a quote for an annual, worldwide, inc USA cover policy and they said my Stroke (it was almost 11 yrs ago) would be excluded. Well I was confused as they had been told before and had it on their records I had a Stroke and covered me for it but were saying they wouldn't this time but couldn't give me a reason why not.
I tried Saga and Columbus but was denied to. Is this because I don't need to declare my Stroke now as it was 11 yrs ago? or is it because they don't want to insure me? I just feel it's best to let these companies know all previous conditions so if a problem does occur they can't void the insurance. Does anyone else have recommendations of who I could try to get travel Insurance with please. I have a holiday booked for the end of May, so need to get this sorted. TIA.
I am afraid I do not know much about travel insurance. However, I do know the Stroke Association offer travel insurance and you can find further details here: http://www.stroke.org.uk/get-support/travel-insurance.
Hope this helps.
Many thanks for your reply I will take a look at your recommendation.
Is it possible to create my own password as I do on other sites? I really won't remember the random sequence that was emailed to me as a password - is this a glitch, or am I missing something obvious? Thanks for reading.
May I add my comments to those who have critised this site.
I am not that PC literate and it took ages for the "team" to sorted out my inability to log on.
That problem appears to have been resolved, but most websites I visit tell you the name that you are logged on by? This one doesn't, or I am missing something .
Very difficult to access for those trying to recover from a stroke.
Sorry to be critical.
Hi, I too found the Stroke Association website a real life saver when I had a stroke 2 years ago and visited it regularly and made lots of friends.
Since the new website was released the Talk Stroke forum is terrible. When will it be fixed.
I have just had a one time logon because I've forgotten my password and now I cant see how to reset it or tell if I'm actually logged in.
I've lost touch with all the people that supported me and I used to talk to because the site is so hard to use.
Please can you fix it?
I joined this site when I had my stroke two years ago and at that time this site was easy to use and many of the members were able to offer much needed advice the best kind from people who have had a stroke or Tia . Unfortunately they have been discarded and replaced with IMO a pretty useless site full of spam and difficult to use .its clear from the criticism that the stroke community want their old site back STROKE ASSOCIATION PLEASE LISTEN TO US !!!!
I can assure you that we really are listening, and do have plans to make necessary improvements to TalkStroke, and we'll be wanting all your input.
However, as i've mentioned elsewehere on this site, we can not return to the old version of the discussion forum.
As we informed users last year, the technical platform that TalkStroke used to be hosted on was coming to an end last April as the developers who used to produce it for us were stopping support for the whole website, including the forum.
We therefore had to create a whole new website - and as you know, unfortunately the new forum is not working as well as it should, hence why we are committing to making the necessary enhancements.
please, how do I reset my password. I had to say I'd forgotten it to get a one-time logon email. So now I think I'm logged on but cant reset my password to something that I can remember?
Can you email me with instructions please.
Happy to help you, and anyone else who may ever need to do this.
(Dianeseed, you were more than half way to resetting it, so hopefully a lot of the below steps will be familiar to you.)
Please follow these instructions:
What has happened on here, its rubbish these days!!! I used to look forward to getting on here and reading about others that are in the same situation as myself, but now all you get is crap!! There seems to be lots of posting not connected as to what should be on here, admin please sort it!!!!
I totally agree that this new site should be scrapped, the old one reinstated. I made lots of friends on here after my stroke in 2010 which helped me tremendously as we shared our ups and the odd down. Now it is full of nonsense, mostly nothing related to stroke survivors and their passion to recover. Sadly I have lost contact with most of my friends on here so hardly ever use the site.
Many thanks for sharing your feedback on the TalkStroke forum. We're really sorry that you're all experiencing problems with the site.
The spam issue is definately being looked at right now, and hoepfully our web developers can soon install some solutions to lessen the problem.
We will be redeveloping this forum very soon, and we will definately be looking for input from current users of TalkStroke to help shape the development.
Once again, we're very sorry for the inconvenience you're currently experiencing.
