The Stroke Priority Setting Partnership is guided by a Steering Group. Members include people affected by stroke, health and social care professionals, and those in supporting roles. Where two people are named for one organisation, they are sharing one place.

Organisations

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Ulrike Hammerbeck

Ulrike Hammerbeck portrait

I’m an academic physiotherapist at the University of Manchester and a representative for the Association of Chartered Physiotherapists Interested in Neurology. I’m involved in research that aims to improve the recovery of arm movement after stroke.

Sally Davenport

Sally Davenport portrait

I’m a Senior Teaching Fellow within the physiotherapy group at University College London, and one of the representatives for the Association of Chartered Physiotherapists in Neurology. My particular interest is to understand more about the experience and perceptions of stroke survivors and their family/carers of stroke recovery and rehabilitation.

Rustam Al-Shahi Salman

Portrait image of Rustam

I’m a professor of clinical neurology (University of Edinburgh) and honorary consultant neurologist (NHS Lothian). I lead the Research to Understand Stroke due to Haemorrhage (RUSH) programme, dedicated to improving the outcome for adults who have diseases that may cause, or have caused, bleeding in the brain (intracranial haemorrhage). I also care for people with these conditions, and help undergraduate and postgraduate students to develop and answer research questions within the RUSH programme. I was a member of the JLA PSP Steering Group for Cavernoma.

Nicholas Evans

portrait of Nicholas Evans

I’m a Clinical Lecturer in Stroke Medicine at the University of Cambridge, and Honorary Specialist Registrar at Addenbrooke’s Hospital, Cambridge. I have research interests in the hardening and narrowing of arteries (atherosclerosis) and imaging of the brain and its blood vessels (cerebrovascular imaging). I also have a quality improvement interest in the delivery of care within the first 6 hours of stroke (hyperacute stroke care). I’m Chair of the British Association of Stroke Physicians Trainee Committee.

Diederik Bulters

Portrait image of Diedrick

I am a consultant neurosurgeon and Honorary Senior Clinical Lecturer at the Wessex Neurological Centre at University Hospital Southampton. I specialise in the surgical treatment of Stroke. I am president of the British Neurovascular Group and a member of the academic committee of the Society of British Neurological Surgeons and my research is in intracerebral haemorrhage and subarachnoid haemorrhage – two types of stroke caused by bleeding on the brain.

Eirini Kontou

Portrait image of Eirini

I’m a Senior Research Fellow at the University of Nottingham and a Clinical Psychologist working in a stroke rehabilitation setting. My research has focused on stroke rehabilitation and especially on the psychological effects of stroke. I’m currently leading a study on psychoeducation and support after transient ischaemic attack and minor stroke.

Shirley Thomas

Portrait image of Shirley

I’m a Health Psychologist and Associate Professor at the University of Nottingham. Much of my research has focused on the psychological effects of stroke. I’ve recently completed studies on a treatment for depression following stroke (called behavioural activation), including for people with language and communication difficulties (aphasia). I work with colleagues on a range of studies in stroke rehabilitation.

Dianne Haley

Portrait image of Dianne Haley

I’m Director of Operations and Innovation for Chest Heart & Stroke Scotland, responsible for the charity’s research programme, business development and organisational strategy and planning. My background is in executive line management and business change across the public and private sectors, including in the NHS and Integrated Joint Boards, charities and the life insurance industry.

Gillian Mead

Portrait image of Gillian

I’m a stroke physician and Professor of Stroke and Elderly Care Medicine at the University of Edinburgh. I’ve previously worked in Manchester as a stroke research fellow until 1996, when I moved to Edinburgh. I look after stroke survivors in my clinical practice, and my research interests are guided by the needs of stroke survivors and their families.

Brinton Helliwell

I spent 25 years as a teacher and senior manager in post-16 education before a traffic accident, which caused a large ischaemic stroke, forced my early retirement aged 48 in 2008. I got involved in stroke research as a participant in 2006 and have since become an advisor and co-applicant for trials all over the UK. I review proposals for the National Institute for Health Research (NIHR) committees that consider whether to fund clinical trials. I’m also a public member of the NIHR Acute Stroke Research Group.

Christine Roffe

Portrait image of Christine Roffe

I’m a stroke physician at the Royal Stoke University Hospital and Professor of Stroke Medicine at Keele University. I lead the National Institute for Health Research Hyperacute Stroke Research Centre Oversight Group, and I am a member of the UK Stroke Forum Steering Group.

