Young non dominant stroke advice please

My husband is 36 and just over 2 weeks ago had a massive stroke in the right side of his brain. As you can imagine our world with our perfect little family and has had the bottom ripped out of it. We have a 3 and 1 year old.

My husband had to have part of his skull removed to let the brain swell. He can still hold a decent conversation. Somewhat confusing sometimes. However his left side is numb. He can lift his left foot up slightly but his left arm is completely paralysed.

Please had anyone got positive outcomes for mobility after such a bad stroke? He is such an active, fun loving hands on Dad who runs his own business and currently renovating our home. I fear this is going to be pulled away from him.

Dear Jen
So sorry to learn of your husbands stroke. It is such a shock for you. And so sudden.

There are several people on this forum who had big strokes and have recovered a great deal of themselves. There is also a book of the ultimate worst stroke and her recovery. Not appropriate for you at this stage, but the key line is that she has recovered.
Andrew Marrs, TV critic etc, has made a good recovery. He is back on TV a lot.

The stroke that bit me was simple and straight forward. But I was paralysed, just my right arm would work, other limbs would not. I couldn't even sit up let alone stand, yet one morning an amazing recovery occurred and I got up and walked (well staggered).
Since that miraculous bit of recovery it has been a gradual, maybe slow, recovery of physical and mental ability.

So please, have faith and hope. Recoveries are out here. And your husband is youngish and probably quite fit (?) which will help a lot.

Do say hello to him

Best wishes

Colin

Thank you Colin, when I look at how imobile he is, I just can't see how one day we will be able to use those limbs properly! But I know it does happen. I guess I'm just looking for positive stories to be able to see light at the end of the very long tunnel we have just started to go down. I'm so glad you have recovered well. Thank you for your reply.

Jen
Hubbys limbs aren't damaged. Its the brain messaging thats gone AWOL. So recovery on the mobility front can be amazing. It was for me, utterly amazing.
His limbs (muscles) will deteriorate after many months but no doubt the physios will manipulate him to avoid deterioration.

Recovery is very much in the hands of the survivor. Support is great, but only the survivor can effect recovery. With a young family, he is going to want recovery a great deal. So that's a big plus.

The ability to converse is very promising. That's often a big problem. I could not converse easily for months. Now you cant shut me up.

Numbness and pins and needles are good signs of impending recovery. It shows the brain is trying to reconnect.

These are of course just my experiences, I have no medical knowledge,

Best wishes

Colin

Dear Jen
It must have been a huge shock for both of you. Luckily he has youth in his side.
I2months after losing the use of left side of my body I am now walking and hopefully back in the saddle soon.
Physio can be really frustrating at times as the right side will always try to compensate. Perserverence is worth the tears, frustration and bizarrely laughter after hitting the deck more times than I care to remember.
Keeping a diary of the little milestones like being able to uncurl my fingers, to first 2k walk without an AFO or stick allow you to look back and see how daft you have come especially when it may feel like progress stalls or slows at times.

Hello,

My account was blocked for some reason and I have only just read your reply. Thank you so much. We are now 5 months down the line and my husband is walking again with a stick. His left arm still isn't showing much sign of workin and spactisity is becoming a huge problem. Any tips on getting things moving with upper limps and hand? Jen

Hi Jen. My stroke was 19 months ago and was also on the left side. I can walk with a stick and probably could manage without it, but my left arm and hand could improve further. I did have have a lot of physio post stroke and many hand and arm exercises. Is physio available to him?

I was told at physio to utilise the left arm and hand as much as possible and informed that the weak leg and foot recover faster than the arm and hand. This is because the arm and hand are used for more complex tasks than the leg and foot.

Currently, I go to two strength and balance classes a week. Both classes end with seated Tai Chi exercises, using just the arms and hands. I find these exercises helpful.
Hope this helps a bit. What is daunting is that recovery takes a long time, although age is on his side. It must be very frustrating for him. Sending you all best wishes.

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