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People affected by stroke are experts in what it is like to experience and live with stroke. We think that it's vital that people with these experiences are involved in stroke research to make sure it's relevant and important to those it aims to benefit.

Being involved in research is different from being a research participant, as you are not the subject of research. Instead, you are a partner in the research process - you’re involved in making decisions that affect research, and you can influence and change what the research becomes.

INVOLVE defines public involvement in research as: “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”
You can find out more about the benefits of involving people in research on the INVOLVE website.

Our haemorrhagic stroke workshop attendees

(Pictured above: Our haemorrhagic stroke workshop attendees)

Join Stroke Voices in Research

We work with a group of people affected by stroke who are involved in research, called Stroke Voices in Research, people that:

  • Help decide what research we fund.
  • Have a say in the future direction of our research funding.
  • Work with researchers as they develop and carry out their projects.

In 2014/ 2015 members also helped us shape our Priority Programme Awards.

To be a member, you should have personal experience of stroke as a:

  • Stroke survivor.
  • Carer.
  • Family member.

You don’t need any experience of science, medicine or research. There is no minimum time commitment and how much involvement you have is completely up to you.

If you would like to join Stroke Voices in Research or if you have any questions, please contact Laura Piercy, Research Engagement Officer, via research@stroke.org.uk.

If you're unsure whether getting involved in research is right for you, take a look at this personal story produced by INVOLVE.

Research workshops

We launched a new Research Strategy in December 2014, which included a number of new types of research funding. One of these was our Priority Programme Awards, which are aimed at addressing gaps in research.

Our Priority Programme Awards are for research in:

  • Haemorrhagic stroke.
  • Psychological consequences of stroke.
  • Vascular dementia.

As part of the strategy, we held a number of workshops that helped us shape our priorities in these areas. These were a chance for us to bring together a wide range of stakeholders. Stroke researchers, research funders, and people affected by stroke all attended to help decide what the priorities for research in these areas were.

Each workshop consisted of several talks around the current stage of research in the area, and had lots of opportunities for discussion. Click on the links above for an overview of these workshops.

For more information and to register your interest for any future workshops, please email research@stroke.org.uk