Clare Gordon

Portrait image of Clare

I’m a Consultant Nurse in Stroke Care, involved in the inpatient care and rehabilitation of people affected by stroke since 2004. I’m completing my doctoral study - as part of a National Institute for Health Research Fellowship - into supporting approaches that focus on the quality of relationships and human connections between patients, relatives and staff on stroke units. I’m President of the National Stroke Nursing Forum (NSNF), having been Chair from 2011-2016, and have contributed towards promoting and developing the contribution of stroke nursing in the UK.

Liz Lightbody

Portrait image of Liz

I’m a Reader in Health Services Research in the School of Nursing at the University of Central Lancashire, and Chair of the National Stroke Nursing Forum (NSNF). I’m a nurse by professional background and have been an active researcher for over 20 years. My research expertise is in applied health research, service improvement and implementation.

Niamh Kennedy

Portrait image of Niamh

I’m a Lecturer in the School of Psychology at Ulster University. My research area is into recovery following stroke, including functional recovery, neuroplasticity and psychosocial effects. I use a variety of research methodologies including experimental neuroscience and mixed methods. I work collaboratively with Allied Health Professionals, Neuroscientists, Psychologists and charities.

I’m representing the Northern Ireland Multidisciplinary Association of Stroke Teams (NIMAST), a charity committed to improving care, education, research and clinical practice for stroke survivors in Northern Ireland.

Jenny Lund

Portrait image of Jenny

I’m a representative of the Royal College of General Practitioners (RCGPs), a GP in rural Cambridgeshire, and a Wellcome Trust PhD fellow at the Department of Public Health and Primary Care, University of Cambridge. My current research investigates the role of screening for atrial fibrillation – a form of irregular heartbeat - as a method of preventing stroke.

Jennifer Crow

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I’m a Clinical Specialist Occupational Therapist working on the Hyperacute and Acute Stroke Units at Charing Cross Hospital. I’m an experienced clinician, with over 15 years experience of working with stroke survivors and their families in the acute setting. I’m also the Chair of the Royal College of Occupational Therapists Specialist Section Neurological Practice Stroke Forum. I received a National Institute for Health Research pre-Doctoral Fellowship Award which I’ll commence in February 2020.

Thompson Robinson

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I’m Deputy Head of the College of Life Sciences and Professor of Stroke Medicine at the University of Leicester, and an Honorary Consultant Physician in Stroke Medicine. I’m also Chair of the Membership Committee of the European Stroke Organisation, President of the British Association of Stroke Physicians, Specialty Lead for Stroke for the National Institute for Health Research (NIHR) Clinical Research Network, and an NIHR Senior Investigator. My research interests include clinical trials in acute stroke, particularly management of blood pressure and the breakdown of blood clots formed in blood vessels, using medication (thrombolysis).

Marian Brady

Portrait image of Marian

I’m Professor of Stroke Care and Rehabilitation at Glasgow Caledonian University and a Fellow of the Royal College of Speech and Language Therapy. As an experienced therapist, I have worked in community and hospital settings in Ireland and Scotland. Leading a dynamic multidisciplinary research team, I aim to deliver high-quality evidence which improves the lives of stroke survivors.

Katie Chadd

Portrait image of Katie

I’m the Research Officer at the Royal College of Speech and Language Therapists (RCSLT). I’m a qualified speech and language therapist, with an interest in evidence-based aphasia rehabilitation. At the RCSLT, I’ve been involved in research priority setting in a number of clinical areas within the speech and language therapy profession.

Sarah Belson

Portrait image of Sarah

I am the International Development Manager with the Stroke Association and World Stroke Organization and lead the programme to establish and strengthen patient stroke support organizations (SSOs) globally. I collaborate with a global SSO network and have experience of supporting institution, programme and advocacy capacity building by working in partnership with a range of stakeholders.

Jonathan Hewitt

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I’m a Geriatrician and Stroke Physician based in Cardiff University. My research interests include Patient Reported Outcome Measures in Stroke and Frailty in Stroke. As well as adding my own personal expertise, I am representing the Stroke Improvement Group of the Welsh government, presenting a Welsh perspective to this PSP.

Marian Brady

Portrait image of Marian

I’m Professor of Stroke Care and Rehabilitation at Glasgow Caledonian University and a Fellow of the Royal College of Speech and Language Therapy. As an experienced therapist, I have worked in community and hospital settings in Ireland and Scotland. Leading a dynamic multidisciplinary research team, I aim to deliver high-quality evidence which improves the lives of stroke survivors.

Alex Pollock

I’m a Senior Research Fellow within the Scottish Government funded Nursing, Midwifery and Allied Health Profession (NMAHP) Research Unit. I have particular expertise relating to systematic reviews of complex interventions and I am an Associate Editor with Cochrane Stroke, and I am an author on several Cochrane systematic reviews. I have an active interest in public involvement in research, I have led and contributed to a number of research prioritisation projects, including two with the James Lind Alliance (JLA).

