Financial support and grant-giving organisations
Your financial situation may change after a stroke. Find out what support may be available to you.
- Cerebra offer a specific guide to applying for DLA, and Contact offers a benefits check via their helpline.
- Turn2Us and Disability Grants offer search functions so you can look through a range of grant providers.
- Organisations that offer grants to young people affected by stroke, brain injury and disability include Family Fund, the Child Brain Injury Trust and the Roald Dahl Charity.
- Young people considering study in further education settings may be interested in the Disabled Students Allowance, and those interested in learning to drive may be interested in the Motability Charity and Scheme.
- Carers UK - information on carer support and benefits, including criteria for applying for carers allowance, and to find local support.
- See our guide to benefits and financial help after a stroke - this guide is aimed at all stroke survivors (not just children) and describes the financial support and grants available from the government and local councils.
Bereavement and grieving a child after stroke
Sadly, as with adult stroke, not every child survives. If you've lost a child through stroke, there are specialist support services that can support you and help you come to terms with your loss.
You can call our Helpline on 0303 3033 100 to ask for advice on finding help after the death of a child, or just for someone to talk to.
You may also find the services below are of help to both you and your family:
- Childhood Bereavement UK.
- Cruse Bereavement Support.
- NHS: Helping children with bereavement.
- The Lullaby Trust: Bereavement support after the death of a baby or child.
- Heal Grief: Grieving the death of a child is often referred to as the ultimate tragedy.
- Good Housekeeping: How to support children through grief.
Stroke, brain injury and hemiplegia organisations
- Contact - an organisation which supports the families of children with disabilities. They also provide a helpful guide for families which puts all the information in one place and helps explain jargon and job titles. Families can order a free copy of the guide on this page.
- Brain Injury Hub - a website providing in-depth information on childhood brain injuries (including stroke).
- Child Brain Injury Trust - an organisation that supports children, young people and families affected by acquired brain injury. Provides information, advice lines, local services and events.
- Cerebra - an organisation that supports children, young people and families affected by neurological conditions. Provides information, resources and services. Has an Innovation Centre which will customise equipment for children with disabilities.
- Scope - an organisation which supports the families of children with disabilities. Provides a range of services and information.
- Young Sibs - an organisation which supports the siblings of children with disabilities. Provides information, resources and a chat room.
- CHASA - an American site providing a range of information and resources about stroke and hemiplegia that affects childhood.
- International Alliance for Pediatric Stroke - an international site drawing together a range of information and resources on stroke in childhood.
- CPSSA - a Canadian site providing a range of information and resources on stroke in childhood.
- Calgary Pediatric Stroke Program - a Canadian site addressing some of the frequently asked questions about stroke in babies/around the time of birth.
- Stroke Foundation - an Australian site providing a range of information and resources on stroke in childhood.
- Sickle Cell and Young Stroke Survivors and Sickle Cell Society - organisations that offer information and support to children, young people and families affected by stroke and sickle cell disease in childhood.
- Epilepsy Action and Young Epilepsy - organisations that provide tailored information about epilepsy for children and young people.
- Cardiac risk in the young and the British Heart Foundation - organisations that provide tailored information about heart conditions in children and young people.