Hello !

TalkStroke closes on 5 February 2018

As My Stroke Guide has grown into a trusted online stroke community and support tool, we’re closing TalkStroke and asking you to register for My Stroke Guide. It will be easier for you to get all the online support you need, all in one place.

This unique, custom-built tool gives you the opportunity to create your own social profile, make friends with other users and message them directly. There are many ways to interact with one another, such as using the My social forum, posting on the public social wall and joining specific groups based on your interests.

We hope you register for My Stroke Guide, which is quick, easy and takes no longer than five minutes. You can register whenever you want to – either before 5 February or after the closure. You’ll benefit from using all the new features and keep the conversation alive in a supportive and welcoming community.

We’d like to thank you for all your commitment to TalkStroke and we hope you join us soon on My Stroke Guide, our trusted online stroke community and support tool.

If you have any questions, please call us on 0300 222 5707 or email us on mystrokeguide@stroke.org.uk

Hi all

Thought it time I introduce myself as I’ve been using this forum for the last few months and it’s been invaluable.

Just over 3 months ago (sep 2017) i had a stroke (confirmed stroke rather than TIA), lentiform infarct left apparently, at the age of 37. Came as a real shock as I’ve tried to look after myself, but there we go. I seemed to be very lucky as I was driving at the time and remember suddenly not being able to sing alone to the song that was on the radio. Stopped for a bit and then drove home ! I’ve not suffered any paralysis or mobility issues. Just a slightly weaker right arm.

At the moment I actually feel worse than the first month or so after it happened. I was sent home straight after my MRI with some meds and that’s it ! I’m so dizzy and fatigued. Plus living with major anxiety that it will happen again is really getting me down. I do have some counselling starting soon which I can’t wait for. Oh and I also find it so hard to fall asleep. Once I’m out then I sleep very well. But nodding off is terribly hard.

Work have been utterly fantastic and I couldn’t praise them more. They are willing and offering everything to try and help and support. Such a load off my mind.

I guess I’m not too sure why I wrote all this but it’s nice to put it all down on paper as such. Plus I wanted to thank everyone who contributes here. It’s helped me so much already even though I have a way to go still.

Thank you from the bottom of my heart.

Kris

Without doubt sharing one's problems can make tolerating them much easier. Your stroke seems to be very unusual, but really they all are!

It seemed to me that many problems associated with my stroke did not materialise till later. They probably were there but just coping with the main ones absorbed all my time.

We are very interested in your progress, so please send mail occasionally.
Deigh

Good morning Kris
What a pleasant and constructive post.
The fact that you have kept fit etc has probably meant that the stroke that attacked you has been repelled better than most. I would be very keen to keep all physical things moving, Gently if that what feels right. Walk a mile, lift something that's well within your comfort zone, walk backwards use your sense of balance and so on.
The "mental" or cognitive issues are probably harder to deal with. An irrational fear of another stroke is common. That drifted away in a few weeks. Anxiety is common. That eased away in a few months. Counselling is a big help. That's good that you are having some sessions soon. I find relax classes a great help. I am sure meditation or yoga would be equally good. This might well help with your sleep. It is pretty essential to get a good night time sleep pattern ticking over. If you then need sleep in the day then don't fight it. Just the brain requires some time to mend itself. Then the pesky fatigue. The medical term is post stroke tiredness. But that doesn't really describe things, does it. For about nine months the fatigue (SF) would come in waves and its important to rest and then it would pass. Then one day it went. Just disappeared. And what a euphoric day that was. I hadn't realized what I was missing. For me I then got a new version of SF and that is with me all the time, not in waves. I don't know how to improve this. It is such a slow slow recovery.
I still smile four times a day. I keep positive, thinking what I can do and not what I can not do.
I look disgustingly well, which makes things hard because I am expected to be well. But I am not. I am injured, part of my brain is damaged.
Your case is fascinating because you have no physical problems. But as we all say, no two strokes are the same. I do hope you will write your progress on the forum. And tell us about the counselling and what has been recommended to you.
As always I rabbit on.
Best wishes
Colin

Hi Kris. Thank you for your post. Your fears are quite understandable. I am 74 and had my stroke nearly two years ago. I expected to have another one and thought I would die in the night. As Colin says, fears decrease over time, but at my age You then start to wonder how much time is left. Next minute it’s another day, so you make the most of it and hope more will follow. You also start to do things again and find you can manage them.