I quite agree some bright spark has ruined this once excellent site it's now not fit for purpose Roy
Hi all..my dad died in April 2012 after 2 massive stokes!! The first one was on Good Friday, I took him to the hospital as he had not felt well all day!...he later had his first massive stroke! He lost all function on his left hand side, he needed feeding, toileting, changing, turning and although he could speak it was hard to understand! This was extremely hard to accept!!! This was my dad!! This was the person i had looked up to all my life...but as a family we were going to beat this!!!!... For the following week we visited the hospital twice a day everyday to support him, we made things that helped him to keep some of his independence, ie things to stand the newspaper up so that he could turn the page with his unaffected arm!!! We had regular meetings with the nurses to discuss his progress to which they finally agreed for me to be able to go into hospital and feed my dad his meals, this way I could help him to encourage some of his independence and spend more time with him to make sure he finished them, that way he would build up his strength for his physiotherapy!
Unfortunately this never happened as the hospital phoned that night for us to go back to hospital, my dad had had another massive stroke to which this had taken all his brain activity!!! My dad was put on an 'end of life programme' this was just to make him comfortable until his heart stopped beating! It was like he was in a coma!!! We, as a family did 24hour care for the following week! We washed him, changed him, dressed him, led with him but most importantly we talked and talked and talked to him. We reminisced over lots of things in life, laughing and crying and being together. We said our goodbyes over and over again, then on the Thursday morning his heart stopped beating and he went to shine in the sky!!!
I don't think I will ever accept what the stroke did to my dad, how can something wipe out, in front of your very eyes, the hero you have always thought was unbreakable????
Will I learn to accept it?? Or will I always feel so angry towards it???
Apologies it has taken so long to get back to you. I have ptoblems logging in and out of this website as I am not that pc literate! I also have spelling problems since my stroke last May, but never lost abilitilty to read. A fellow patient in with me could not read, but he could speak and was quite mobile, could go to the toilet etc. which was beyond me for the first few days.
All I can say to you is stick with it, you will get better but it seems to take foreever. I am 7 months down the line, and can speak with some disphasia, worse when tired, Have started with my walking groups again, and can manage 7/8 miles but I get easily tired and irritable espedially when someone asks me questions. My other problem is that I keep forgetting things so I write everything down. We all seem to have slight variations on how the stroke affected us.
I try to measure improvements by milestones of things I can now do which I could not, weeks or months ago.Keep it up! Bernard.
My dad who is 47 had a fall on Friday 7th December after slipping on Ice after 2 days in hospital he had his operation and all seemed well, then on the Monday he suffered a major stroke on the main artery left hand side of the brain as a result of a blood clot.
It has left him not being able to swallow or speak and with no felling down his right hand side ( which is his broken leg side) he can hold you hand with his left hand and squezzes it when you ask him too, he also looks at you when you speak to him for a brief period before he gets tired and has to go to sleep again.
He also got aspritory Pneumonia as a result of the stroke and was given antibiotics, we was told yesterday that he has fought this off after less than a week which is good news.
Yesterday he also held Christmas cards and opened them with his good hand and looked to be reading them which amazed us, he also took my sisters iphone and was swiping through photos before locking the phone and giving in her back which we could not believe.
They have tried to feed him through a tube which he has kept pulling out so he has only had 1 full day of feed since last Friday, they put it back in last night and has kept it in this morning when we rang.
My question is does anyone know of anybody who has not been able to swallow or speak in the 1st week but has gone onto regain both back and lead a normal life, I am just worried sick and trying to stay strong for my mom and sisters, Spencer my dad is a very clever and positive person who is so loving and special to us all.
The nurse also worried me by saying in the 1st month stroke patients can be at risk of another stroke, the doctors have still not found out what has caused this they said that if the clot has come from the broken leg then it would of had to pass through a hole in the heart for which they have done a scan and can not find one, also a clot from the leg would normally hit the lungs first?
Any help would be very much apprecited as I sick with Worry as I just love him so much.
The content of this post has been removed because it breaks the terms and conditions of TalkStroke.
Hi jamie, ....all I can say is that it is going to take time...a lot of time.
My doctors dont give me any indicators about how long I'll be back to 'normal'....so it could be 1,2,or 3 yrs for your dad.
I've had a little problem with swallowing....especially with my pills. I almost choked myself laughing at Ant & Dec.!! :)
My family had me remembering colours and names just to start with.....You might need a alphabet board to help your dad... Yes/No, hot/cold etc
Let the doctors do their job, ask for a speech therapist AND call the DWP because you will need a lot of forms/ disability stuff to sort out.....your family need to stay positive and if you need help.. Ask someone who can help.
