Childhood Stroke Project resources
Our Childhood Stroke handbook explains to children what happens when they have a stroke and also has advice for parents.
Watch our video What is a stroke - created as part of the Childhood Stroke Project in collaboration with the Evelina London Children's Hospital and thanks to the support of the Childwick Trust.
Find more videos on what happens when you have a stroke, getting better after having a stroke and talking about having a stroke in the childhood stroke playlist on our YouTube channel.
Our Childhood Stroke question and answer sheets help inform families of what to ask in neurology appointments and school meetings following a stroke. These have been developed through working with parents and professionals:
- Questions to ask when your child starts or returns to school.
- Questions to ask at neurology appointments.
- Questions to ask when looking for therapy services or attending therapy appointments.
We've also developed a small medical information card for use by childhood stroke survivors. If you'd like a free copy, please contact email@example.com
More resources for families and young people
- Acquired Brain Injury in Children: a parents' handbook - a comprehensive guide from The Children's Trust
- The Hemiplegia Handbook - a practical guide for parents
- Hands up for Andie - a story book for younger children living with hemiplegia
- Heads-up, Tim-Tron - a book for younger readers who'd like to know more about acquired brain injury
- Sven and Fatma - two story books for children and young people to raise awareness about Moyamoya disease
- The International Alliance for Pediatric Stroke has a range of resources and publications about childhood stroke
- A Stroke Can Happen at Any Age by the International Alliance for Pediatric Stroke is a video to raise awareness that stroke happens to infants, children and even before birth.
- Young stroke survivor, Oli, talks about getting back to life after stroke.
- Lily-Mae had a stroke at the age of 7. Here Lily-Mae's parents speak of their personal experience, and give an account of the problems parents face when dealing with childhood stroke.
- My Way by Hemihelp is an uplifting collection of home-made clips filmed by families and people affected by hemiplegia (weakness down one side of the body, that can sometimes be a consequence of stroke). The aim is to tell the world that hemiplegia doesn't mean living half a life. If we face a challenge then we just find our own way around it.