Second stroke at 91!

TalkStroke closes on 5 February 2018

As My Stroke Guide has grown into a trusted online stroke community and support tool, we’re closing TalkStroke and asking you to register for My Stroke Guide. It will be easier for you to get all the online support you need, all in one place.

This unique, custom-built tool gives you the opportunity to create your own social profile, make friends with other users and message them directly. There are many ways to interact with one another, such as using the My social forum, posting on the public social wall and joining specific groups based on your interests.

We hope you register for My Stroke Guide, which is quick, easy and takes no longer than five minutes. You can register whenever you want to – either before 5 February or after the closure. You’ll benefit from using all the new features and keep the conversation alive in a supportive and welcoming community.

We’d like to thank you for all your commitment to TalkStroke and we hope you join us soon on My Stroke Guide, our trusted online stroke community and support tool.

If you have any questions, please call us on 0300 222 5707 or email us on mystrokeguide@stroke.org.uk

HI all - I've just joined as I am struggling with so many things and am looking everywhere for information. My Mum, who is an absolute star, had a stroke in 2015 which robbed her of a lot of sight quadrantanopia?, but she lost no mobility or speech, some mild memory loss but she recovered brilliantly and after the first 6 weeks, almost threw my sister and I out and told us to 'go back home'. Since then she has continued to live on her own, clean, wash & look after herself fabulously, albeit with us helping with shopping and paying/reading bills etc, she even managed to get back to the good old DM crossword every day! Anyway, at the beginning of September this year she had another stroke (more mild) but the effects have been much more devastating for her and for us all, she now has hemianopia, post stroke delirium - just horrible! which has thankfully reduced slightly but leaves her not able to separate the 'dream' from reality and make the confusion and belligerence much worse, she is coming up to 6 weeks in hospital as SS cannot provide reenablement care or early discharge support - they have no availability, so she is written off as 'probably' neeeding longer term care and has to self-fund. They have advised us quite strongly that we should not take on too much, even though I pop in almost everyday and do shopping at weekend we're more than happy to be around more, she is our lovely Mum. She has done the making tea test, which has veered from 3 teabags in one cup to this week a very drinkable cuppa for me! but the kitchen in hospital is unfamiliar and she feels under pressure so although they need to see what she can do its all very stressful and with little sight (basically half an eye!) she is very tearful, short term memory very short and just feels useless and a pest - hospital is not a good place as they just can't / don't spend enough time with her - simply because she can talk and walk to the loo etc they all agree that home is best place, although understand from what I have read that there will be challenges with that - but the care package take so, so long - (and she is stressed and worried about it taking all her money) we are very tempted to just take her home - anyone else done that? Any thoughts from survivors or other people very welcome.

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Charity information

Stroke Association is a Company Limited by Guarantee, registered in England and Wales (No 61274). Registered office: Stroke Association House, 240 City Road, London EC1V 2PR.

Registered as a Charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Northern Ireland (XT33805), Isle of Man (No 945) Jersey (NPO 369).