Loss of left visual field and neglect

My Dad has lost left visual field, coupled with left side neglect after his stroke one week ago. I know it's really early days but I'm worried about the likelihood of him being able to live an independent life. He had recently moved to a partially adapted bungalow.

Any advice on practical support would be appreciated.

Thank you

Reddy, one week is no time at all. My stroke was 17 months ago and some concern was expressed about my vision, but,later, I was found to have just lost a small amount of peripheral vision.

I was totally incapacitated on my left side, but now can walk with a stick, shower myself, cook, bake and do a little ironing. Dad, however, will need lots of encouragement, because the road to recovery is a long one and a hard one. He will get physio support in hospital and some support at home for a short period when he returns. His moods will go up and down and he will probably get post stroke fatigue. I still have to rest/sleep for an hour every afternoon. His own determination and willpower are of paramount importance in all of this.

Please give Dad my best wishes and tell him what I have said. He is not alone.

Thanks so much for your reassurance John.

He's got plenty of willpower and determination!

Hi Reddy,

As others have said, it is early days yet. I lost the lower left quarter of my vision seven years ago. My last visual field test said I had 93% vision. Left side neglect was a huge problem for me but I hardly notice it at all now; I live alone, work full time and travel internationally alone with my work. I am not 100% recovered but my life feels like a good one given that I could have been dead for 7 years.

Take care, both of you:

Time, patience and Nature are the three great healers.

Damian

Thanks for your words of encouragement - glad to know you're doing well.

Hi Reddy,

Sorry to hear about your father. I had a similar experience with my stroke and have a left homonymous hemianopia which is still with me 18 months on.

It is still early days in your father’s recovery so he may recover some of his visual field and maybe even fully recover.

I would suggest getting an appointment with ophthalmologist as soon as you can, this way he will be able to take a few tests, one called the Snellen test, which will give you a base line percentage score for his visual field loss. You should then follow this up with more Snellen tests over time e.g. 6-8 weeks’ post stroke and around 6 months which will give you an idea of any recovery made.

Contact people such as the RNIB who will be able to help your father with advice and even practical support. They pointed me in the direction of KAB (Kent associate for the blind) who couldn’t have done enough to help.

Although I was considered “young” to have a stroke at 27 and much of my recovery was helped hugely by this the lack of recovery in my sight really affected my way of life. I had to surrender my driving licence, couldn’t get to and from work, cannot go out in busy areas without sighted guidance or without my symbol cane. Throw in the neglect your dad has too and it is all a big change, I just hope that he can recover some of that sight.

Sorry to sounds all doom and gloom but it is a huge change for anyone. If I can help in way with more info or have any questions, please let me know.

Andy

Hi Andy,

Was just doing some more research into hemianopia and stumbled across this post.

Just wondering why you've advised to have regular snellen tests? Has your distance vision been affected by this?

I was told by the opthamologist that I should just have field tests to track any improvements- so just want to know if I'm missing a trick here.

Many thanks,

Amy

Hi Amy,

My apologies, I did not mean the Snellen test at all, what I meant was indeed the visual field test sorry.

Andy

Ah I see!

It did seem logical to me as in the earlier days of my recovery I was struggling to focus my eyes long distance but apparently it just takes a while to adjust.

Thanks,

Take care!

Question. Is there any proactive activity to trigger recovery of the vision lost ?

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