In 2018, we conducted the largest ever survey of stroke survivors and their carers to find out more about their lives. Over 11,000 people affected by stroke in the UK took the time to share their stories with us.
We now know more about the everyday experiences of those living with the effects of stroke, which can sometimes last a lifetime.
About the survey
1,880 stroke survivors and carers completed our online survey. We made sure this sample was representative of the UK population. Most of these people had not been in contact with the Stroke Association before.
9,254 stroke survivors, who we have supported in recent years, also completed a survey. Mostly these respondents took a paper-based survey, although a few completed the survey online.
About the report
The Lived Experience of Stroke report is split into four chapters. The report shares what people affected by stroke told us about:
- The hidden effects of stroke - the impact on mental and emotional health, as well as memory, concentration and other cognitive problems.
- The practical impact of stroke - losing independence, returning to work, the impact on the financial situation and social life.
- Caring for a stroke survivor - the challenges faced by those closest to someone who has had a stroke.
- Rebuilding lives after stroke - the rehabilitation and support available and where this is lacking.