Have just joined the forum and read thru about 70 pages of posts and there really are a bunch of amazing people posting on here.
Having read so much, you tend to pick up on patterns and similarities and I've seen many in the forum, my own circumstance included.
The good lord cracked his random white cloudy shovel across the back of my head on august 2nd and delivered an acute infarct to the cerebellar. I was collected from the workplace in double quick time by the ambulance and taken to A&E where I had all the usual FAST tests, mobility and eye tests and a CT scan. All came back clear and I was packed off home with a diagnosis of Labyrinthitus and some medication.
A month later, my fine wife had had enough of me bumping into things and having headaches and booked, via her work insurance, a trip to an ENT specialist, who arranged an MRI a few days later and this revealed the stroke.
I have since met a friend of a friend who had 2 TIA,s diagnosed as labyrinthitus and then went on to have a particularly devastating full stroke.
I absolutely do not blame anyone for the delay in my case, and all the medical professionals I have dealt with have been great but one of the common threads I referred to earlier is what I perceive to be a the lack of overall awareness within the medical profession of the whole pletherer of possible symptoms of stroke or TIA, the all inclusiveness of stroke to all age groups and inclusiveness of people who do not score in the 'risk groups' . FAST is a very useful tool for the public but I think the professionals, via enhanced training and awareness could do more.
I am one of the very lucky ones( many are not) and only have balance, short term memory/dizziness and headache issues, albeit a recent return to the gym has greatly helped in reducing the effects of the last 2.
A final thanks to all the 'posters' on this forum, many very inspirational stories have been told and are being lived- thanks all and I hope all your recovery's continue unabated.
Hopelessly underfunded, the Cinderella of the serious illnesses. Good attitude Martin, not everyone is as understanding as you.
Totally agree with you, i also believe there is a serious shortage of understanding of strokes and tias and especially how long the effects last for both.
I sometimes think it's us stroke survivors who are the true experts and could teach the medical profession a thing or two if they listened to us!
I to suffered a cerebellar stroke 7wks ago and sent home after test and ct scan . I was in A&E for 8 hours and told all was clear and sent home. I was then recalled two days later as something had been identified and a ct angiogram confirmed a cerebellar stroke a week later luckily like your self i was very lucky it wasn't a lot worse .i wasn't aware and know most of the people I know we're not aware of this type of stroke and its symptoms .
I had a straight forward. clean and unmistakeable stroke. Truly fabulous treatment for six weeks. Paramedic was here in two minutes (I live in a country village, he must have flown here !). Ambulance in five minutes, staff waiting for me outside hospital , straight in to stroke resus, then later straight to the stroke unit.
But after that six weeks of good care, the medical care is then just hopeless. Almost non existent and badly informed. I get more info from the good folk on this forum than anywhere else. The stroke association are not funded for my part of Essex. Not exactly a wild or deserted area. I am 23 months post stroke and still struggling with the aftermath.
When I read about your, less common, experience I just crumble with disbelief. We really do need a massive boost to stroke treatment. And a corresponding boost to the NHS at large. An extra 2p on income tax wouldn't hurt us. Or whatever is needed to fund the NHS properly. Although a cull of the accountants and managers would not go amiss. I was an accountant dealing with NHS matters for many years so its not sour grapes.
I am pleased your injury is not too severe.
I knew zilch about strokes when I got bitten, yet I knew I had probably had one, which was odd.