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We know that people affected by stroke are experts in what it is like to experience and live with stroke. We think that listening to the opinions and experiences of people affected by stroke should be a key part of the research process, to make sure that stroke research is relevant and important to those that it ultimately aims to benefit.
 
Being involved in research is different to being a research participant, as you are not the subject of research. Instead you are a partner in the research process: you’re involved in making decisions that affect research and you can influence and change outcomes.
 
INVOLVE defines public involvement in research as: “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”

You can find out more about the benefits of involving people in research on the INVOLVE website.

Our haemorrhagic stroke workshop attendees

Join the Stroke Voices in Research Panel

We work with a group of people affected by stroke who are involved in research, called the Stroke Voices in Research, who:

  • Help decide what research we fund
  • Have a say in the future direction of our research funding
  • Work with an advise researchers as they develop their project

In 2014/2015 members also helped us shape our Priority Programme Awards. To be a member you should have personal experience of stroke, as a:

  • Stroke survivor
  • Carer
  • Family member

You don’t need any knowledge of science, medicine or research. There is no minimum time commitment and how much involvement you have is completely up to you.

If you would like to become a join Stroke Voices in Research, or if you have any questions, please email research@stroke.org.uk or call Laura Piercy, Research Engagement Officer, on 020 3873 5717.

If you're unsure whether getting involved in research is right for you, take a look at this personal story produced by INVOLVE.

Research workshops

We launched a new Research Strategy in December 2014; as part of this we launched a number of new funding streams. One of these was our Priority Programme Awards which are aimed at addressing gaps in research.

Our Priority Programme Awards are for research in:

  • Haemorrhagic stroke
  • Psychological consequences of stroke
  • Vascular Dementia

As part of the strategy, we held a number of workshops that helped us shape our priorities in  these areas.

These were a chance for us to bring together a wide range of stakeholders. Key researchers in stroke research, research funders, stroke survivors and carers were all invited.

Each workshop consisted of a number of talks around the current stage of research in the area and lots of opportunities for discussion. Click on the links above for an overview of these workshops.

For more information and to register your interest for any future workshops, please email research@stroke.org.uk

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