Hi, a couple of years ago my grandad had 2 minor strokes, and in a few days he recovered. He didn't think this was going to happen again, as he got told he will be fine as long as he doesn't smoke so he quit. He then started coughing up blood, so he went for a lung biopsy, and they took him off his tablets for his heart for 8 days. On January 31st 2012, early hours in the morning the day after his operation he had another stroke. He was in hospital for many weeks, he couldn't talk, eat, drink. It was due to a blood clot in his head. We got told he would never be the same again, but we was all expecting to come home eventually. He started to get better, then one day he was sick. And due to his throat not working, he swallowed some and went into a coma, this gave him phewmonia, and he died early hours of March 6th 2012. I'm only 14, and i try my best to understand about stroke, but i'm not totally sure. I've lived with my grandad all of my life, so it's hard for all my family. Thank you x
just read your comments..
yes i fully understand you have had a terrible time,
all the memory problems, like you say i can relate to myself, cannot retain,recally, spell, read, express myself and i cannot find words...
all this is normal after stroke, some people are affected like this, some are not...
you had a wonderful job and life...
you also have other medical issues..
try oh please try and go with the flow, day by day..
concentrate fully on what you can do and not what you cannot do..
all your tolerance levels has changed , mine have, so if i feel the need to explode, i stop and check my feelings that way it will put your mind of the explosive feelings you have.
the explosive feeling are because of your exceptance and personal battle you are fighting..
if i get a word wrong, i laugh about it
if i cannot find my word when in conversation i laugh and ask people what s it called i say......
go with the flow and try not to focus on the things we say and do wrong..
it all takes time..
i really do hope this helps..
all this is normal and you are not alone....
I have suffered 2 strokes in the past 12 months. I am or thought I am a fit 46 year old female, who never smoked and very low intake of alcohol and moderate exercise. After the second stroke they finally revisited some scans taken of my heart 4 months previous (I had been taken in to heart unit following chest pains 1 month after first stroke, but no diagnosis and sent home on some more medication for artery dilation) and found a defect with my heart (typical they weren't looking for that problem in the main structure of the heart, were looking at the arteries only, yet the defect can cause heart pain hindsight is a wonderful thing). I had been on clopidogrel and aspirin, but then after the second one they have put me on warfarin and more recently the new drug dabigatran. Both strokes were almost in the exact same place, with the exact same presentation, but when the second one occurred the medics immediately thought that it was a seizure, however the MRI showed different.The during the strokes my ability to speak was impaired and I was dribbling and my right hand side was strange and trying to work on the left side of my body and although I could see the words in my mind I could not get them though to my fingers to type a word, and spelling or writing down the wrong word all of which was weird and I couldn't understand why - yet I am normally a very quick thinking person. Although the area of strokes is not normally fully associated with memory issues, I am having some troubles with short term memory and concentration and unable to recall words during a conversation, also difficulty recalling information read. I am also more recently having regular episodes of strange sensations in my head almost feeling like I will black out and some problems focusing and yet other times everything is fine. I have also not had a period since the second stroke (some might say a blessing - but it is like a switch has been turned off). My tolerance levels and patience is almost zero and I am not very confident and anxious. Needless to say this is having a huge impact on my well being and I feel like I am pushing way the people who love me the most. I am also having a second opinion relating to my heart defect which is the cause of the clots, as the medication only reduces the potential of clots, does not prevent. My local hospital Cardic department have been dreadful, firstly missing the diagnosis, which might have prevented the second stroke, but since then I have had no further tests carried out to determine more details of the problem - it is a very rare defect. My GP felt that little had been followed on, so referred my for a second opinion to Royal Brompton - visit next week. My stroke consultant and GP have been brilliant and both are of the opinion that the defect needs to be rectified to eliminate the production of clots, then I can move forward with the recovery of the strokes. Has anyone else (female) had issues with their cycle suddenly changing? Also how can you self help to improve the memory learning issues. I work in a safety critical role and now being told that they are unwilling to allow me to continue and all that is available within the organisation is stuffing envelopes with letters and filing all day - if that doesn't send me over the edge after everything else has happened or being signed back off sick. I feel like a lit time bomb, but don't know how long the fuse is and justing waiting for it to go bang again, which it will. Any comments or advice would be very well recieved. Thank you
My 88 year old mother had a stroke 2 weeks ago. She had a problem with her speech, right eye vision and right hand coordination. All of those have improved significantly since she first had the stroke, although not completely better, but for the past couple of days she says she keeps seeing a dark shadow on her right hand side which she thinks is a person. She says she knows its not real and if she reaches out to it with her hand it goes away. Although she has also said it follows her when she walks. Could this be something to do with her right eye, maybe something stroke related causing shadow to the right or is she hallucinating, and if she is will it eventually go away ??.
