3 Months on and Not Much Progress

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I had my TIA 3 months ago now, and I'm really not feeling much better. I've put off going to the doctor as I have my appointment at the stroke clinic coming up in a few days so can ask questions there, but I am just feeling so out of it

Confusion reigns and I have become very forgetful. My joints and muscles ache and I've started getting cramp in my legs (particularly my right leg - although the TIA affected my left side). I am also getting cramp in my back (around the kidney area), and my joints are really stiff and painful. I keep getting a dull ache in my right groin and hip area which turns into cramp if I don't move. I think it could be something to do with tablets I'm on causing my arthritis to flare up, but I have never felt so tired and unable to do things. I usually have my mum and brother over for Christmas, but I'm just not feeling the joy at the moment and thinking of asking them to make their own arrangements as I just don't have the energy. I'm not making plans to do anything at the moment as I just don't know how I'm going to feel from one day to the next.

We did go out last weekend to see a tribute band at our local theatre, which was great, but the following day, I was exhausted and my back ached, I got the most horrendous cramp in my right leg which is, even now, a dull ache.

All, in all I'm feeling pretty low at the moment.

The tablets I'm taking are Clopidogrel 75mg and Atorvastatin 80mg and I think it could be the statins that are causing the joint and muscle problems.

Has anyone else had problems with the statins they are taking?

Jan

Hi Jan. I found that for a long time after my stroke, I was getting aches and pains in my hips and unaffected side. I think this was due to walking with more reliance on my undamaged side. My stroke was caused by a bleed, but, for some reason, I was prescribed 80cmg of atorvastatin. A year later, I became concerned I was still on such a high statin and then learnt, to my concern, that atorvastatin should not be prescribed for people whose strokes were caused by bleeds, because it can put them at risk of another one. I phoned my doctor, said that I wanted to come off them and explained why. She agreed and I felt better immediately. She has since confirmed I should stay off them

I have said I do not object to a lower dose statin, or a substitute, but have also cut down on my dairy intake. I offer this experience for what it is worth.

Atorvastin didn't get on with me at all. Aches and pains. GP agreed I would stop all statins and the aches and pains improved.
We discussed the risks involved and I would rather have fewer good years than more but lousy years. So do think about this before seeing your doctor. Changing statins is an alternative.

You are most unfortunate to have such a bad aftermath to a TIA. But we are all different.

Best wishes

Colin

Seems it may be the Atorvastatin causing these aches and pains. I had a sub arachnoid haemorrhage in 2001, and I queries the use of the 80mg Atorvastatin as it clear says in the patient information leaflet (and also the leaflet in the Clopidogrel) that they are not suitable for people who have had a bleed, but I was just told that I was getting the right medication for my condition. I'm not sure why I'm on cholesterol reducing drugs at such a high dosage as my cholesterol was 3.3 when it was checked a week after my TIA, but they have kept me on it. I just feel like I'm slowly seizing up completely. I would love to get a bit more exercise to try and loosen up, but each step is painful on my foot, knees, hips and back. I've been having physio on my back for a few months now because of disc problems, but I don't see the point at the moment with the tablets possibly making the pain worse.

I rarely eat dairy anyway, and I use the Flora Proactive spread - have done for years, if I'm having a sandwich.

Only a few more days til my appointment at the stroke clinic and I have a list of things I want to discuss with the doctor, so hope he will either reduce the dosage of the Atorvastatin or take me off it completely. I just feel I can't go on like this for much longer.

..... and now I am spitting blood. For the last couple of mornings I have woken with a tinny taste in my mouth and have blood in my saliva. It has just happened again about 5 minutes ago. Another question on the list when I see the stroke doctor next week.

Morning I had a bleed I don’t take any of the drugs previously mentioned o take 5mg of feldopine for blood pressure is this normal does anybody know? I came out of hospital s

Morning I had a bleed I don’t take any of the drugs previously mentioned o take 5mg of feldopine for blood pressure is this normal does anybody know? I came out of hospil September and havnt seen a doctor or consultant since . This does worry me as I should of had a mri which the hospital cancelled. I am 47 I live with my 2 teenage children alone and worry about having another stroke so much they said it was caused by high blood pressure and stress it was a severe stroke and left me with no feeling or sensory feeling on my left side I had no symptoms before the stroke happened has anybody else been given this advice? I also take gabapentin 300mg and 400mg before bed I spent 4months in hospital after my stroke trying to relearn to walk and use my left hand

Morning I had a bleed I don’t take any of the drugs previously mentioned o take 5mg of feldopine for blood pressure is this normal does anybody know? I came out of hospil September and havnt seen a doctor or consultant since . This does worry me as I should of had a mri which the hospital cancelled. I am 47 I live with my 2 teenage children alone and worry about having another stroke so much they said it was caused by high blood pressure and stress it was a severe stroke and left me with no feeling or sensory feeling on my left side I had no symptoms before the stroke happened has anybody else been given this advice? I also take gabapentin 300mg and 400mg before bed I spent 4months in hospital after my stroke trying to relearn to walk and use my left hand

Morning I had a bleed I don’t take any of the drugs previously mentioned o take 5mg of feldopine for blood pressure is this normal does anybody know? I came out of hospil September and havnt seen a doctor or consultant since . This does worry me as I should of had a mri which the hospital cancelled. I am 47 I live with my 2 teenage children alone and worry about having another stroke so much they said it was caused by high blood pressure and stress it was a severe stroke and left me with no feeling or sensory feeling on my left side I had no symptoms before the stroke happened has anybody else been given this advice? I also take gabapentin 300mg and 400mg before bed I spent 4months in hospital after my stroke trying to relearn to walk and use my left hand

Hi Shellbate, Sorry to hear of your stroke.My Stroke was due to a bleed and I am on amlodopine, which relaxes the blood vessels so blood can flow through more easily. I believe feldopine does the same, but please check with your doctor. I do not know which part of the country you live in, but support immediately post stroke in my part of country is good. Support varies, however, around the nation. Perhaps it is worth phoning the Stroke Association helpline. Hard work is needed to walk again and months I can walk with a stick, cook, bake and make marmalade. I can also do a small amount of ironing. Have you had any adaptations in your home to help you? Age UK did mine and there was no charge. Good luck in your recovery.

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