Childhood stroke can affect the whole family. Parents often feel a range of emotions, from shock and bewilderment to feelings of isolation and frustration. Other children in the family can be affected by the stroke too. They may not understand what is happening to their brother or sister, which can be upsetting and confusing.
The Childhood Stroke Support Service is available for children, families and young people affected by stroke in childhood. The service is part of a collaboration between us and Evelina London Children's Hospital and is funded by the Margaret Giffen Charitable Trust.
This service provides:
- tailored information, for children, young people and families affected by stroke, about the nature of their stroke or related diagnoses
- advice about local services, and a follow-up that families may find useful
- support in navigating health, social care and educational processes
- advocacy for young people and families in accessing the services they need
- emotional support in adjusting to the impact of stroke
- signposting to peer support networks for parents and young people.
If you'd like to speak to someone for advice or support, please contact Anna Panton, Childhood Stroke Project Manager:
- Email: firstname.lastname@example.org
- Call: 07715065925
If you'd like to read more about the work of the Childhood stroke project, take a look at our latest progress report.
Other sources of support
The below websites and online communities offer an opportunity for you to access online peer support, and share experiences about childhood stroke.
- Follow us on Facebook.
- My Child had a Stroke – Facebook groups for parents of childhood stroke survivors.
- My Stroke Guide – our online stroke community and support tool available to people over 16 years old, providing access to peer support, information for family and friends, and advice about stroke in general.
- Hemi Chat – a parent-led support group, with access to a Facebook group and opportunities to meet other families affected by hemiplegia across the UK.
- Face to Face – a parent befriending scheme run by SCOPE.