Our vision is for there to be fewer strokes, and for people affected by stroke to get the help they need to live the best life they can. Our Research Strategy for 2019-24 will work towards this through:
- Partnerships to increase funding for stroke research.
- Giving those affected by stroke a louder voice in stroke research.
These align with Goal 2 of our Research Strategy.
To help us achieve these aims, we’re working with a process that has been developed by The James Lind Alliance (JLA), a non-profit making initiative established in 2004. The JLA brings people affected by particular conditions, the people who care for them, and health and social care professionals together to identify and prioritise the unanswered questions that they agree are the most important.
Using the JLA process, therefore, means that research priorities that are developed are important to the people most affected. This is different from the traditional approach where research priorities are decided by academics and the pharmaceutical industry, which has been shown to address issues that are not as important to the people most affected.
This process is known as a Priority Setting Partnership.
Why are we starting a Priority Setting Partnership for stroke?
So that we can make sure that future research can answer questions that are important to people affected by stroke, and the professionals who work with them.
Who will we work with?
We'll work with representatives of different healthcare professions, charities whose members are affected by stroke, and stroke survivors and the people who care for them (i.e. family and close friends).
What are our first steps?
We're bringing together some people to guide the work of the Partnership in a Steering Group. We are looking for members who can reach a wide audience and can represent the four countries of the UK. When we know who they all are, we'll add some information about them to these pages.
What will the Steering Group do?
The Steering Group will need to make a number of decisions, for example about who to involve, and how. As decisions are made we'll add that information. As opportunities to get involved are developed, we'll include them here too.
What does the process involve?
How can you find out more?
If you would like to be added to a mailing list to receive information about the partnership as it develops, please send an e-mail to our Project Manager, Sandra Regan at Sandra.firstname.lastname@example.org