You are quite young and relatively unscathed. Counselling should help you no end. Being fit has undoubtedly helped you. Very little is done about the He psychological impact of stroke, but we all experience this. The worst thing you can do is hanker after time’s past. Sometimes I regret my inability to do long country walks or walk up hillsides, but I haven’t done those for a good eight years anyway. Try to remain positive and things will improve.

Hi Kris, I don't write on the forum very often but found it so helpful, especially during times of anxiety. I had a stroke in March this year, out of the blue of course. Woke up, reading in bed and my fingers on the left hand started to twitch, when it had finished, my hand was floppy. Went to the GP next day who referred me to the stroke unit and confirmed a stoke. Within a week, the hand was back to normal and I went back to commuting to London to work. The fear of another stroke is very real but as everyone says, this does diminish but for me there remains an underlying anxiety. Every ache/pain is magnified and this week I have had dreadful flu and have been very anxious. The doc is great and referred me to talking therapy which I have yet to take up but I have started meditating and pilates, all of which I am sure will help. I am learning that I need to be kind to myself, not expect too much too quickly, enjoy life and be very grateful. It's an unexpected twist on my journey for sure!

Have a good day.

SL

Many thanks for everyone’s replies. Really appreciate them and for sharing.

Yes I and the doctor agree it’s pretty uncommon that I’ve had no physical issues at all (hope I haven’t just jinxed it hehe). But there we go.

I’ll definitely try to post up how it all goes and attempt to contribute more here. I’ve found the major benefit of this forum is that we’re all talking with people who, unfortunately of course, have actually experienced this. I’ve found that makes such a difference. Great idea with the relax classes/yoga ! Will definitely look into that, thank you.

Even just writing my original post yesterday helped and I’ve felt better since then. If anyone has any questions please ask and I’m also more than happy to private message if somebody would prefer. I have this overwhelming urge to try and give back to this forum seeing how much it’s helped me.

Thanks again

Kris

Hi Kris
sorry to hear of your stroke. In the main all I can do is heartily agree with the others in this thread but like you I had a stroke (at the start of August 17) that didn't affect me physically but I was greatly disorientated with dizziness and fierce headaches/headpain .Although I'm a bit older than you, I've always been in the gym and this definitely helped. Post stroke I made the decision I was going to walk as far as I could each day and after a couple of months I managed to get back in the gym albeit on reduced 'duties', on returning to the gym my headaches disappeared and now im only dizzy about 20% of the time, so if you are able, do what you can on the mobility front.
The other thing I did was totally evaluate my lifestyle. All the stroke tests came up a blank with BP, cholesterol, heart and arteries etc all in reasonably good nick. On reflection I was leading my life like a man 20 yrs younger! on the road 0545 every day, hard at it in the gym for an hour, work for 12 hours, work from home when I finally got back there, work weekends and then if I went out to 'play' I did it to the absolute best of my ability!
Now I take it easy in the gym, work 5 hrs a day and no weekends, turn the phone off when I get home, enjoy alcohol free beer and am looking forward to starting a mindfulness based stress relief course soon! None of that may apply to you but thought I would share.
all the best to you and your recovery
cheers
Martin

Appreciate that Martin

Like you I enjoyed the gym but I never pushed too hard. I’ve always been very conscious of time away from work so I make sure I have time out of the office. I can understand in your case if perhaps you pushed a bit too hard, but I thought I was taking care of myself ! One of those things. Although it did turn out that my cholesterol was high so hopefully the diet change I’ve imposed on myself and the statins should take care of that. Not sure I’ve ever eaten so much fruit and veg before as I have in the last few months though haha !!

Just this week I’ve got back on the treadmill and I’m walking a mile a day at the moment. Don’t feel great afterwards, but I know it’s the right thing to do ultimately.

Thanks again for the message

Kris

Category

Share

Charity information

Stroke Association is a Company Limited by Guarantee, registered in England and Wales (No 61274). Registered office: Stroke Association House, 240 City Road, London EC1V 2PR.

Registered as a Charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Northern Ireland (XT33805), Isle of Man (No 945) Jersey (NPO 369).