hi, hope this helps you.
your mums vision has been affected.
its called her pherifiral vision, which you say per-rif-eral.
this is a common happening with strokes. the right eye vision is affected.the best thing to do is to get her an eye sight test and more suitable glasses will be prescribed for her.. mention about the stroke and her all around vision such as theside vision which has been affected.
hope this helps you.
she is not hallucinating.
Thanks but unfortunately we now know she is definitely hallucinating as last night she said there were 3 people walking about in her bedroom and she was wide awake at the time. She does know what she is seeing isn't real, which is a good thing, but still unnerving for her. I hope it will pass soon. My father did a similar thing when he had a stroke 2 years ago but it didn't go on as long, just for one day.
although i had a stroke in january..
you have fetched memories back to me..
my mum had a stroke 11 years ago,, and yes i remember , her first stroke..
she did hallucinate , she was seeing lots of things... also she slept a lot...
it did settle down after a couple of weeks.
hope this helps....
my mum was 65..
Is there anyone out there who has had, or is having, a similar experience and could offter me advice. My darling husband of 33 years - who was an extremely fit and healthy man with no history of blood pressure and no pre-exisiting medical conditions - had a massive stroke in 2006, and has been lost to me ever since. The stroke resulted in dense paralysis all down his left side, massive brain damage including loss of memory, total loss of awareness, unable to drink or feed himself, double incontinence, impared vision and epilepsy. So severe was his condituib the he wasn't offered rehab as his prognosis for any kind of recovery was considered to be nil. I was advised to put him into care as it was thought it would be too hard to care for him at home (I am now 65 and my husband 81). However I disregarded this and bought him home where I have cared for him ever since. Over the last four years he has also developed dementia and no longer knows me or his children. As you can imagine there have been some bad days and some sad days, but positively there has also been great consolation in knowing that he is well looked after, is not open to abuse, and, that in his own little world, he is safe. I have endeavoured to keep our lives as normal as possible and take him out and about (I bought a wheelchair adapted vehicle) and we go out for meals etc with friends. days trips to the coast and even to Spain on holiday. Up until this year he has been, incredibly, strong and physically well, no bed sores and has always had a good appetitie. However, his condition has deteriorated over the last six months, especially after he conbracted pneumonia in May and he now has difficulty swallowing to the point where it takes an hour to feed him a small portion of food and 2 minutes between each swallow of thickened liquid. My dilemma now is whether or not to have a PEG inserted, to artificially keep him alive, or to persevere with food little and often so that he doesn't starve. I know that my husband would not want to be kept alive the way he is, as there is no quality of life at all and a PEG would mean prolonging his life.
I rarely use this forum - I seem to have lost the gist since it changed, but I came accross your post and was very moved. I am just another stroke survivor ( coming up for 6 years now ) and my condition is nowhere near as bad as your husband, so I cannot really comment except to say how brave you are - yet I know this is a silly statement as you probably feel that you have to deal with the situation. Also same for your husband.
But I feel the previous reply has much wisdom, gained through similar experience e.g."sometimes we have to put our needs aside, and our feelings.. and just think of what they are going through.."
I wish you all the best and hope that you do not despair. Keep trying to figure out the best thing to do for your husband and yourself, and pester the health care professionals whose job it is to help.
i understand, my mum developed dementia after stroke..
i went through every single stage from the beginning to the bitter end..
you are right in what you say about prolonging life...
dementia is a cruel thing to happen..
mum went into a care home,, after 10 years, it was a care home run by our local council,, it had to be the best for mum.. and it was...
with dementia in late stages, the swallow goes its part of it..
but with your loved one ,it different since his pneumonia...
if i had to make this choice with my mum i would not have chosen peg feeding...
when my dear mum passed away, and i am not feeling guily about saying this.
it was relief that she no longer suffering....
mum was 65 when her first stroke appeared,, she then deloped dementia
and she was 76 when she died , but with your loved one, you are at a stage
with is really advanced in dementia which is the swallow..
my thoughts are with you and feel that you will make decisions which are right.. sometimes we have to put our needs aside, and our feelings.. and just think of what they are going through...
i do hope that i have helped you.
my stroke was in january...
