TalkStroke closes on 5 February 2018

As My Stroke Guide has grown into a trusted online stroke community and support tool, we’re closing TalkStroke and asking you to register for My Stroke Guide. It will be easier for you to get all the online support you need, all in one place.

This unique, custom-built tool gives you the opportunity to create your own social profile, make friends with other users and message them directly. There are many ways to interact with one another, such as using the My social forum, posting on the public social wall and joining specific groups based on your interests.

We hope you register for My Stroke Guide, which is quick, easy and takes no longer than five minutes. You can register whenever you want to – either before 5 February or after the closure. You’ll benefit from using all the new features and keep the conversation alive in a supportive and welcoming community.

We’d like to thank you for all your commitment to TalkStroke and we hope you join us soon on My Stroke Guide, our trusted online stroke community and support tool.

If you have any questions, please call us on 0300 222 5707 or email us on

I had my stroke i October and after 2 weeks in a stroke ward i am now having group physio for my weak right leg.
i take Ramipril and Amlodipine to lower my bp which i s still a problem. Does anyone have problems with this medication ?

Can you please say just what the problems you are experiencing with this medication?

Hi, I feel lightheaded and tired, i just wondered if anyone was having problems. i read someone on here saying Amlodipine floored them.

Im always exhausted, in fact I wake up exhausted and always light headed and dizzy. I am taking amlodopine and various other drugs, including statins. I have personally come to the conclusion it is the brain damage that is causing all the physical and mental issues. Its so hard to describe the symptoms and no medical professional will be able to understand exactly how i feel and be able to pinpoint exactly what is the cause. Unfortunately, I just think this is the way it is going to be from now on. Not saying it is going to be the same for you and I hope you can discover a way around this horrible feeling.

Dear Karen
I took amlodipine, many years before stroke, and it clearly had a severe bad side effect on me. Changed to Ramipril and the problems disappeared. Ironically, the effect of amlodipine was not dissimilar to a permanent version of post stroke fatigue. I did not at that time have any ideas of stroke etc.
Post stroke I also now take Indapamide.

So I will not take amlodipine. Might be fine for others, but not me.

Getting BP to a reasonable level is not easy. I reckon relaxation and exercise will work better than medication. I go to relax classes and my BP is usually ideal after the classes. My GP struggles with BP medication and will consult other partners on the subject. It seems somewhat hit and miss.

Many SS (stroke survivors) suffer from SF (stroke fatigue or post stroke tiredness) and it affects us in different ways. I am exceptionally fatigued and dizzy. But whilst it is slowly improving I wont change medication.
Stroke is a very cruel affliction and so little is known about it. No two strokes are the same so we have to muddle through, trying to fathom which problems we each share.
Things do however improve and there is life after stroke.

Best wishes

Hi Colin, My GP increased Amlodipine from 5mg to 10mg when i went to chemist to get a repeat presctiption he asked me had i taken these before, i wondered why i think next time i will ask. I take Ramapril as well and had my post stroke check up and my BP was up, the consultant is writing to my GP to check and up my dose wondered how i will feel then. Medical staff never blame medication for the way your feeling though.

Take Care


I asked the consultant if the problem in a morning was the statins because i take them at night and she said no its probably your BP or your brain waking up.
Yes you are right medical pros do not know how you feel they ask how you are and just say its the stroke/

Take Care




Charity information

Stroke Association is a Company Limited by Guarantee, registered in England and Wales (No 61274). Registered office: Stroke Association House, 240 City Road, London EC1V 2PR.

Registered as a Charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Northern Ireland (XT33805), Isle of Man (No 945) Jersey (NPO 369).