Published: 12 June 2018

Public Involvement in Research at UK Stroke Assembly North

The UK Stroke Assembly brings together people affected by stroke to share both their hopes and concerns in a UK wide forum. The annual events bring together stroke survivors, carers and their families and gives them a voice to have their say on the issues that affect them.

This year, the UK Stroke Assembly North event was held in Manchester. On day two, the morning plenary was all about stroke research, including how patients can get involved in shaping it.

The plenary was co-chaired by Hilary Reynolds CBE, our Executive Director of Strategy and Research, and Professor Dame Caroline Watkins, UK Stroke Forum Chair-Elect.

We first heard from Professor Dame Watkins. She spoke about some of the latest research developments in stroke, including the overlooked and unmet need of supporting sufferers of incontinence after stroke and current research into this challenging condition, and about the new National Stroke Plan across England.

We then heard from Dr Lisa Hinton from the University of Oxford. In partnership with the British Heart Foundation we’re funding the ‘TASMIN5’ home blood-pressure monitoring trial which Dr Hinton is working on. She shared just how important the patient voice was in developing the trial, and how the trial would work.

Dr Lisa Hinton talking about the importance of public involvement in her work

Dr Hinton was closely followed by Cathy Rice who had a stroke ten years ago when she was in her forties, while climbing on her bike to get to work.  She shared why she remained passionate about being involved in the development and delivery of the research, including the ‘BP and Me’ study.

Cathy Rice on how she became involved in stroke research

Our Research Engagement Officer Laura Piercy then spoke about how people can get involved in research more widely and provided information on how to get involved with our research at the Stroke Association too.

To find out more about how you can get involved stroke research visit our website.

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