Phil White

I am Professor of Interventional and Diagnostic Neuroradiology at Newcastle University. I’m (Co-)Principal Investigator of multiple trials in stroke amongst a wide portfolio of clinical trial and [neuro]imaging research. I represent the Royal College of Radiologists on the Intercollegiate Stroke Working Party. I’m the Neuroradiology representative on NHS England Neurosciences Clinical Reference Group and Policy Working Group on Thrombectomy. I Chair the UK Neurointerventional Group and the European Society of Minimally Invasive Neurological Therapy Guidelines Committee.


Jenny Hylands

Portrait image of Jenny

I’m a Stroke Survivor. I have a BSc in Speech and Language Therapy, and an MSc in Professional Development and Counselling. I’m also a Master Practitioner in Neuro-linguistic Programming and a Management Coach. From 1986-1992, I was a Clinical Specialist in Adult Neurological Communication Disorder, and was Course Director in Speech and Language Therapy at the University of Ulster till 2015. I have research interests in psychosocial recovery following stroke, and the role of Personal Trainers in physical recovery following the acute phase of rehabilitation.

Ruth Lyle

Portrait image of Ruth

I live in the Scottish Borders, and survived a stroke 3 years ago whilst on holiday in Spain. From being unable to move my left arm, I’ve made a good recovery. Previously a Chartered Librarian, I now enjoy gardening, reading, and yoga whilst volunteering for the Stroke Association and The Chartered Institute of Library and Information Professionals in my spare time.

Ade Adebajo

Portrait image of Ade

I am a stroke survivor and a champion for patient involvement, with a particular interest in diversity and inclusion. I am also a National Institute for Health Research (NIHR) INVOLVE Associate and I chair a Working Group on Diversity and Inclusion for INVOLVE and NIHR. I am also a Professor of Health Services and Rheumatology at the University of Sheffield, the Deputy Editor of a Rheumatology journal and an Associate Director of Teaching for the University of Sheffield Medical School.

Sandra Edgington

I have been suddenly immersed in the Stroke World since my partner suffered a severe intracranial haemorrhage while on holiday in 2019, robbing him of speech and movement down the right side. He also has swallowing difficulties and considerable memory loss. After fifteen weeks in hospital he is now resident in a Birmingham Nursing Home. I visit daily.

Ann Daly

I work part-time as a Clinical Librarian at Birmingham Women’s Hospital, and I provide support to Priority Setting Partnerships aiming to identify research priorities. I have an MSc in Evidence-based Medicine and Practice, and I am a member of the Chartered Institute of Library and Information Professionals.

Joshua Cheyne

I’ve worked as an Information Specialist for the Cochrane Stroke Group for nearly four years. Previously, I was employed as a Librarian within the NHS. I have experience of conducting searches for literature reviews that collect and provide critical analysis of multiple papers or studies (systematic reviews) and complex evidence, for a full range of healthcare specialities.

Sandra Regan

Portrait image of Sandra

I’m the Manager for the James Lind Alliance (JLA) Priority Setting Partnership (PSP), having previously worked with a dozen PSPs, both as a Co-ordinator and as a JLA Adviser. I’ve also worked at Biomedical Research Centres in Oxford, to enable the involvement of patients and the public with health research.

Suzannah Kinsella

Portrait image of Suzannah

I joined the James Lind Alliance as an Advisor in April 2019. As a facilitator and researcher, I have involved the public and stakeholders in health and social care policy and service discussions. I’ve worked with complex and sensitive issues such as genetic technologies, organ donation, changes to health services and data security. The discussions I design help to generate constructive and insightful conversations that lead to better outcomes.

Our partners

Our Partners represented people affected by stroke, health and social care professionals, and charities whose members are affected by stroke. They helped to raise awareness of the project and get people involved. You can see some of our partners' logos below, and you can also download the full list of partners. 

Partner logos

Thank you

"It’s only by working in partnership that we have established these priorities for research across the entire stroke care pathway. I’d like to thank each individual and organisation that dedicated their time to work with our charity and successfully build this project.  

I look forward to continuing to work with the stroke community to develop research and policy in these priority areas to improve stroke treatment and care. Far too many people affected by stroke do not receive the support they need to rebuild their lives, and a lack of investment in research is part of the problem. It’s my hope that by increasing investment in these priority areas more people can not only survive, but also rebuild their lives after stroke." - Juliet Bouverie, Chief Executive of the Stroke Association.