People affected by stroke are experts in what it is like to experience and live with stroke. We think that it's vital that people with these experiences are involved in stroke research to make sure it's relevant and important to those it aims to benefit.
Being involved in research is different from being a research participant, as you are not the subject of research. Instead, you are a partner in the research process - you’re involved in making decisions that affect research, and you can influence and change what the research becomes.
INVOLVE defines public involvement in research as: “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”
Join Stroke Voices in Research
We work with a group of people affected by stroke who are involved in research, called Stroke Voices in Research. These people:
- Help decide what research we fund.
- Have a say in the future direction of our research funding.
- Work with researchers as they develop and carry out their projects.
In 2014/ 2015 members also helped us shape our Priority Programme Awards.
To be a member, you should have personal experience of stroke as a:
- Stroke survivor.
- Family member.
You don’t need any experience of science, medicine or research. There is no minimum time commitment and how much involvement you have is completely up to you.
If you would like to join Stroke Voices in Research or if you have any questions you can get in touch with us via firstname.lastname@example.org.
If you're unsure whether getting involved in research is right for you, take a look at this personal story produced by INVOLVE.