Over 150 stroke survivors, carers, volunteers and stroke professionals attended the UK Stroke Assembly North (30-31 May in Crewe).
The aim of the event is to give a voice to people affected by stroke and aphasia, providing an opportunity to meet with and influence decision makers.
Alex Hoffman, Stroke Programme Manager at the Royal College of Physicians, gave a plenary talk about the National Clinical Guideline for Stroke. It included the experiences of Robert Norbury, a patient representative involved in the development of the guidelines, emphasising how the input of stroke survivors is essential.
Avril Drummond, Professor of Healthcare Research at the University of Nottingham, chaired day two of the event. Avril has just come to the end of her term as Chair of the UK Stroke Forum and worked closely with UK Stroke Forum Service User Representatives, of which Liz Topliss is one. The representatives are the voice of stroke survivors and carers, and gather key messages about the importance of patients, carers and the public getting involved in research, to feedback to professionals.