The Stroke Priority Setting Partnership (PSP) established priority areas for stroke research investment across the stroke care pathway. 

The Stroke Association and James Lind Alliance (JLA) worked with the principles of equality, transparency, and using and contributing to the evidence base for the Stroke PSP.  This means that: 

  • Everyone involved has an equal voice. 
  • We’re clear and open about the decisions we make and why. 
  • We check the existing research evidence and add to it. 

The process had clear stages. 

Stage 1. Set up of the Steering Group and partners that include people affected by stroke, representatives of UK stroke health care professionals and charities. 

Stage 2. Unanswered questions about stroke collected through a survey. People affected by stroke, and health and social care professionals took part.  

Stage 3. Questions were checked against the Stroke PSP scope and existing evidence. Questions already answered, or to be answered in the near future, were removed. The remaining unanswered questions were combined where they are similar and sorted into groups. 

Stage 4. The most important unanswered questions were chosen from lists through a survey. People affected by stroke, and health and social care professionals took part. 

Stage 5. Top 10 priorities in stroke prevention, diagnosis, pre-hospital and hospital care, and stroke rehabilitation and long-term care decided in online workshops. People affected by stroke, and health and social care professionals took part. 

You can read about the full process in our report.

You can find materials, including the PSP Protocol and the survey on the JLA website

 
 

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