I'm new to this forum and posting online, having never done it before. My husband and father to our two young children had a stroke and major PE 15 months ago (doesn't seem possible that it can be that long ago!). He had so many complications, craniotomy, cardiac arrest, dialysis. It's frankly amazing that he survived it all and he so very nearly didn't.
He's still not able to live at home though due to his care needs and is in a rehab unit 30 miles away from us. He has hemiplegia on the left side and also has severe right leg weakness, a result of his PE. He's partially sighted with complete loss of left periferal vision and severe left neglect. He is really strong mentally though to the point where everyone thinks mentally he hasn't been affected. But he has, I can see the differences.
We are about to build an extension to get him home and want to get a WAV to give us mobility and more independence. But I'm so worried about what life will be like and what will he actually be able to do. His vision/neglect is so bad he can't read or use a computer at the moment. His passion was cars, but his license has been revoked and he'll never drive again as optometrists don't expect his vision to improve now.
I'm finding everything so hard, nothing is straight forward and there seem to be problems at every turn. Feels like two steps forward, one step back all the time. Like can I find a WAV to take 58" head room (he's tall and long limbed) and fit the family/equipment in without bankrupting us. (It didn't pay us to work hard and save for our children's future as just means now we're not eligible for any help and have to fund everything ourselves).
I have to also help the children through it, our 10 year old was really close to his dad and is struggling. Lots of anger directed at me. Then there's secondary school decisions this month and am really feeling the weight of having to do everything alone and essentially losing my partner, despite the fact that he didn't die.
Sorry it's not a very upbeat first post. Couldn't seem to stop once I started typing!