The James Lind Alliance (JLA) works with the principles of equality, transparency, and using and contributing to the evidence base. This means that:
- Everyone involved has an equal voice.
- We’re clear and open about the decisions we make and why.
- We check the existing research evidence and add to it.
To make sure that each partnership keeps to these principles, an independent Adviser from the JLA works with the Steering Group.
The whole process will take about 18 months, and will go through a number of clear stages:
We form a Steering Group, bringing together people affected by stroke, different healthcare professionals and research experts.
They agree what the partnership will cover, what will happen and when, and who else to work with in order to reach as wide an audience as possible.
We ask you - people affected by stroke and different healthcare professionals - to tell us the questions that you think research should answer. This might be through a simple online survey, or at meetings or workshops.
You don’t have to worry about knowing whether research has already answered your questions – that is something we'll do.
We collect all the questions and sort them into themes. We'll also look to see whether any of the questions have been answered already and if so, we'll remove them from our list.
We ask you - people affected by stroke and different healthcare professionals - to look at the list of questions and to prioritise them. The Steering Group will decide how best to do this when they know how many questions there are.
We hold at least one workshop where some people affected by stroke and some healthcare professionals together look at the top 25 or 30 questions and work together to agree on the final priority order. We might hold more than one workshop, but the Steering Group won’t know whether this is a good idea until they see the themes in the questions in Stage 3.
After this, we'll use the priorities to inform our research funding decisions. We'll also work with partners to encourage other funders of stroke research throughout the UK to use the priorities to inform their funding decisions.