Glasgow Caledonian University
Keywords: stakeholder workshops, physical rehabilitation, motivation, therapists' support, home-based practice
Open to: Stroke survivors and carers (formal and informal)
Deadline: 29 February 2024
Apply / key contact : Please contact Stefanie Schnabel at Stefanie.Schnabel@gcu.ac.uk or 0+141 3318967
Further Information: Please read the Stroke Survivors Information Sheet
Research participation requests are sent to the Stroke Association from external research institutions (e.g. universities and hospitals).
We conduct checks on these before promoting but are not involved in their running. This means we cannot comment on trials and have no affiliation with them.
You (stroke survivors and their carers) are invited to take part in a workshop to share your experience with rehabilitation (including physiotherapy, occupational therapy and speech and language therapy) after stroke.
We are interested to hear your views on what helps with being motivated for rehabilitation especially when practising on your own at home. We are also interested to hear your views on how therapists can best support you in this.
We would like to ask you to take part in a two-part workshop with other stroke survivors and carers (within 2-3 weeks of each other) and each will last for approximately 2 hours.
The workshops will consist of 5-6 participants and will be held by Stefanie online. We will provide guidance to help you with this. The workshops will be completed before the end of March 2024.
We are looking for stroke survivors who are18 years or older and who have experience with stroke rehabilitation including physiotherapy, occupational therapy and speech and language therapy.
We are also looking for people who have been confirmed by a stroke survivor as their carer.
What is the opportunity about?
We know that rehabilitation is necessary for recovery after stroke, and that more is generally better. But practicing by yourself can be really difficult.
I aim to investigate what helps stroke survivors like you during rehabilitation, especially when practising by yourself. The purpose of the workshops is to hear your views about what helps your motivation and how therapists' can best support you to engage in rehabilitation, including home-based exercises and activities.
We would like to know if the findings from our previous study reflect what people like yourself have experienced and what is important to them to engage in rehabilitation.
Including your views will help us better understand how we can improve rehabilitation for other people like you.
What will it Involve?
We would like to ask you to take part in a two-part workshop with other stroke survivors and their carers (within 2-3 weeks) and each will last for approximately 2 hours.
The workshops will consist of 5-6 participants and will be held by Stefanie online (we will provide guidance to help you with this) and will be completed before the end of March 2024.
The workshops will ask you for your views on the importance of motivation and the support of therapists during rehabilitation, including home-based exercises and activities.
The workshops include the following:
Workshop One: a short introduction of the study and the ideas will be given. We will then talk about idea 1, which is about the motivation of stroke survivors to engage in rehabilitation including home-based exercises and activities.
Workshop Two: we will talk about idea 2, which is about the importance of the support of therapists to engage in rehabilitation including home-based exercises and activities.
We are interested in your views on each of these ideas and to hear which of these ideas you think should be the first for us to study further.
If you could read a one-page document in preparation of each of the workshop, that would be of benefit.
Who can take part?
Inclusion and exclusion criteria – stroke survivors
We are looking for people who are 18 years or older and who have experience with stroke rehabilitation including occupational therapy, physiotherapy and speech and language therapy.
Excluded will be anyone affected by factors likely to interfere with participation in the workshop e.g. feel unwell, severe communication impairments such as aphasia and who do not have the capacity to consent.
Inclusion and exclusion criteria – carers
We are looking for people who have been confirmed by a stroke survivor as their carer and are 18 years or older.
Excluded will be anyone who feels unwell to participate in the workshops.
What will you get from taking part?
We can’t promise the study will help you personally. Talking about your experience with rehabilitation may be helpful for you.
With your contribution to the workshops you will inform us how we can improve rehabilitation for people like you in the future.
Highlighting the topics in what to investigate in future research may empower you and gives you a voice in the decision-making.
How Can I Take Part?
If you are interested in participating in the study and would like to know more then please contact by email or phone:
Stefanie Schnabel Email: Stefanie.Schnabel@gcu.ac.uk
Frederike van Wijck Email: Frederike.vanWijck@gcu.ac.uk
Telephone number: 0+141 3318967
Information on taking part in research
Research participation helps research teams to test new ideas and approaches by sharing information or trying new approaches in clinical trials.
Taking part in clinical trials can support research to:
- Stop strokes from happening.
- Treat strokes.
- Support people to rebuild their lives.
By taking part in research, you can help us to learn more about stroke and make a difference in the lives of future stroke survivors.
We have produced the Clinical Trials and Stroke booklet to explain more about clinical trials and answer questions you might have about taking part. The booklet was produced with the NIHR Clinical Research Network.
Information on Research Involvement
Research Involvement is a different way of contributing to research that involves collaborating with researchers to design decisions about how research is shaped and conducted.
You do not need any research knowledge to do this, your lived experience is what would otherwise be missing. Involvement is about contributing this to shape projects in ways that create most potential to benefit people affected.