On this page: 
Childhood stroke parent support and information days
Peer support
Stroke, brain injury and hemiplegia organisations
Family organisations
Education and advocacy organisation
Related conditions
Resources for families and young people
Video resources

Childhood stroke can affect the whole family. Parents often feel a range of emotions, from shock and bewilderment to feelings of isolation and frustration. Other children in the family can be affected by the stroke too. They may not understand what is happening to their brother or sister, which can be upsetting and confusing.

We're here to support you as much as we can. Find out more about the Childhood Stroke Project, a collaboration between the Stroke Association and Evelina London Children's Hospital.

Additionally, our childhood stroke factsheet provides information about the causes of stroke in children, the treatments, and coping with life after childhood stroke. We've also developed a childhood stroke handbookwhich explains to children what happens when they have a stroke and also has advice for parents.

Below are a number of resources relating to childhood stroke. If you require more information, please contact Anna Panton, Childhood Stroke Project Manager, by email: anna.panton@stroke.org.uk.

Childhood stroke parent support and information days

Childhood stroke parent support and information days are opportunities for parents and carers of children affected by stroke to come together, find peer support networks and access information and resources relevant to them. You can view summaries for our two most recent days here:

Connor Lynes, who had a stroke at the age of 14, came to our event to talk about his experience of stroke and his life after stroke. His speech is available to watch online.

If you have any queries about our Information Days, please contact Anna Panton on 07715 065925 or childhood@stroke.org.uk

You can learn more about the days by watching our film:

Peer support

  • Follow us on Facebook.
  • My Child had a Stroke – Facebook groups for parents of childhood stroke survivors.
  • My Stroke Guide – our online stroke community and support tool available to people over 16 years old, providing access to peer support, information for family and friends, and advice about stroke in general.
  • Hemi Chat – a parent-led support group, with access to a Facebook group and opportunities to meet other families affected by hemiplegia across the UK.
  • Face to Face – a parent befriending scheme run by SCOPE.

Stroke, brain injury and hemiplegia organisations

  • Hemihelp – provides information and support to children and families affected by weakness on one side of the body. They have activity and support groups for parents and siblings and give advice on aids and equipment.
  • Brain Injury Hub – website providing in-depth information on childhood brain injuries (including stroke).
  • Child Brain Injury Trust – an organisation that supports children, young people and families affected by acquired brain injury. Provides information, advice lines, local services and events.
  • Cerebra – an organisation that supports children, young people and families affected by neurological conditions. Provides information, resources and services. Has an Innovation Centre which will customise equipment for children with disabilities.
  • Different Strokes – an organisation that supports younger people affected by stroke, and offers an information pack about stroke in children.
  • CHASA – an American site providing a range of information and resources on stroke in childhood and hemiplegia.
  • International Alliance for Pediatric Stroke – an international site drawing together a range of information and resources on stroke in childhood.
  • CPSSA – a Canadian site providing a range of information and resources on stroke in childhood.
  • Calgary Pediatric Stroke Program – a Canadian site addressing some of the frequently asked questions about stroke in babies/around the time of birth.
  • Strokidz – an Australian site providing a range of information and resources on stroke in childhood.

Family organisations

  • Contact – an organisation that supports the families of children with disabilities. Provides a range of services and information.
  • Scope – an organisation that supports the families of children with disabilities. Provides a range of services and information.
  • Young Sibs – an organisation that supports the siblings of children with disabilities. Provides information, resources and a chat room.

Education and advocacy organisations

  • IAS Services – offers information, advice and support for disabled children, young people, parents, and those with special educational needs. You can check here if there is a service in your area.​
  • IPSEA – an organisation that offers legal advice, support, and training for parents around Special Educational Needs.
  • Council for Disabled Children – a national umbrella body that brings together a diverse range of organisations that work with and for disabled children to support the development and implementation of policy and practice.
  • Statutory guidance on supporting children at school with medical conditions – includes examples of care plans.

Related conditions

Resources for families and young people

Video resources

  • A Stroke Can Happen at Any Age by the International Alliance for Pediatric Stroke is a video to raise awareness that stroke happens to infants, children and even before birth.
  • Young stroke survivor, Oli, talks about getting back to life after stroke.
  • Lily-Mae had a stroke at the age of 7. Here Lily-Mae's parents speak of their personal experience, and give an account of the problems parents face when dealing with childhood stroke.
  • My Way by Hemihelp is an uplifting collection of home-made clips filmed by families and people affected by hemiplegia (weakness down one side of the body, that can sometimes be a consequence of stroke). The aim is to tell the world that hemiplegia doesn't mean living half a life. If we face a challenge then we just find our own way around it.

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