We know that people affected by stroke are experts in what it is like to experience and live with stroke. We think that listening to the opinions and experiences of people affected by stroke should be a key part of the research process, to make sure that stroke research is relevant and important to those that it ultimately aims to benefit.
Being involved in research is different to being a research participant, as you are not the subject of research. Instead you are an active part of the research process: you’re involved in making decisions that affect research and you can influence and change outcomes.
INVOLVE defines public involvement in research as “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”
You can find out more about the benefits of involving people in research on the INVOLVE website.
At the Stroke Association we work with a group of people affected by stroke who are involved in research called the Service User Review Panel.
Members of the Service User Review Panel:
- help shape the future direction of our research funding
- participate in the review of research to decide what we fund
- work with and advise researchers as they develop their projects and funding applications.
- helped us shape our Priority Programme Awards
We’re working on more opportunities for members to be involved in research, and will be involving members in the development of these. so watch this space
We’re currently looking for new members of the Service User Review Panel. Click here to find out more, and how you can become a member.