There was a very good and interesting programme on BBC4 last night called Speechless about aphasia. I suspect it is available on i-player. Worth a watch in my opinion.
Just watched it. Fascinating. I would recommend it to everyone who is caring for a stroke survivor.
It made me feel very lucky. I have substantial physical disabilities, but there is usually a way round them.
yes Pete, on your recommendation I watched it on iPlayer. v interesting.
didn't you just feel for those 2 chaps?
my taste of aphasia was brief compared to those.
I did speak v v slowly for 2 or 3 months after stroke, lining the words up slowly in the brain,
then trying to get the mouth to adjust to say them properly. frustrating time.
The neurologists viewpoints were I treating too.
The brain is such a complex delicate fascinating subject, no wonder when stroke gives it a kicking, we get problems.
cheers Pete. how your progress these days?
Thanks Vinnie, Im glad it brought it to your attention and you found it as interesting and as moving as I did. I guess we all compare ourselves to others and it helps us to consider how fortunate we are. It also demonstrated how no 2 strokes are the same, in that Junior Agogo was a picture of perfect physical health, running and excercising but his speech was poor to begin with, but he was progressing well, but you could see how it has knocked his confidence massively. Whereas Barry, was more how we see the `typical` stroke survivor, with the physical weakness aswell as the severe aphasia. It was very emotional seeing his visit to home and bought it all back to me, as Im sure it will to anybody who was returning home after a considerable time away. I think it would help people not affected by stroke to see this and hopefully educate them to the mental, cognitive and emotional issues, aswell as the physical issues .
My aphasia was less severe, I attended speech therapy for a while, but like the physio, that has now ceased. Im still seeing my occupational therapist and neuro psychologist, and with their assistance, I am currently starting my `back to work` programme, after 18 months away, its pretty scary at the moment.
Hopefully the programme is still on i player and anyone interested and hasnt seen it yet can search and take a look.
Thanks for suggesting that program. I thought I was over the crying stuff, but I couldn't hold back the tears with the two guys suffering. My internet connection has crashed and I will be watching the second half tonight or tomorrow (BT engineers permitting).
Junior Agogo seems too be making the major error of trying to live his old life rather than accepting the new life he has been given, but I still have a lot of time for him, as I do for most stroke survivors.
It reminded me of my time at around three months. And that I did have and still slightly have, aphasia. I never thought of it before !
Its a good film, thank you.
The program was not easy to find on the internet but I did eventually pin it down. Although interesting it did not give me any insight on how to handle my own problem. I am approaching three years as a survivor and am most unhappy with my talking progress. True, I can be understood, but in any pressure situation my ability to communicate goes down the gurgler. Also tiredness has a great effect. I talk as much as I can and even plan my daily walks so I call on op shops where the volunteer staff are always good for a chat. I read out loud daily, but must admit that I should do that a lot more. When walking I whistle often and practice breathing exercises. My brain knows what to say but the mouth and jaw muscles just wont co-operate.
My arm and hand strength and flexibility are both not too bad and are still improving. My leg muscles can carry me 2k and can handle stairs although not with aplomb!
My total body weakness I can tolerate and my reasoning power is not too bad for my age, but my lack of speech does annoy me intensely so I could sympathise with the other victims on that TV programme.