Thank you for your comments re food and drink tasting strange. I am aware of the statins and avoiding grapefruit.
I am pleased I am not the only one.
Stroke information about food and drink issues seem rare. Why?
My GP has no answers, had suggested changing my medication to see if this with bring back my taste, to no avail, numbness of tongue on side of stroke, brain nerological changes?
Going out for a meal had been a pleasure pre-stroke I am starting to come to terms emotionally to this change.
its pretty common i still hve 10yrs post cva, often buy food/drink i used to like but no longer do, like u i find "sharp" drinks the best type b careful as some citrus(grapefruit eg) are contraindicative of statins and aspirin lyn
hi lyn,long time, no post what do you think of the new site? where are the profiles? how do we know who we're talking to and what weight to place on their posts? on the plus side there are some notable absences. How are you doing, anyway?
this is what we all need communities like this nobody should feel alone we have all had strokes so we are all here to talk and share experiences
Hi, I had a stroke 3 months ago. I was paralysied on my left hand side (right brain blood clot). I have made a good recovery but I have a few post stroke issues, depression has not been one of them.
Has anyone had these issues:
Dysgeusia: change in taste both food and drink. All food and drink taste horrible or different. Drinks and food containing citrus are the most palatable, carbohydrates the most tasteless. I changed medication to see if it was the pills that had this side affect to no avail.
Speech & Language
My ability to speak fluently has been affected ( finding the correct word, pronunciation of polysyllable words, processing others peoples.
conversation, connectly graphemes with phonemes( letter sounds to written letters).
This is the first time I have been on the forum.
hello and welcome, ill b 10yrs post cva come novememer and still struggle to find the right words to use in conversation, u need to understand that memory isnt lost its there like in hard drive of pc wat is lost is the access to it(neural pathway's) i find if i stop trying to find it it often just pop's into my head, some pple with brain trauma also lose the ability to mke new memories, thnkfully i dont in stroke terms 3 months is still considered early days u hvw a long way to go lyn
i am also affected on my left hand side due to one when i was younger good luckto you its not easy dont feel that you are alone
Hi, I am 3 months post stroke and recovering well physically but with some memory, headache, fatigue, slurring, word finding issues(much worse when I'm tired)
I took a positive approach to what happened, made a plan of action and followed it, this made me feel that I have some control over my recovery and helped me focus on the future and getting better. I am working part time, being social when I can and I know my limits. However, all through my many assessments and chats with friends I have repeatedly been asked if I am depressed! Or had remarks like 'you must be depressed'. Well actually NO I am not. We are all have different symptoms from our strokes and all have different issues following them...that's because we are all different people. So why is it so difficult for others to believe that I am not depressed by the event? Just because they would have been if it happened to them, or perhaps they just believe all stroke survivors should be depressed?
Either way I'm damn well sure that not every stroke survivor is suffering from depression.... am I right or am I deluding myself? I don't think so and I won't allow myself to be pushed into their stereotype and I certainly won't take their antidepressants because they can't believe I wouldn't need them. The after effects of the stroke makes me angry, frustrated and irritated (sometimes) but not as much as all those who insist on putting a damper on my perseverance and determination to move forward and recover.
To the many professionals I have met:
Yes some of my symptoms may possibly be attributed to depression as they are the same as stroke effects, but then I have actually had a stroke...so guess what , that's probably what's causing them! The shock of a stroke is difficult enough to come to terms with , the after effects are worse but please don't add to my woes by actually causing me to be depressed with your negativity!!!
To the Stroke Forum:
Sorry, rant over! Thanks for your understanding and for your comments and posts, this site has helped me tremendously since I found it. So many of you are dealing with worse issues than me and I very much appreciate all the comments and advice you have shared. :-)
I am new to the site, but just like Mudlark after 3 months recuperation I am suffering bouts of depression. i also find things harder when tired.
Don't have many headaches but disphasia is still a problem. Takes much longer to type messages and I usually have to make a number of conrections before I send. Additionally I find I get impatient and bad tempered if things do not go as I planned.
I believe my character has changed and not for the better. I am still getting speech therapy and I think still seeing improvement from week to week.It can be a very lonely life as a victim. It is great to have someone to talk to.