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TalkStroke closes on 5 February 2018

As My Stroke Guide has grown into a trusted online stroke community and support tool, we’re closing TalkStroke and asking you to register for My Stroke Guide. It will be easier for you to get all the online support you need, all in one place.

This unique, custom-built tool gives you the opportunity to create your own social profile, make friends with other users and message them directly. There are many ways to interact with one another, such as using the My social forum, posting on the public social wall and joining specific groups based on your interests.

We hope you register for My Stroke Guide, which is quick, easy and takes no longer than five minutes. You can register whenever you want to – either before 5 February or after the closure. You’ll benefit from using all the new features and keep the conversation alive in a supportive and welcoming community.

We’d like to thank you for all your commitment to TalkStroke and we hope you join us soon on My Stroke Guide, our trusted online stroke community and support tool.

If you have any questions, please call us on 0300 222 5707 or email us on mystrokeguide@stroke.org.uk

It is now exactly three years since my stroke and I have come a long way since the first days when I was among other things without voice, leg muscle and had a dead right arm. I can now communicate with sympathetic listeners, Walk up to 2k and handle steps. I can also do household jobs and can nearly play the guitar and keyboards again.

One of my major problems is that my brain has not slowed down. True, I haven't the retentive capacity I had, my reasoning power has diminished and been replaced with a short attention span, but it still continues to expect me to behave pre-stroke!

Last week I watched an Australian made TV show about the continent's geological background. It is a favourite subject of mine and the film was a brilliantly informative creation almost destroyed by an over-the-top music background. My brain ended up on fire trying to remember words like Carboniferous and Ordovician.

Afterwards I picked up a magazine about history, another favourite subject of mine and with seconds realised that I was totally unable to comprehend anything. It was as though my brain had absorbed everything it could, my memory bank was full and in danger of shutting down.

It was quite a scary feeling and took me nearly two days to get back to a comfortable mental attitude. I have still not learned how to pace things well!
Deigh

Hi Deigh well done for making such good progress and I hope it continues for you in 2018. I suffer quite a bit with my brain. Sometimes I am near normal in my speech apart from not finding a word that I know I want to say, it comes eventually but it's frustrating, but then I can go like you describe and it worries me. It's as if my mind goes completely blank just for a while it's not a very nice experience. I have thought it's maybe when I have done too much, like a warning to tell me to slow down.
Take care.
You
Daisy

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Charity information

Stroke Association is a Company Limited by Guarantee, registered in England and Wales (No 61274). Registered office: Stroke Association House, 240 City Road, London EC1V 2PR.

Registered as a Charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Northern Ireland (XT33805), Isle of Man (No 945) Jersey (NPO 369).